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Open Epigenetics of Post-exertional Malaise in Patients With ME/CFS: Oct 2020 [This trial is not yet open for recruitment]

Discussion in 'Recruitment into current ME/CFS research studies' started by Sly Saint, May 9, 2020.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Location:
    UK
    Sponsor Vrije Universiteit Brussel
    Overall contact Andrea Polli, MSc
    full details here:
    https://www.smartpatients.com/trials/NCT04378634
     
  2. Andy

    Andy Committee Member & Outreach

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    So Fukuda :(
     
    alktipping, Grigor, Mij and 2 others like this.
  3. cassava7

    cassava7 Senior Member (Voting Rights)

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    I've sent a mail to the contact person to ask them to include CCC ontop of Fukuda.
     
  4. Sarah94

    Sarah94 Senior Member (Voting Rights)

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    So Fukdupa ;)
     
  5. cassava7

    cassava7 Senior Member (Voting Rights)

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    I resent the mail from another mail address because I'm not sure the first one went through (spam filter?). Here's Andrea Polli's response.
    My response:
     
    Kitty, Sly Saint, sebaaa and 4 others like this.
  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    I think you make a very good point. The US has specifically said PEM should be mandatory in its IOM report, so the likely outcome is that any study with optional PEM could be downgraded.
     
    Kitty, Sly Saint, rvallee and 7 others like this.

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