Can you add whether you are still having the same long covid symptoms as at the start and whether they were affected by your vaccinations?
I'll list a little more fully.
Initially Nov/Dec 2020 was a period of reducing energy. I had not recognised this at the time, but in hindsight I was limiting my social engagements and generally not on top form. Eg a lacklustre small supporting role in an end-of-year skit that would usually have been no trouble, and in previous years was often a larger performance.
Jan 2021, sudden recognition of symptoms of tachycardia and mild breathlessness at rest, with HR dramatically increasing on standing and furthermore with a few steps. Assumed "a virus" and waited it out. No resolution by day 5, saw GP and hospitalised with concern for some type of acute cardiac issue or PE. "All tests normal" and specifically no evidence of current viral infection. However, in hindsight my SvO2 was extremely low (22%). Discharged. Started developing episodes of "collapse" (eg after a carb-heavy meal), with ongoing fatigue. Unusual sensations of "zinginess" in my forearm muscles and an odd sensation at the back of my head that was best described as feeling as if brain was continuing to rotate after I'd finished turning my head.
Was cycling through weeks of feeling completely normal vs weeks of above symptoms (2-3 week periodicity).
Saw cardiologist and endocrinologist. Cardiologist excellent - diagnosed POTS, ruled out structural and rhythm pathologies. Endocrinologist looked at my normal blood workup, "listened" to my story, gave very poor advice and told me I was being hypervigilant etc, and that I should definitely continue going to the gym, riding my bike, living a normal life etc. Did so.
Early April 2021 had vaccine #1 (Pfizer). No issues as I recall. End of April 2021 had vaccine #2. Spent the following day "trashed", in bed or in front of the fire (what we consider a crash). By the next day had recovered completely. All seemed reasonably well for the next 2-3 weeks, but reduced biking to work. I hadn't recognised that I was simply recovering during evenings and weekends - eg no longer interested in sailing the boat. Between weeks 4-6 things worsened. Developed headaches, excruciating noise hypersensitivity that saw me curled up in a fetal position. At the end of week 6 I did my last interventional case, walked out of the OR and back to a temporary rental apartment close to the hospital and then crashed into severe.
It took me about three months to "recover" enough to sit, stand and then modestly walk and I joined S4ME early on in that initial excruciating period. I'm now at the mild end of moderate, mostly housebound with limited modest excursions, but able to work from home on a permanent half-time basis.
