Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

+ healthy controls
+ healthy and sedentary controls (couch potatoes)
+ depressed
+ psychotics/schizophrenics
+ addiction patients a (alcohol, drugs, games)
+ rheuma/arterio / pain patients
+ heart disease
+ cancer patients
+ others ... perhaps the rest of the hospital, staff and patients
 
dave30th said:
unrealistic fear of activity
Click to expand...
When I was doing the Nina Muirhead transcript I also thought about Trudie Chalders lecture and her bit about the 'fear avoidance' model of CFS.
Thinking back to my own situation, I remember being terrified, not of exercise or activity (at the time I had no idea it could be harmful and pushed myself to keep going), but of becoming bedbound/ending up in a wheelchair (as described in a book on ME that someone gave me).
As I lived on my own I had no one to look after me so I couldn't stay in bed, but I did spend a lot of time on the sofa.

I often wonder if I had been able to have a period of complete rest and be cared for, if things might have gone differently.

But I did not 'avoid' doing anything because I was fearful it would make symptoms worse; I was just physically incapable of doing it at the time
 
I found my symptoms to be so bewildering and unexplainable that I hid them as much as possible. As a teenager I knew I would have to deal with my mother's response as well, not to mention a long walk to see our GP so it was easier got a reputation as liking to read in my room. Even years later my best friend had no idea as I was at my worst later in the evening.

So my fear was anyone finding out. This hiding away is the exact opposite of the hysteria for effect I was accused of when I finally saw a neurologist.
 
You kind of have to marvel at the twisted illogic in rejecting something that has been observed in millions on the grounds that you cannot see it in action and promote instead something that has not been observed in anyone and not only cannot be seen in action either but is guaranteed to never be observed.

The psychosocial model has all the same flaws as what they reject, and then some, 100x over. Like rejecting a spaghetti plate because you don't like pasta then gushing over how amazingly good dry macaroni is. The logic is so bent out of shape you could likely diagnosis it with hypermobility.
 
"Fear avoidance was assessed with six items including ‘Doing less helps symptoms’ and ‘I should avoid exercise when I have symptoms’. Therefore, the items on this scale do not simply reflect post-exertional malaise."

What does she think post exertional malaise is?

With rheumatoid arthritis you are told not to exercise when you have symptoms but to keep active when they abate. When my son was a child he was not active when his symptoms flared, we did not set out on a long walk when he was struggling to breath, we let him rest.

Sorry, these people are idiots who lack common sense not to mention compassion
 
Sly Saint said:
https://sci-hub.tw/10.1177/1359104519853860
Click to expand...
This response, as usual, is complete garbage. It describes what they want to be true, not actual things that can be measured or valid concepts. Their entire model basically has its own jargon that doesn't translate outside of it. There's no such thing as a way to measure "unhelpful beliefs" or even what is meant by that. As a term it's as scientifically valid as karma, spiritual life force and orgone.

The same with "all-or-nothing behavior", it's a completely made-up concept in this context and the response cites 2 papers that invalidated that while citing one of Moss-Morris' own paper that maybe it does, more research is needed (ain't it always?) but assumed to be valid.

TL;DR: we want this to be true and therefore argue that it may be true and eventually we will make up the evidence for it.
 
You must log in or register to reply here.
Back
Top Bottom