News from Austria and Switzerland

Jonathan Edwards said:
Choco Leibniz please. The chocolate is thicker and Swiss quality.
Click to expand...
Splendid, it looks like we’ve got the maestro on board for our project!
Let’s ignore that this diva’s colors are already shining through and he just publicly rejected to eat the sponsor’s chocolate.
Let that be the next guy’s problem – Après moi, the deluge!
On a completely unrelated note:

Wouldn’t it be awesome if we could win over @Grigor as videographer, artist, model, voice actor, media spokesperson, social media guru and working bee for our project?
I have a hunch that Anil might be able to tame "him" and get "him" to say the sponsored line: "Mmh, it tastes so good! Well of course, it’s English chocolate!"

In the meantime, the rest of us should give Anil some space to work his magic.
We should get going and plan the other big part that will decide over the success or failure of the project:
the ending credits.
I think the credits should start with: "by Chandelier" followed by a chandelier to the right. You know like a picture of a chandelier.
And maybe some animals.
I mean on the top of the chandelier, some animals, sitting!
Hmm, but maybe it should be:
"With love by Chandelier" and then the chandelier, you know, the image, BELOW the chandelier, the text!

Hmm, it would have to be a really good picture of a chandelier, though!
After all, a bad picture has the power to kill the whole project! The critics would tear us apart – there can be no doubt!
I’m afraid, I will have to ask Anil for his AI subscription credentials again.
I know, I know, I ran through $10’000 within an hour last time but in the meantime, I grew as a person and the technological advances in this area are truly breathtaking, aren’t they?!
And how those prices are falling due to economies of scale… impossibile!
I‘m sure this time it‘ll take more than an hour until your credit card is depleted, Anil – pinky promise!

Ah, I‘m already getting tired… the clock says still 2 hours to go…
I feel like I should spend the rest of the work day increasing my own salary… after all, it’s already been two days since the last increase!

Now, don’t tell me that after reading that huge wall of text you clicked on the last spoiler!
I‘m speechless, I don’t know what to say!
Go practice and build up some mad skills like Anil so that I can hire you!
That would allow me to increase my salary more often!
You know, – *sad music playing* – I‘m getting poor… I can feel it, it’s getting to me!

Hurry up now!
 
There’s a new Austrian YouTube channel from Long Covid Online Klinik. They also have a website in English: https://www.longcovidklinik.at/en

Translated from the YouTube channel description:
The Long Covid Online Clinic is a specialized medical contact point for people with Long Covid, ME/CFS, MCAS, POTS, and other complex post‑infectious and multisystemic illnesses.
Under the medical direction of Dr. Corinna Geiger – specialist in internal medicine, gastroenterology, and hepatology – we combine evidence‑based medicine with a deep understanding of the reality faced by chronically ill patients.
On this channel, we share well‑founded information on diagnostics, pathophysiology, and therapeutic options – clearly presented, scientifically supported, and without false promises of cures.
Our content is aimed at affected individuals and their families as well as medical colleagues.
What guides us: Taking patients seriously instead of trivializing. Pacing instead of pushing. Science instead of miracle cures. Speisingerstr. 25/9, 1130 Vienna longcovidklinik.at
Click to expand...

They have published 4 videos so far:

Pacing bei ME/CFS – Praktische Strategien für den Alltag | Long Covid Online Klinik​


Pacing für Kinder mit ME/CFS – Was Eltern wissen müssen | Long Covid Online Klinik​


Was tun im Crash? Soforthilfe bei ME/CFS | Dr. Corinna Geiger und Dr. Alina Kleinecke​


ME/CFS und Schule – Wie Teilhabe gelingen kann | Long Covid Online Klinik​

Click to expand...
 
PageofME said:
www.srf.ch

ME/CFS-Schwerstbetroffene kämpfen um ihre IV-Rente

Untersuchungen auf Kosten der Gesundheit? ME/CFS-Patienten müssen oft ein für sie unzumutbares IV-Verfahren durchlaufen.
www.srf.ch www.srf.ch
Click to expand...
Sharing a translation of this article from the swiss-german state broadcaster because in my opinion it’s very good.
Chronic Illness ME/CFS
Severely Ill – and the Disability Insurance Process an Ordeal
Examinations at the cost of one’s health? ME/CFS patients often have to go through disability insurance procedures that become a burden to them.
Author: Svenja Rimle — Today, 06:48

A one-room flat, lit only by a single red light bulb. The windows are covered, the kitchen has gone unused for some time. This is where Luisa lives — though she herself describes it more as “existing and vegetating.” Luisa wishes to remain anonymous, so she goes by a different name here.
Once a day, at 8 in the morning, a home-care nurse visits — that is Luisa’s only social contact. She can only speak a little, and quietly. She is fed and ventilated artificially. On good days, she manages the trip to the toilet.
“This is not a life”
Luisa is one of around 80,000 patients in Switzerland who have the neuroimmunological condition ME/CFS. She used to work as a care professional supporting people with severe disabilities. Today she can no longer even care for herself.
ME/CFS – What exactly is it?
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, or ME for short, is a severe chronic illness. Characteristic of it is extreme exhaustion following minimal exertion. Further symptoms can include severe muscle pain, sleep disorders, and cognitive impairments. In serious cases, those affected are bedridden and permanently dependent on care.
After contracting an infection at work in 2019, she developed ME. Three years later the illness had progressed to a severe stage. Work was no longer possible, and overnight the 36-year-old became bedridden. “This is not a life. It is pitiful. How do I feel? No longer like a human being,” she says.
No assessment, no money
To determine whether she is entitled to a disability pension, Luisa must undergo several external medical assessments. Although her doctors have confirmed she cannot be transported, and although these examinations can irreversibly worsen her symptoms, the regional medical service responsible in the canton of St. Gallen deemed the whole thing reasonable.
Having the assessment carried out at Luisa’s home is not considered an alternative. In a written statement, IV St. Gallen explained that certain tests and examinations are not possible in a private setting — though in individual cases an assessment could be waived.
Between existence and health
Luisa must choose: does she accept a deterioration in her condition in exchange for financial support? Many ME patients in Switzerland face this question, says Jonas Sagelsdorff, director of the Swiss Society for ME & CFS.
It is not only the assessment itself — the entire disability insurance process can have consequences for those affected. “In 90 percent of cases, patients experience a worsening of their health in the course of the procedure,” says Sagelsdorff. For one in five, that deterioration is severe and irreversible.
For a long time it looked as though the disability insurance office would not waive the external assessment in Luisa’s case. With the help of a lawyer, she fought for an assessment that would be manageable without transport. She won in court, whereupon those responsible at the IV office in St. Gallen dropped the external assessment. She has been receiving her pension since this year.
A life in isolation
Not all ME patients win in court. Many lack the strength to fight back. Luisa is glad she managed it. “It was a great relief,” she says when asked how she felt when her disability pension was approved.
Even so, it is cold comfort. Because what Luisa actually wants is her old life back. If she were suddenly healthy again, she would, for the first time in years, put on proper clothes and shoes, leave the flat, and run — to all the places she misses so deeply in her current state.
Click to expand...
 
You must log in or register to reply here.
Back
Top Bottom