Millions Missing May 2018 - in Germany

This is the livestream (one hour) from Berlin:

There are also more videos from today on the page: https://www.facebook.com/mmissinggermany/

First photos: https://www.facebook.com/pg/mmissinggermany/photos/?tab=album&album_id=1867126206918792

We had a photographer and someone filmed and made interviews, so much more material will follow.

 

One short video in English (starts 2 minutes in):

 

The team of MillionsMissing Deutschland designed a poster campaign with pwME, this is the first motive. It says "I want my life back, Jens Spahn" (Jens Spahn is the Federal Minister of Health).

 

Some pictures from Berlin

A collective shout for research!


One of the five avatars that were carried around. This one was for Sonja.


Parasol and info booth


A dance with Cello to express living with ME


Press

 

Banner


Posters


Some of the audience




Shoes

 

Sebastian and Daniel from the German Association for ME/CFS


Talk from Daniel


Part of our team (we are 10 – 6 could be there, 4 are homebound)



More pictures from Berlin and also from the visibility actions in Gütersloh and Hannover can be found here:
https://www.facebook.com/pg/mmissinggermany/photos/?ref=page_internal

We also had two songs live performed and more talks – more pictures will be continuously uploaded on Facebook.

 

TV report:

 

This week we publish a poster every day (at 12:05 pm ) on MillionsMissing Deutschland:



ETA: time

 

Some more pictures from the protest in Berlin.

These little guys are so cute. One of the bedbound pwME who used them to take part, wrote: "It was awesome. I haven't had so much social interaction in years".


Buttons


Posters

Umbrellas


Supporters

 

If you're on Facebook or Twitter, we'd be very happy if you support the brave pwME who take part in our poster campaign with a like, share or comment. The posters are directed at the German federal minister of health and say "I want my live back, Jens Spahn": https://www.facebook.com/pg/mmissinggermany/photos/?tab=album&album_id=1867275806903832

Every picture is posted with information about the disease or citations from researchers or the story of the shown pwME and tags the maximum allowed number of politicians and institutions.

Examples:

 

For those not on Facebook, the pictures from #MillionsMissing in Berlin, Gütersloh, Hannover and some of the shoe-messages are now up on Smugmug (https://meaction.smugmug.com/MillionsMissing-2018/Europe)
and Flickr (https://www.flickr.com/photos/millionsmissingdeutschland/albums/), Google+ will follow.

The first videos are up on the MillionsMisisng Deutschland Youtube channel:
https://www.youtube.com/channel/UCEaUZZDxY72llnlHmpZ2dJg

 

We uploaded many more single videos from #MillionsMissing Berlin on Youtube:
https://www.youtube.com/channel/UCEaUZZDxY72llnlHmpZ2dJg/videos

There are also dance performances and songs if you're not keen on talks in German.
E.g. this song is from Unrest:

https://www.youtube.com/watch?v=MVyy8KeAiQk

We're also in the process of editing and cutting the material from the professional camera person who filmed, so many interesting videos and interviews still to come.

 

Some more pictures from Berlin were uploaded. As I was involved in the planning but couldn't be there in person I'm superexcited about every new picture and video (what explains the overkill of pictures in this thread ).

Very pleased how the info booth turned out to look (will be used for future actions). The umbrella has different demands printed on the sides. The demand you can see says "Science instead of ignorance".


We had made different info posters, that were directed at the German healthcare system, the German minister of health, the guideline tiredness committee, German doctors and one about PACE.





Group picture with umbrellas