News from Doctors with ME

Well, Googling the URL given above only returns the page with the picture of Dr Qureshi - it's certainly doesn't seem to be a latest post of Doctors with ME at all.

 

No, agreed, I don't think it is meant to be. I suspect as @Trish said, it is probably a mistake. A web writer has maybe accidentally created this orphaned unfinished web page below the main post's page, and overlooked to tidy it up afterwards.

 

I have seen this quote and photo before, but think the only place it could have was the Doctors with ME post on the new guidelines with a number of quotes at the bottom.

Yes, it is still there, see https://doctorswith.me/nice-2021-a-...IEI-uNgyt7TURqryvcPDdWK2dKvPDLcZDfoUP5jRBCCKA

So presumably it was created as a draft for this part of the bigger page, and accidentally got left as a page by itself.

[added - sorry is that what people have already said above.]

 

the other link
"
Shaun-Qureshi-4

• Post date 6 November 2021"

which is why I picked it up as the latest post.

 

I've been sharing the individual quotes on Twitter in case anyone is interested in sharing them:

I've also been sharing these quotes on my Facebook page in case anyone is interested in sharing them from there:
https://www.facebook.com/TomKindlonMECFS/

 

Also

 

I greatly appreciate the work you put into sharing quotes and extracts through social media, in relation to this but also more generally.

 

Also

 

A doctor who doesn’t believe she is ill

• Post date 12 November 2021

https://doctorswith.me/a-doctor-who-doesnt-believe-she-is-ill/

eta:
"One night shift I couldn’t function at all. I could not get up off the chair. All night. A powerful, invisible magnet pulled me flat onto the desk, chair and floor. I could not overcome it."

 

Am I right in thinking DwME were not registered stakeholders for the NICE Guideline but added their name to a letter or statement signed by other stakeholders?

The second link goes to this article:

https://doctorswith.me/doctors-with-m-e-driving-advancement-in-frontline-care/

"Founded in 2009, Modality is now the largest National GP Super-partnership in the UK, serving over 450,000 patients across 8 regions."

"As of January 2021, Modality’s medical directors group have agreed that their organisation will be informed that patients with myalgic encephalomyelitis will be consistently offered the seasonal influenza vaccination under the NHS GMS contract. This is due to its longstanding status as a neurological condition, which will be consistently reflected across the organisation."

So this refers to the patients in the Modality practice group.


Are there 500,000 ME/CFS patients in the UK?

Where does it say that all ME patients in the UK will be offered a flu jab?

"...and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."


Who is writing the content for this site?

----------------------------

Edited to add: The content of the paragraph I have quoted has now been edited (see Post #64)

 

I've asked both Doctors with ME and Keith Geraghty, via Twitter

What does this statement by DwME refer to, please:

"...and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."

​

@EducateME

 

Not wanting to be nitpicky, but the we've seen that picture at the top of the article before, a few years ago. I'm used to the media using rubbish stock photos of models at a desk rubbing their head to represent ME, but I'm disappointed to see a patient organisation use it. I suppose it's because she's a model with a stethoscope.

 

Voila (discussion of exhausted model at desk):

Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

 

So, the Modality Partnership has "nearly half a million patients" and "is now the largest National GP Super-partnership in the UK, serving over 450,000 patients across 8 regions".

Modality has agreed that "As of January 2021, Modality’s medical directors group have agreed that their organisation will be informed that patients with myalgic encephalomyelitis will be consistently offered the seasonal influenza vaccination under the NHS GMS contract."

But the DwME article here: https://doctorswith.me/a-doctor-who-doesnt-believe-she-is-ill/

states:

"Doctors with M.E. has already made significant impact and put itself on the world stage. The 2021 NICE guideline on ME/CFS and its success securing annual influenza vaccinations for half a million ME/CFS patients in the UK are some examples."

So, who wrote that statement?
Who signed off on it?

Have none of the Directors, Honorary Fellows, member of the various sub committees and members and associates who have paid a subscription fee queried the veracity of that statement?

 

They could have used a photo of Dr Hng.

 

I don't think so. I think it is a stock image.

See Tired Sam's post for further examples of its use:

https://www.s4me.info/threads/petit...all-countries-can-sign.2580/page-4#post-50378