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Dr Myhill’s complaint to GMC about PACE authors.

Discussion in 'General ME/CFS News' started by Robert 1973, Jan 15, 2018.

  1. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    @MeSci on the list adopted means someone has taken on the responsibility of lobbying that MP, the ones in red/bold are those who have signed up as supporters
     
    MEMarge, andypants, Joh and 3 others like this.
  2. MeSci

    MeSci Senior Member (Voting Rights)

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    Oh right. What do you mean by 'someone'?
     
  3. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    I mean a person with ME, or supporter of person with ME who has contacted Craig Robinson/Dr Myhill's team to say they will attempt to meet up with and persuade an MP to sign up.
     
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  4. Skycloud

    Skycloud Senior Member (Voting Rights)

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    I see my MP has signed! (That's not due to me as I haven't contacted her about this)
     
  5. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Mainly because the whole thread appears to implicate Wessely (so he can be added to the complaint) and because it's showing up the multiple flaws in their study. Godwin is highly respected, so his comments are very quotable. I would love it, in fact, if he were asked to give a testimony and did so.
     
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  6. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    I can see that he's highly respected generally but as a non medic would his comments cut any ice with the British Medical Establishment
     
  7. LightHurtsME

    LightHurtsME Senior Member (Voting Rights)

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    Just catching up on this thread. I have no words about how incredibly sad this is. Besides the GP's attitude, what strikes me about this is that how isolated people with ME and their carers can become and how separated and invisible in a community. The fact that if the GP didn't co-operate, there wasn't anyone else they could call on to help - at least to a minimum standard to ensure survival.
     
  8. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    posted today on twitter by Craig Robinson
     
  9. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    @NelliePledge - help -i am brainfogged to the extreme having crossed the Atlantic both ways in the last 2 weeks.
    Could you say a bit more about the difference between adopters and supporters ( signed in red)?
    I think I understand supporters but MPs as adopters? I hope to see my MP tomorrow- need to be a bit clearer about what I am asking him.
     
    adambeyoncelowe, MeSci and andypants like this.
  10. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think it would. Doctors spend most of their time with their heads down trying to have a quiet life grinding away at what they are supposed to do. If Simon Wessely says CBT and Get are good that will do. They assume that nobody outside medicine is interested. But if some smart literate lawyer starts saying the PACE trial is a joke they are very likely to say 'Oh, er, really, what, gosh, hang on, have I read the paper? er no, maybe I should, gosh doesn't a bit of gossip brighten up the day sometimes?' If enough doctors go through that process there may come a time when, God forbid, they start saying 'er, actually, has Emperor Wessely got any clothes on today?' 'We are used to seeing his bad patch but, er, there seems to be a bit more pink than that now that I think of it.'

    When a ship sinks, however slowly, people eventually have to get in the lifeboats and they don't go back. If they see a clever lawyer fellow nipping into a lifeboat they take note.
     
  11. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    the MPs in red are the ones who have been spoken to by constituents and have signed up to supporting Dr Ms call for an Inquiry
    the MPs listed in black have not yet signed up to Dr Ms proposed Inquiry but a person with ME has adopted the MP and is taking the responsibility for persuading them to sign up
    If an MP is not listed at all then Dr Ms team are still looking for a person with ME to adopt them

    is that any better
     
  12. Binkie4

    Binkie4 Senior Member (Voting Rights)

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  13. alex3619

    alex3619 Senior Member (Voting Rights)

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    If that became a common response it might change everything. Some of the flaws are obscure, but some are very blatant and easy to spot. First, however, you have to actually read the papers.
     
  14. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    https://www.bbc.co.uk/news/uk-politics-44542622

    it appears Norman Lamb has had a critical role on the NHS scandal in the news today - when he was health minister he decided an investigation was needed - so a good person to have involved on ME. would be good if he is able to make an intervention in tomorrows debate
     
  15. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    hope you got on ok @Binkie4
     
  16. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Yes. He has another commitment but hopes to be there for part of Carol's debate. We focussed our discussion on that hopefully to some effect.

    I have an appointment at the Brompton tomorrow, leaving home about 2.30pm.

    Will this debate be recorded? I will listen to the first hour then leave, hopefully pick up the rest later.
     
  17. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    its going to be livestreamed and I assume there will also be a recording, there should be a written transcript of proceedings the next day

    ETA sorry pressed go before saying well done for the face to face briefing :thumbup:
     
  18. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    petition is now 8987 very nearly 9000
     
  19. Inara

    Inara Senior Member (Voting Rights)

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    I received a reply from GMC - Probably the others who sent a letter did, too? They told me the complaint will not be taken further.

    Here are some excerpts:

    It seems they don't want to acknowledge that, here, it is not about research but about doctors who offer and propagate damaging treatment for people with ME.
    (Of course they can't do much in my case since I wrote from Germany.)
     
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  20. alex3619

    alex3619 Senior Member (Voting Rights)

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    What happened to the deliberate use of invalid statistical analysis, with knowledge that it was biased? (Rhetorical question)

    How about statements from patients in the PACE trial that harms were not recorded? This is one case that is hard to document though, with no proof in the public arena that these were genuinely in the trial. However there is ample evidence from people outside the trial that GET harms patients, but this is rarely officially recorded. The reporting system is grossly inadequate, everywhere.

    Does this mean the current GMC is not fit for purpose?
     
    Last edited: Aug 4, 2018
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