Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

The article said:
There is unlikely ever to be a penicillin for long Covid or ME/CFS.
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My mom said she's particularly angry about this sentence, because how can you actually predict that?
I like that the article said that, because it's one of the few concrete claims she makes, and could well be disproved in the future. And if it is, the entire article's logic collapses like a Jenga tower. The existence of a treatment means we've likely unraveled ME enough to clear all doubt it's psychosomatic.
 
Trial By Error: Is the Long Covid Phenomenon an Expression of “Psychosocial Distress”?

"For the second time in a few weeks, a major US news organization has provided Professor Michael Sharpe, lead PACE investigator and one-time Virology Blog commenter, with a high-profile platform to disseminate his typical blather and nonsense. Both articles—the first in New York Magazine, the second in The New Republic–-have presented the long Covid phenomenon as largely psychosomatic.

I wrote an extended twitter thread and a blog post about the pretty awful New York Magazine piece, which highlighted my 15,000-word investigation of the PACE trial but misrepresented my criticisms. I won’t bother more about that article for now. As for The New Republic‘s iteration by Natalie Shure, an experienced science and health journalist, poet Meghan O’Rourke, author of The Invisible Kingdom, has written an excellent thread about it, and sociologist Zeynep Tufekci, a New York Times opinion columnist, exchanged tweets with the reporter and pushed back against her interpretation of events."

https://www.virology.ws/2022/12/14/...menon-an-expression-of-psychosocial-distress/
 
"The author also interviewed Professor Sharpe; two of his former students, neurologists Professor Alan Carson and Professor Jon Stone;"

I did not know that. Yet, somehow, I don't feel surprised by the incestuous nature of it all.
 
Sean said:
"The author also interviewed Professor Sharpe; two of his former students, neurologists Professor Alan Carson and Professor Jon Stone;"

I did not know that. Yet, somehow, I don't feel surprised by the incestuous nature of it all.
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Haven't checked for Jon Stone, but Alan Carson is also a signatory on the coming paper signed by 50 very very very unbiased scientists.
 
Sean said:
"The author also interviewed Professor Sharpe; two of his former students, neurologists Professor Alan Carson and Professor Jon Stone;"

I did not know that. Yet, somehow, I don't feel surprised by the incestuous nature of it all.
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Sharpe was at Edinburgh University for a while. He published the first FND paper with Jon Stone, who was still at Edinburgh last year, in 2008. Though the idea of psychologically induced neurological disorders predated this, the flood of papers since then have moved it into the mainstream and has claimed diseases far beyond the neurological.

I have heard that he had a hand in the CDC definition of CFS as well and, of course, the oxford definition was his. The damage the man has done, and the suffering he has caused, is incalculable.
 
Miles W. Griffis on Twitter said:
Writing corrections to the @newrepublic. If any other journalists/Long Covid or ME experts etc. would like to co-author or submit corrections about the Long Covid piece, please dm me.
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I forget which one, but this journalist has written a good article published recently. Seems to know his stuff.
 
In one way, no—of course it doesn’t. The symptoms are real, and patients’ testimony about them is sacrosanct. They are not confused, faking, or unreliable. They’re sick.
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Here's a new term I made:

Quantum Medicine is where a medical professional attempts to hold two irreconcilable views about patients. For example if you have ME and your main symptom is long term harm from exercising beyond your PEM threshold, the doctor claims to believe that your symptoms are real but prescribes GET. How can he/she believe that you're harmed by exercise then tell you the solution is to exercise?

It is trying to occupy two different positions at the same time.
 
ToneAl said:
What she is saying from my understanding is that fnd has no scientific basis and should be scrapped and shows biases in doctors diagnosis
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Thank you. What threw me were the words ‘not ready’ as I felt it could imply it would be eventually.
 
I have a full-sized desktop PC, so I am seeing a left hand panel which has the words "Outline" then underneath "Signatures". If I click on Signatures then page down to beyond the last signature I can click on that space then type in what I want. I don't know if there is a specific Save one has to press - I haven't tried adding my own name yet.
 
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