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Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

Discussion in 'General ME/CFS news' started by Trish, Jun 18, 2019.

  1. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    833
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    Oxford UK
    Yes, the Alliance is going, running the PSPs, and is now under the NiHR organisation rather than under the James Lind Initiative. It's the Initiative which is no longer going. And the James Lind Library which was also part of the Initiative, is still going with Iain at the helm still. It's very confusing!
     
    Michelle, Hutan, Sly Saint and 5 others like this.
  2. Trish

    Trish Moderator Staff Member

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    Thanks, so I was wrong, sorry. I hadn't realised the Alliance and the Initiative were different.
     
    Caroline Struthers and MEMarge like this.
  3. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    Very well said, both Jo and rvallee.

    Edit: Another comment has now been published. :whistle:
     
    Last edited: Aug 18, 2020
  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    13,508
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    Or the blog author cannot face opening up the comments box to do the approval!
     
    FMMM1, MSEsperanza, Missense and 6 others like this.
  5. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    I have had a rapid response to an editorial about the Cumberledge review in the BMJ posted https://www.bmj.com/content/370/bmj.m3099/rr-2. Any resemblance of my hypothetical scenarios to actual events may not be entirely coincidental. ;-) The only way to get things through the BMJ editors is not to mention Cochrane or PACE explicitly.
     
  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    excellent :thumbup::thumbup:
     
    alktipping, Frankie, Hutan and 6 others like this.
  7. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Legend, Mij, alktipping and 37 others like this.
  8. Trish

    Trish Moderator Staff Member

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    Really excellent and very worthwhile @Michiel Tack. Thank you for all the work you have done on this.
     
    Legend, alktipping, MEMarge and 17 others like this.
  9. rvallee

    rvallee Senior Member (Voting Rights)

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    12,462
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    Devastating. Excellent.

    BS reply from Cochrane, as usual. Did not even bother addressing anything. Patient safety is clearly not a concern for Cochrane. Not that it's not a priority, high on the list of concerns, it is simply not a concern at all.

    I will post it elsewhere but think this is relevant to the topic: Exercise and COVID-19 can be a dangerous combination, new evidence shows. This article suggests that exercise should be avoided for 2 weeks but offers no clear reason why so short, and actually advises graded exercise afterward, no doubt in part informed by current practices such as offered in the Cochrane reviews, including this one.
     
    Legend, alktipping, EzzieD and 7 others like this.
  10. NelliePledge

    NelliePledge Moderator Staff Member

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    Brilliant work @Michiel Tack you totally shredded their shoddy workmanship.
     
    Legend, alktipping, EzzieD and 12 others like this.
  11. Sean

    Sean Moderator Staff Member

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    Legend, alktipping, Kalliope and 6 others like this.
  12. Ravn

    Ravn Senior Member (Voting Rights)

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    Impressive work @Michiel Tack :emoji_thumbsup:
    Decidedly unimpressive response from Cochrane :emoji_thumbsdown:
     
    Legend, alktipping, rvallee and 5 others like this.
  13. Caroline Struthers

    Caroline Struthers Senior Member (Voting Rights)

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    833
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    Oxford UK
    Amazing work from @Michiel Tack as ever. I am considering writing to Cochrane to question why David Tovey decided to withdraw the review whilst it was being updated, was persuaded by the authors not to, and then the new Editor in Chief allowed publication of the amendment in October 2019 when they had promised to publish it in I think August or maybe earlier. With spooky timing, and uncustomary speed for Cochrane, in August, Cochrane changed its review withdrawal policy so any further criticism after the amendment had been published could not be used as a reason to withdraw it. In fact, now even reviews which are over ten years out of date and will not be updated will stay on the Cochrane Library forever. Maybe I can find out a bit more about the process which led to the sudden change of policy, as Cochrane prides itself on transparency in everything.
     
    Mithriel, Legend, alktipping and 14 others like this.

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