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#MillionsMissing today, 12 May - post news, tweets, etc. here

Discussion in 'General ME/CFS news' started by Sasha, May 12, 2018.

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Page 9 of 10
  1. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    [Edit: Yes, exactly, word-for-word right. You are amazing! Thank you so, so much... got my heart racing again just to read it!]
     
    JaimeS, May 14, 2018
    #161
    Invisible Woman, dangermouse, Daisybell and 12 others like this.
  2. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    3,309
    Now thats product placement :trophy@
    We need more of that.

    Perhaps in future years what we should be extra prepared for the CBT/GET backlash, start with and keep repeating PACE makes us worse (and we have proof) so when articles go for more false equivalence we have refuted it already, set the narrative as it were.
    Its also a rallying cry (not to say it was not already mentioned, but that BBC piece that ended with a PACEr is infuriating).
     
    Last edited: May 14, 2018
    Alvin, May 14, 2018
    #162
    Invisible Woman, dangermouse, Indigophoton and 6 others like this.
  3. Woolie

    Woolie Senior Member

    Messages:
    2,918
    Did any of the key BPS figures say anything at all on the day? I can't see anything by them.
     
    Woolie, May 14, 2018
    #163
    Invisible Woman, dangermouse, Indigophoton and 3 others like this.
  4. Bill

    Bill Senior Member (Voting Rights)

    Messages:
    509
    Location:
    Los Angeles
    Thank you @Allele for the transcription of the moving speech by @JaimeS .

    The realities are tough to read, but necessary.

    Bill
     
    Bill, May 14, 2018
    #164
    Invisible Woman, Binkie4, Indigophoton and 10 others like this.
  5. Woolie

    Woolie Senior Member

    Messages:
    2,918
    Woolie, May 14, 2018
    #165
    Joh, Invisible Woman, JaimeS and 3 others like this.
  6. Andy

    Andy Committee Member

    Messages:
    21,963
    Location:
    Hampshire, UK
    Andy, May 14, 2018
    #166
    Invisible Woman, JaimeS, Luther Blissett and 2 others like this.
  7. Trish

    Trish Moderator Staff Member

    Messages:
    52,340
    Location:
    UK
    Trish, May 14, 2018
    #167
    Joh, Invisible Woman, arewenearlythereyet and 10 others like this.
  8. Andy

    Andy Committee Member

    Messages:
    21,963
    Location:
    Hampshire, UK
    https://themighty.com/2018/05/advoc...algic-encephalomyelitis-awareness-day-may-12/
     
    Andy, May 14, 2018
    #168
    Joh, Invisible Woman, Yessica and 11 others like this.
  9. Andy

    Andy Committee Member

    Messages:
    21,963
    Location:
    Hampshire, UK
    Andy, May 14, 2018
    #169
    Joh, Invisible Woman, Hutan and 7 others like this.
  10. Sasha

    Sasha Senior Member (Voting Rights)

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    3,780
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    Sasha, May 14, 2018
    #170
    ahimsa, EzzieD, Joh and 11 others like this.
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,588
    Location:
    UK
    Sly Saint, May 14, 2018
    #171
    ahimsa, EzzieD, Invisible Woman and 7 others like this.
  12. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,588
    Location:
    UK
    Sly Saint, May 14, 2018
    #172
    EzzieD, Invisible Woman, dangermouse and 5 others like this.
  13. Woolie

    Woolie Senior Member

    Messages:
    2,918
    Woolie, May 14, 2018
    #173
    EzzieD, Invisible Woman, arewenearlythereyet and 10 others like this.
  14. Inara

    Inara Senior Member (Voting Rights)

    Messages:
    2,734
    :rofl:
    It's less than that - it's just being tired. You shouldn't exaggerate things, you know :D
     
    Inara, May 14, 2018
    #174
    EzzieD, Invisible Woman, arewenearlythereyet and 9 others like this.
  15. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
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    Location:
    Stanford, CA
    Hey, everyone, can I ask anyone who still has some energy to help out?

    #MEAction is collecting press coverage about #MillionsMissing. Especially the local stuff is important.

    It would involve finding link, author, news outlet, country, and putting that into a Google spreadsheet. I just did four and it took me 7 or 8 min.

    If you have some energy, please PM me here. It would mean a lot. The people who planned the protests are, as you can well imagine, in a deep hole and still digging.
     
    Last edited: May 14, 2018
    JaimeS, May 14, 2018
    #175
    Invisible Woman, Allele, dangermouse and 3 others like this.
  16. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,780
    Location:
    UK
    Just about to go for a big lie-down myself but what about starting a new thread with that request in order to draw maximum attention to it? Lots of people probably aren't keeping up with this thread now.
     
    Sasha, May 14, 2018
    #176
    dangermouse, Trish, Inara and 3 others like this.
  17. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
    1,248
    Location:
    Stanford, CA
    JaimeS, May 14, 2018
    #177
    dangermouse, Trish, Inara and 1 other person like this.
  18. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,279
    Location:
    Norway
    Local TV station in Stavanger, Norway with a short section about Saturday's demonstration.

    TV Vest: Norges største samling på ME-dagen (Norway's biggest event on the ME-day)
     
    Kalliope, May 14, 2018
    #178
    Invisible Woman, Inara, MSEsperanza and 7 others like this.
  19. dangermouse

    dangermouse Senior Member (Voting Rights)

    Messages:
    791
    @JaimeS what a powerful speech, we’ll done, and I’m so sorry to hear about your lovely sister :hug:
     
    dangermouse, May 14, 2018
    #179
    Invisible Woman, Missense, Inara and 7 others like this.
  20. JaimeS

    JaimeS Senior Member (Voting Rights)

    Messages:
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    Location:
    Stanford, CA
    JaimeS, May 15, 2018
    #180
    ahimsa, Anna, Invisible Woman and 23 others like this.
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