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  1. Trish
    Thread

    The Draft Report by the Institute..[IQWiG] Does Not Provide Any Evidence That GET and CBT are Safe and Effective treatments for ME/CFS, 2023, Vink et

    The Draft Report by the Institute for Quality and Efficiency in Healthcare Does Not Provide Any Evidence That Graded Exercise Therapy and...
    Thread by: Trish, Jan 16, 2023, 8 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  2. Pustekuchen
    Thread

    Germany: 2022 Society for General and Family Medicine (DEGAM) Fatigue Guideline

    Copied post The German Society for General and Family Medicine (DEGAM) published its new guideline on "Fatigue". One chapter is about ME/CFS....
    Thread by: Pustekuchen, Jan 5, 2023, 14 replies, in forum: Other guidelines
  3. Hutan
    Thread

    Germany: IQWIG General Methods Handbook - submissions due on draft now 28 February 2023

    (Thread created at the request of a member) IQWIG The independent Institute for Quality and Efficiency in Health Care (Institut für Qualität und...
    Thread by: Hutan, Dec 14, 2022, 6 replies, in forum: Advocacy Action Alerts
  4. ME/CFS Skeptic
    Thread

    MedWatch: "We see a radicalization of the scientific debate"

    This interview with Professor of psychiatry Martin Walter also discusses ME/CFS and the IQWiG draft report in Germany. The title and quotes below...
    Thread by: ME/CFS Skeptic, Dec 13, 2022, 13 replies, in forum: General ME/CFS news
  5. lycaena
    Thread

    Risk factors for worsening of somatic symptom burden in a prospective cohort during the COVID-19 pandemic, 2022, Engelmann et al

    Risk factors for worsening of somatic symptom burden in a prospective cohort during the COVID-19 pandemic...
    Thread by: lycaena, Nov 20, 2022, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Andy
    Thread

    Post-COVID-19 condition in the German working population: A cross-sectional study of 200k registered stem cell donors 2022 Bernas et al

    Abstract Background : The SARS-CoV-2 pandemic has strained health systems worldwide, and infection numbers continue to rise. While previous data...
    Thread by: Andy, Nov 15, 2022, 1 replies, in forum: Long Covid research
  7. Sly Saint
    Thread

    Long COVID symptoms in exposed and infected children, adolescents and their parents one year after SARS-CoV-2 infection: 2022, Haddad et al

    Long COVID symptoms in exposed and infected children, adolescents and their parents one year after SARS-CoV-2 infection: A prospective...
    Thread by: Sly Saint, Sep 25, 2022, 3 replies, in forum: Long Covid research
  8. RedFox
    Thread

    Long Covid drug BC-007 research news

    Change.org petition to fund and expedite BC-007 research BC007 NOW- Chance of a cure for millions of suffering people From the English...
    Thread by: RedFox, Sep 7, 2022, 8 replies, in forum: Long Covid news
  9. LarsSG
    Thread

    Persistent capillary rarefication in long COVID syndrome, 2022, Rovas et al

    Abstract Background Recent studies have highlighted Coronavirus disease 2019 (COVID-19) as a multisystemic vascular disease. Up to 60% of the...
    Thread by: LarsSG, Aug 11, 2022, 5 replies, in forum: Long Covid research
  10. Ryan31337
    Thread

    Neutralization of AAB Targeting G-Protein Coupled Receptors Improves Capillary Impairment and fatigue ... after COVID-19 Infection, 2021, Hohberger

    Full title: Neutralization of Autoantibodies Targeting G-Protein Coupled Receptors Improves Capillary Impairment and Fatigue Symptoms after...
    Thread by: Ryan31337, Aug 19, 2021, 27 replies, in forum: ME/CFS research
  11. Dolphin
    Thread

    Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a ..., 2022, Töpfner et al

    Full title: Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a multidisciplinary...
    Thread by: Dolphin, May 31, 2022, 2 replies, in forum: Long Covid research
  12. ME/CFS Skeptic
    Thread

    Der Spiegel article 2022: "Man kann sein Leben verlieren, ohne zu sterben" (You can lose your life without dying)

    Big article on ME/CFS in the influential German magazine Der Spiegel. It tells the story of Milena Hermisson a young patient and advocate with...
    Thread by: ME/CFS Skeptic, May 22, 2022, 1 replies, in forum: General ME/CFS news
  13. Kalliope
    Thread

    Preprint: Prevalence, determinants, and impact on general health and working capacity of PASC 6-12 m after infection..., 2022, Peter, Kern et al

    Prevalence, determinants, and impact on general health and working capacity of post-acute sequelae of COVID-19 six to 12 month after infection: a...
    Thread by: Kalliope, Mar 15, 2022, 11 replies, in forum: Long Covid research
  14. Andy
    Thread

    Sustained Impairment in Cardiopulmonary Exercise Capacity Testing in Patients after COVID-19: A Single Center Experience, 2022, Evers et al

    Abstract Background. Following COVID-19, patients often present with ongoing symptoms comparable to chronic fatigue and subjective deterioration...
    Thread by: Andy, Mar 5, 2022, 8 replies, in forum: Long Covid research
  15. Andy
    Thread

    Post-corona fatigue-a familiar picture in a new guise?, 2022, Buchberger et al

    Abstract Background Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) has again come into focus as a result of coronavirus disease 2019...
    Thread by: Andy, Feb 24, 2022, 3 replies, in forum: ME/CFS research
  16. Sly Saint
    Thread

    Symptom-based Rehabilitation Compared to Usual Care in Post-COVID - a RCT (RELOAD) 2021/22 Germany

    Recruitment Status : Not yet recruiting Sponsor: Schön Klinik Berchtesgadener Land Collaborators: Bavarian State Office for Health and Food...
    Thread by: Sly Saint, Dec 30, 2021, 1 replies, in forum: Long Covid research
  17. Andy
    Thread

    Development and User Experiences of a Biopsychosocial Interprofessional Online Course on Persistent Somatic Symptoms, 2021, Rosmalen et al

    Background: Communication between healthcare providers and patients with persistent somatic symptoms (PSS) is frequently hampered by mutual...
    Thread by: Andy, Nov 26, 2021, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  18. Mij
    Thread

    Do meals affect heart rate and symptoms inpostural orthostatic tachycardia syndrome? 2021, Kate M Bourne et al

    In conclusion, meals do matter in the evaluation and treatment of POTS. There are significant postprandial symptoms in POTS patients, which are...
    Thread by: Mij, Nov 23, 2021, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  19. Fizzlou
    Thread

    Aphaeresis/ Apheresis (for removal of microclots)

    Thread split from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS *****************...
    Thread by: Fizzlou, Nov 3, 2021, 152 replies, in forum: Other treatments
  20. Andy
    Thread

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    [Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare...
    Thread by: Andy, Oct 14, 2021, 86 replies, in forum: Petitions
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