Given that everything before Long Covid here is a lie, this would actually be hilarious if it were satirical comedy. But very unbelievable. Reality is so much dumber than fiction.restoring trust in public health institutions, encouraging innovation to lower health care costs, and improving research on Long Covid
A key source of U.S. Long COVID data is now offline following a purge of information related to sexual orientation and gender identity ordered by President Donald Trump’s administration. The Household Pulse Survey, a data collection effort by the U.S. Census and Centers for Disease Control and Prevention (CDC), is among many CDC datasets and pages that became unavailable on Friday.
Trump’s administration has ordered federal government staff to remove any references to “gender ideology” on public websites, NBC News reported, with a deadline of Friday afternoon. CDC staff were specifically threatened that the entire agency’s website would come down if the order was not followed by 5 PM Eastern time, according to the newsletter Garbage Day.
The Household Pulse Survey specifically reported Long COVID prevalence by sexual orientation and gender identity. It was one of the only federal sources tracking Long COVID, and reported data more frequently than other surveys.
It’s really hard to tell. Many research datasets are only a couple mb.I think I was hoping I'd misread that and you wrote 98.5%. How much is 98.5 gig? Not that much, in the grand scheme of things?
I came to post about how to respond as a community to the disappearing info problem. I think this is something that needs its own thread: a planning and action thread for archiving and sharing data and articles that are important to us. See my reply later in this thread. This is a way we can really function as community for one another--preserving and sharing information before it gets disappeared.The Sick Times: Breaking: Vital Long COVID data taken down following Trump order
The data from the Household Pulse Survey has been uploaded to the Internet Archive.
https://bsky.app/profile/darbysaxbe.bsky.social/post/3lhcvzba7t22o
Buckle up:
https://bsky.app/profile/darbysaxbe.bsky.social/post/3lhcvn4hxwk2o
BREAKING. From a program officer at the National Science Foundation, a list of keywords that can cause a grant to be pulled. I will be sharing screenshots of these keywords along with a decision tree. Please share widely. This is a crisis for academic freedom & science
View attachment 25183View attachment 25184View attachment 25183 View attachment 25184 View attachment 25185View attachment 25186
https://bsky.app/profile/darbysaxbe.bsky.social/post/3lhcvzba7t22o
Decision tree that has been sent to Program Officers at NSFView attachment 25187