Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved (The Sick Times)

ahimsa

ahimsa

Senior Member (Voting Rights)
Article from The Sick Times reporting on different advocacy strategies used by patient groups around the world.

Long COVID advocacy is more than lobbying Congress: Here are some ways to get involved
Subtitle: People with infection associated chronic conditions (IACCs) use a broad range of strategies to fight for awareness and better care.
The Sick Times said:
Key points you should know:

* While national-level lobbying often gets more attention than other forms of patient advocacy, advocates and activists with energy-limiting chronic illnesses use a range of strategies to pursue better systems and care.

* State- and local-level advocacy, improving provider education, and mutual aid are among these strategies.

* Direct action, which includes confrontational tactics like civil disobedience, has been used by some groups, but is an inherently more challenging strategy for people with energy-limiting chronic illnesses.
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The Sick Times said:
Across the U.S. and around the world, politicians have falsely declared the pandemic “over,” and they continue to ignore Long COVID despite its impact on society.

There are still zero approved cures for it, myalgic encephalomyelitis (ME), or other related chronic diseases; patient-led advocacy and activism are as important as ever.

Advocates emphasize that a broad range of strategies — going beyond efforts aimed at national governments — is needed to secure better care and outcomes for patients.
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