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  1. ME/CFS Skeptic
    Thread

    Der Spiegel article 2022: "Man kann sein Leben verlieren, ohne zu sterben" (You can lose your life without dying)

    Big article on ME/CFS in the influential German magazine Der Spiegel. It tells the story of Milena Hermisson a young patient and advocate with...
    Thread by: ME/CFS Skeptic, May 22, 2022 at 3:02 PM, 1 replies, in forum: General ME/CFS news
  2. Kalliope
    Thread

    Preprint: Prevalence, determinants, and impact on general health and working capacity of PASC 6-12 m after infection..., 2022, Peter, Kern et al

    Prevalence, determinants, and impact on general health and working capacity of post-acute sequelae of COVID-19 six to 12 month after infection: a...
    Thread by: Kalliope, Mar 15, 2022, 11 replies, in forum: Long Covid research
  3. Andy
    Thread

    Post-corona fatigue-a familiar picture in a new guise?, 2022, Buchberger et al

    Abstract Background Myalgic encephalitis or chronic fatigue syndrome (ME/CFS) has again come into focus as a result of coronavirus disease 2019...
    Thread by: Andy, Feb 24, 2022, 3 replies, in forum: ME/CFS research
  4. Sly Saint
    Thread

    Symptom-based Rehabilitation Compared to Usual Care in Post-COVID - a RCT (RELOAD) 2021/22 Germany

    Recruitment Status : Not yet recruiting Sponsor: Schön Klinik Berchtesgadener Land Collaborators: Bavarian State Office for Health and Food...
    Thread by: Sly Saint, Dec 30, 2021, 1 replies, in forum: Long Covid research
  5. Andy
    Thread

    Development and User Experiences of a Biopsychosocial Interprofessional Online Course on Persistent Somatic Symptoms, 2021, Rosmalen et al

    Background: Communication between healthcare providers and patients with persistent somatic symptoms (PSS) is frequently hampered by mutual...
    Thread by: Andy, Nov 26, 2021, 7 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  6. Mij
    Thread

    Do meals affect heart rate and symptoms inpostural orthostatic tachycardia syndrome? 2021, Kate M Bourne et al

    In conclusion, meals do matter in the evaluation and treatment of POTS. There are significant postprandial symptoms in POTS patients, which are...
    Thread by: Mij, Nov 23, 2021, 2 replies, in forum: 'Conditions related to ME/CFS' news and research
  7. Fizzlou
    Thread

    Aphaeresis/ Apheresis (for removal of microclots)

    Thread split from The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS *****************...
    Thread by: Fizzlou, Nov 3, 2021, 108 replies, in forum: Other treatments
  8. Andy
    Thread

    Petition 122600 to the German Bundestag: Healthcare, Scientific Research and Political Support for ME/CFS Sufferers!, 2021

    [Can be signed by anybody] Quote: Our Pleas to the German Bundestag We ask the German Bundestag to commit itself to the provision of healthcare...
    Thread by: Andy, Oct 14, 2021, 86 replies, in forum: Petitions
  9. Andy
    Thread

    The impact of Post-COVID-Syndrome on functioning – results from a community survey..., 2021, Lemhöfer et al

    Full title: The impact of Post-COVID-Syndrome on functioning – results from a community survey in patients after mild and moderate...
    Thread by: Andy, Oct 9, 2021, 3 replies, in forum: Long Covid research
  10. Hutan
    Thread

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS, 2015, Guenther, Scheibenbogen et al

    https://www.sciencedirect.com/science/article/abs/pii/S0198885915004656 S. Guenther, M. Loebel, A. Mooslechner, M. Knops, L. Hanitsch, P....
    Thread by: Hutan, Sep 15, 2021, 15 replies, in forum: ME/CFS research
  11. Andy
    Thread

    Clinical characteristics and sick leave associated with infectious mononucleosis in a real-world setting in Germany, 2021, Kap et al

    Abstract Infectious mononucleosis (IM), mainly caused by the Epstein-Barr virus, can result in prolonged symptoms. The objective of this study...
    Thread by: Andy, Aug 1, 2021, 0 replies, in forum: ME/CFS research
  12. Joh
    Thread

    New Documentary "Living with Chronic Fatigue Syndrome"

    The German/French TV channel ARTE premiered a documentary yesterday: "Living with Chronic Fatigue Syndrome". German and French can be chosen as...
    Thread by: Joh, Jul 11, 2021, 18 replies, in forum: General ME/CFS news
  13. Andy
    Thread

    Incidence of chronic Q fever and chronic fatigue syndrome: a six year follow-up of a large Q fever outbreak, 2021, Ankert et al

    Abstract Objectives Acute Q fever is a generally self-limiting infection caused by the intracellular gram-negative bacterium Coxiella (C.)...
    Thread by: Andy, Jul 10, 2021, 6 replies, in forum: ME/CFS research
  14. darrellpf
    Thread

    Article: Anti-autoantibody drug helps with long COVID, 2021

    Autoantibody helps with Long Covid The German article https://www.fau.de/2021/07/news/medikament-gegen-autoantikoerper-hilft-bei-long-covid/ The...
    Thread by: darrellpf, Jul 4, 2021, 16 replies, in forum: Long Covid news
  15. Sly Saint
    Thread

    Approaching Psychotherapy Case Studies in a Metasynthesis: Deficit vs. Conflict in Treatment of Medically Unexplained Symptoms, 2021, Krivzov

    Abstract Metasynthesis is currently considered one of the most promising directions for qualitative research, as it can contribute to the...
    Thread by: Sly Saint, Jul 2, 2021, 1 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Hutan
    Thread

    Germany: IQWIG Report to government on ME/CFS - feedback on Report Plan due 11 Aug 2021

    From the News from Germany thread: The IQWIG revealed their method of creating a report about the current situation of ME/CFS for the german...
    Thread by: Hutan, Jul 1, 2021, 35 replies, in forum: Other reviews with a public consultation process
  17. Sly Saint
    Thread

    Medical Care Situation of People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Germany, 2021, Scheibenbogen et al

    Abstract Background and Objective: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a severe illness with the hallmark symptom of...
    Thread by: Sly Saint, Jun 24, 2021, 0 replies, in forum: ME/CFS research news
  18. Kalliope
    Thread

    Nature - Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis?, 2021, Bornstein et al

    Nature - molecular psychiatry Chronic post-COVID-19 syndrome and chronic fatigue syndrome: Is there a role for extracorporeal apheresis? -...
    Thread by: Kalliope, Jun 19, 2021, 17 replies, in forum: ME/CFS research
  19. Andy
    Thread

    Cognitive impairment and altered cerebral glucose metabolism in the subacute stage of COVID-19, 2021, Hosp et al

    Abstract During the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) pandemic, neurological symptoms increasingly moved into the...
    Thread by: Andy, Jun 12, 2021, 1 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  20. strategist
    Thread

    Proposal by a German doctor: Dealing with the long term consequences of the corona pandemic

    This seems like a competent person that can communicate the issues well. ME/CFS and PEM are mentioned in the article....
    Thread by: strategist, Jun 5, 2021, 8 replies, in forum: General ME/CFS news
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