Inara
Senior Member (Voting Rights)
This sounds a bit like ME/CFS is a wastebucket diagnosis - something some doctors told me, and I disagreed. But here it is.This guideline scope uses the term 'ME/CFS' but this is one of a number of names that have been used to describe this illness. It is recognised that there are people who need care but who may not meet existing clinical or research criteria.
And there are clinical criteria for ME and CFS. There is no biomarker. There are markers that could underline a diagnosis.
Actually, this sentence is puzzling.
Argh. I cannot agree - others obviously too.ME/CFS is a disabling and distressing illness characterised by extreme and debilitating fatigue, particularly after exertion
I agree. This was my spontaneous thought, too.The word “distressing” diminishes the impact of the preceding word “disabling” and should go.
Although these can be symptoms, I don't feel this is a correct characterization. Can't they use ICC or CCC to characterize ME correctly? ME has a clear formulated set of symptoms (plus individual symptoms) - this sounds non-telling.Common symptoms include chronic pain, disordered sleep, digestive problems and cognitive difficulties.
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