JemPD
Senior Member (Voting Rights)
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oh hallelujah. I've been thinking for years that how can any of it be of any proper use until we are really clear on what it is we're studying, especially re PEM. I think this is the only way to untangle from the quagmire of fatigue, chronic fatigue, ICF etc. So many of the researchers, even non BPS ones dont seem to fully understand the true clinical picture.
A Members Only thread also has relevant content.
My current thought is that we need to walk before we try to run and that means developing objective methods for documenting ME symptom patterns and PEM in particular. That ought to be possible with the use of actometers with the read out analysed with the sort of software that has been used for Parkinson's disease movement abnormalities. The key to testing a model of a clinical presentation is to have a very clear account of the clinical phenomenon one is trying to model. Only then can you see if the model's predictions really fit.
oh hallelujah. I've been thinking for years that how can any of it be of any proper use until we are really clear on what it is we're studying, especially re PEM. I think this is the only way to untangle from the quagmire of fatigue, chronic fatigue, ICF etc. So many of the researchers, even non BPS ones dont seem to fully understand the true clinical picture.
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