Lightning Process study in Norway - Given Ethics Approval February 2022

benji said:
The last article in Dagbladet trashing ME sufferers by demonizing our “fear” of Lightning Process, has not been tweeted by the usual suspects, or been given any attention on social media as I have seen.
I wonder why.
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Anyone know what happened to the other articles on Facebook? There was a mention of one of the articles having generated so many nasty comments against us the post was deleted. Did the other articles get posted too?

Fear of the LP. Yes, totally, dudes. :rolleyes: What a bunch of blowhards.
 
dave30th said:
I will mention this perhaps in my note asking for a correction of the correction.

In this case, does the article indicate that this information has been added, or does it just add the new information without comment?
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As for now, there's no indication that the article has had any updates since it first got published 16th of May.

Screenshot 2020-06-05 at 20.50.27.png
 
I can remember doing reverse therapy in 2003 and I told the therapist I was on the waiting list for cbt

He told me I can't do both

So I cancelled the cbt then reverse therapy swapped my therapist and she told me to see my doctor as she thinks I have a mental illness and put me on a course of cbt but I went right back to the starybof the queue

That's the mentality of these people
 
Even worse was the time I did mickel therapy and I got angry

Not at the therapist but in my journal

Only because they told me to get emotional and I had to write about it

She told me she'd have to 'speak to David' about it

Two months later they got back to me after me almost begging for a reply and the advice was to do anger management instead of mickel therapy

Even my doctor seemed confused but he got me on a course which took a long time for me to get on and the person doing th course didn't understand why I was there and nether did


Really bizarre stuff with them
 
If they were serious about getting it onto the NHS and I don't believe they are they'd have kept it as it was

For example when I first started doing reverse therapy it was two doctors in a nice building in the middle of a city, it seemed quite professional, but within a few years I was still doing the therapy but it was in some woman's house and I think she'd done a ten day training course and she seemed more confused than me.

I wonder if they'd kept it as just two doctors would it have fot taken more seriosult
 


I just sent this letter to the Dagbladet editor who had written to me:

Dear Hilde--

I see that the Dagladet article's reference to me now includes my academic affiliation. Unfortunately, the name of my university is misspelled. It is not "Berkely" but "Berkeley."

I wondered if perhaps the university was not well-known in Norway, but then I noticed that the Crown Prince received his BA degree there in 1999.

I would appreciate it if this spelling error could be corrected.

Thanks!--David
 
Kalliope said:


I just sent this letter to the Dagbladet editor who had written to me:

Dear Hilde--

I see that the Dagladet article's reference to me now includes my academic affiliation. Unfortunately, the name of my university is misspelled. It is not "Berkely" but "Berkeley."

I wondered if perhaps the university was not well-known in Norway, but then I noticed that the Crown Prince received his BA degree there in 1999.

I would appreciate it if this spelling error could be corrected.

Thanks!--David
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They've now got Berkeley right once in the sentence:

Tuller er ifølge California University, Berkeleys, nettsider en «senior fellow» innenfor fagområdene folkehelse og journalistikk ved UC Berkely´s Center for Global Public Health.
 
I received this short email from Madeleine Hatlo:

Dear Joan,

Thank you for your debate article. We have a lot of contributions sent to us these days, and unfortunately we don’t have space for this one in our paper.

Best regards,

Madeleine Hatlo
Debattansvarlig, Dagbladet

==

So, they are not taking forward a debate related to my letter.

I sent the following back. It'll be for information only. They clearly don't want to engage in debate. Nope. Sad.

Dear Madeleine,

That is disappointing. I hope you reconsider.

People with ME are often misunderstood, vulnerable and due to absence of good quality medical care will end up spending a lot of money on things like the Lightening Process. That is shocking in 2020.

As a neurological disease, often a highly debilitating and severe one, there needs to be clarity so that patients are not misled. Publications such as Dagbladet play an important role in the dissemination of information and sharing debate.

Some further information for you to think on:

Prof Malcolm Hooper’s Magical Medicine – How to make a Disease Disappear may well help you too:
http://www.investinme.org/Documents/Library/magical-medicine.pdf
Whilst this document is now perhaps a bit dated it does provide a comprehensive round up of the medical evidence for ME and shenanigans that have gone on to minimise this information and to largely view ME as psychological/psycho-social problem.

In 2015, the Institute of Medicine (IOM), now the National Academy of Medicine (NAM), published a report on ME/CFS called “Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness.” The IOM committee summarized the evidence base and proposed redefining the diagnostic criteria to facilitate timely diagnosis and to improve understanding of the illness among healthcare professionals and the public:
https://www.cdc.gov/me-cfs/healthcare-providers/diagnosis/iom-2015-diagnostic-criteria.html
Full report can be found here:
https://www.nap.edu/resource/19012/MECFScliniciansguide.pdf

Prof Brian Hughes’s article may help you to understand more:
https://thesciencebit.net/2019/03/2...k-twice-before-accusing-them-of-trolling-you/

I’ve also attached two documents detailing the disease ME (Canadian and International criteria) which are well used within medicine and research to understand the condition well.

I hope that Dagbladet you will reconsider and engage in a debate about ME, the psychologization of their condition and the abuse and neglect that this can cause. It has gone on for decades and has caused enormous distress to patients and their families.

Regards,
Joan Crawford
Chartered Counselling Psychologist

==
Perhaps David will have more luck :-)
 
Joan Crawford said:
I sent the following back. It'll be for information only. They clearly don't want to engage in debate. Nope. Sad.
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Thank you so much, @Joan Crawford ! You've provided important information and also shown Dagbladet that there are health professionals standing together with ME patients. The reality may not be quite as Dagbladet portrayed it in their recent articles after all.
 
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