Living with an unsociable illness - blog April 2019

[Sly Saint]

Living with an unsociable illness

As I’m writing this post, I’m sat in bed, having to take time out to rest, whilst we have a family member staying with us for the weekend. Enjoying listening from afar to the lively chatter, yet not a part of it. Would I not rather be downstairs, chatting and laughing with everyone?

Of course I would. However, living with ME/CFS, means that I’m also living with an unsociable illness. Not through choice of course, but due to the nature of the illness and it’s debilitating symptoms.

It can be really hard to explain this to people. The physical impacts of living with ME/CFS can often be easier to get your head around. Whereas the cognitive issues are not so easy to understand, and of course not easy to deal with.

Debilitating brain fog, struggling to follow a conversation, noise sensitivity, the exhaustion that comes from merely speaking to someone, are frustrating to say the least. Who knew (until living with ME of course!) these things could use up so much energy! As well as causing pain, a flare up of symptoms, sometimes embarrassment, and for many loneliness. As we are forced to withdraw from social situations.

full blog here
http://notjusttired.com/2019/04/18/living-with-an-unsociable-illness/

 

[TiredSam]

http://notjusttired.com

I misread that as

"notjustified.com" and thought it was quite a good name for an ME blog.

That's two odd misreadings today so far.

 

[chrisb]

I was reading about neurasthenia yesterday. Apparently the army had a post of "Inspector of temporary non-effectives". I thought that just about sums us up. Unless, of course, it's permanent.

 

[Wonko]

That seems very <insert word here when I think of it> of the army.

Given, at a fundamental level, the job of a soldier is to use up the enemies bullets, thus ensuring victory, if your munitions factories and effective logistics are better than theirs.

Given that, the amount of get up and go, otherwise known as enthusiasm, or simple ability to move, of a soldier is of limited effect in the outcome of any particular battle.

In short it doesn't matter, to the bullet, if a soldier is feeling well, this doesn't prevent it doing its job of wounding or killing.

Therefore it is of no interest to the Army.

Such a post/department is a complete waste of resources that could be used to make bullets, or dig holes.

No, I'm not bucking for Sir Simons job lol