Michael Sharpe skewered by @JohntheJack on Twitter

They have always attacked charities, though. Usually, by claiming that being a member of a charity or patient group reduced your chance of recovery.

I am really glad to Sharpe being so open and honest. Now the attitude we have faced behind closed doors is out in the open for all to see.
 
bloody hell he's lost the plot has he been sacked or suspended or something where does he find the time to do all this tweeting
He probably thinks hes got nothing to lose now. He will either fall from grace or pull off a great escape as so much of the establishment need to keep propping up the BPS model, so he might as well lose it with everyone.
 
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I would say simply addressing the most troublesome symptoms with whatever meds are suitable and tolerated by the patient.

Giving patients realistic expectations and teaching them to pace themselves properly - as patients themselves advise.

Supporting them in their attempts to access whatever benefits and social care they may need.

I am not without sympathy Prof Sharpe. It must be very hard to discover that your patients would probably rate no great treatment at all as being better than the treatment provided by you. Not as hard as coping with the loss of my own successful career and then decades of dealing with harmful treatment, disbelief and derision though. Not to mention the unhelpful beliefs held by the NHS & DWP about my illness & promoted by you.

Edited -spelling
 
michael sharpe@profmsharpe
So here is a challenge for ME activism:
Can you articulate what treatment you want as opposed to what you don't want?

We don't want any bogus treatments you idiot so until there's one that works just leave us alone to get on with pacing because it works as a management tool, we know, we are the ones using our own bodies, and stop filling up public policy with bullshit bogus pseudo science that makes us worse, stigmatises us and takes away our benefits.
 
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Because people recruited for PACE knew they might have to do GET the cohort cannot be taken as representative because people who knew that exercise made them worse (or had heard so) would be likely not to have volunteered.
I can confirm that this has happened - I declined to be considered for taking part in PACE for this very reason. Twice.
So now the truth is out!
So the claims made that PACE showed no harms due to GET, are completely rubbished by that simple fact. The inevitable selection bias (is that the right name for it?) excluded a significant proportion of people likely to be harmed by it. Presumably there are ways to try and control for this; presumably PACE did not control for it.
 
They have always attacked charities, though. Usually, by claiming that being a member of a charity or patient group reduced your chance of recovery.

I am really glad to Sharpe being so open and honest. Now the attitude we have faced behind closed doors is out in the open for all to see.

They have attacked being members of self-help groups as they claim this will only reinforce symptoms. To be so openly hostile to a charity that has been helping patients for as long as I can remember is reprehensible.
 
I think there may be two different arguments that may get conflated.

The important one for me is this.

Because people recruited for PACE knew they might have to do GET the cohort cannot be taken as representative because people who knew that exercise made them worse (or had heard so) would be likely not to have volunteered. The risk/benefit analysis for GET would then be skewed to inappropriately positive. This means that the results cannot be extrapolated even to an Oxford defined population. Using Oxford would have been valid to a first approximation if applied to patients fitting Oxford if there was no recruitment bias of this sort but since it is more likely than not that there was bias then the problem with the recruitment is not the criteria used but the built in bias.

The more philosophical argument is that the BPS people appear to be setting up a trial that will not recruit people who fit the theoretical justification for CBT they claim to be basing their approach on. If the claim is that you need CBT with its mysterious 'cognitive strategies' to deal with a phobic fear of exercise then that's OK. But nobody actually thinks this is a phobia in that sense, I suspect. moreover, the rationale draws on stuff by Richard Edwards that says that when unfit people exercise they do actually feel awful. But the more one looks the more it is clear that none of this was really thought through.
Yes, this is something I have long argued: merely by taking patients from the clinics, they were skewing the sample. Those clinics were set up to provide CBT-GET. The sample ignored people like me who knew there is no treatment.
 
They have attacked being members of self-help groups as they claim this will only reinforce symptoms. To be so openly hostile to a charity that has been helping patients for as long as I can remember is reprehensible.

The attitude to charities, their members and by extension patients is reprehensible. I am glad to see it so openly expressed though. Sharpe says more about himself in that tweet than he realizes!
 
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