'Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much' PLOS Blog post by Hilda Bastian

[Mithriel]

They did not bring out the story that the patients had not given permission until very near the end, I think the last appeal before the data release. Before that they made a big song and dance about no patients coming forward for trials, so no research, so no money for universities, so no foreign students, so collapse of the UK university system.

I have a mental picture of their expensive lawyers frantically going through documents and shouting "eureka" when they realised that permissions could be said to be inadequate like an episode of Midsommer Murders.

 

[MSEsperanza]

If 'consumer' is the term used within Cochrane, then I'm glad she stuck with it - because this in many ways are mostly aimed at people within Cochrane, isn't it? They will likely all read it? The old review group, the new review group, Larun et al, Tovey - and clearly some of the mentioned researchers

If they haven't understood yet, they could read it again -- and raise concerns or aks questions in an open-minded manner.