This thread has been split in order to create an In Memory thread for Merryn. To leave tributes to Merryn please go to: https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/ This thread remains here to discuss media coverage Bed-bound and in unimaginable pain, watching my daughter waste away and die from ME was torture A mum has told of her ‘torture’ at watching her beautiful daughter waste away as she battled a disease some people refuse to believe exists. Merryn Crofts died on May 23 last year, 10 days after her 21st birthday. She weighed less than six stone and had spent the last three years of her life totally bed-bound, in almost unimaginable pain. Merryn had severe myalgic encephalomyelitis - or ME - a neurological illness which affects up to 17 million people worldwide, according to some estimates. But many think the condition is not real, even within the medical profession. Now, Merryn’s family have taken the brave decision to speak about her life and death in a bid to raise awareness of the crippling disease.