Dr Myhill’s complaint to GMC about PACE authors.

My aunt is currently under Myhill.
She has been abandoned by her GP ( reading between the lines it looks like a psychosomatic belief) and there are zilch specialist services here and very few consultants wanting to take responsibility for anyone with ME.

My aunt had severe palpitations - 2 rides in ambulances, monitored and discharged when ecg was normal. No follow ups. This was when she was slipping into severe, before she was completely bedbound.

Myhill has provided a similar service to that described by @Ariel.

She had sleep meds which helped.

She has also improved thyroid function which has increased base temperature
My aunt had a partial thyroidectomy in her early 30s and there is a family history of thyroid problems .
Magnesium has reduced heart palpitations.

My aunts diet was very good anyway , and she had always practised breathing exercises for relaxation . So no room for woo there.

My aunt keeps an open mind and has a decent bullshitometer.

The sad thing is that these simple things should be within the wit of our health system. The fact that basic work ups seem to be unobtainable leaves people with the choice to seek help elsewhere ( and hope the bullshitometer is good) or have no help at all.

My aunt has OI issues like many . There are no POTS specialists at all in Scotland according to POTS UK. No cardiologist with an interest even if she could actually go anywhere. And a GP who was clueless .

So many symptoms can be alleviated to some degree and life improved IF you can access the referrals

My aunt can't and Myhill has helped with symptom relief with genuine empathy.
She dosnt entertain the woo.

 

I am pleased to hear of both positive experiences and accept people's concerns about Sarah. she has never been prepared to capitulate to the NHS orthodoxy or the flavour of the month. She is too much her own person to be dictated to and prepared to make herself a bit unpopular with fellow professionals.

Sarah is a bit of a fearless warrior.....and has always stuck to her firm belief in environmental and nutritional approaches.

 

Source: The Conservative Woman
Date: May 21, 2021
Author: Sally Beck
URL:
https://www.conservativewoman.co.uk/hounded-by-medical-tyrants-a-doctor-who-believes-in-vitamins/

 

I'm a bit baffled by this...

According to Dr Myhill's own website she is "Deregistered from the General Medical Council"

And yet her entry on the GMC register suggests her registration is still current.

https://www.gmc-uk.org/doctors?text=sarah myhill

Edit : Oops - I see my confusion has been explained by @Dolphin 's post just before mine.

 

How embarrassing for all of us.

I appreciate that she is probably motivated by "good intentions", but whether she did it intentionally or not, she has effectively leveraged the neglect and suffering of PwMEs as a platform to promote her ideas. Which makes me mad as hell.

Actually, no, "good intentions" doesn't make it any better. The good intentions are part of the problem. Give me good old fashioned self interest any day. At least you know where you are.

 

As stated above, I am a (former) long-time patient of Myhill's. If anyone involved with her is reading this, they might want to consider whether trying to claim that people should take vitamin supplements instead of covid vaccines helps the ME/CFS patients so desperately in need of recognition from the medical establishment and general public.

Unfortunately - and due to having had a phone consultation with Dr M in which we discussed long covid (I also have it) - I believe she genuinely holds some very unhelpful beliefs re: covid. I do not really want to put details on a public forum, but it was all very off base in the vein of the article above.

It's upsetting as she had previously helped me a lot >10 years ago, and it's alarming to hear her like this. I decided to stop the consultations.

I was taking many of the supplements she recommends when I got covid last March by the way!

If these are really your opinions, keep them to yourselves for the sake of the patients. This is harming us.