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Action CIND Webinar: "Post-Exertional Malaise: Identifying, Understanding and Preventing", March 24th at 11am PST/2pm EST

Discussion in 'General ME/CFS news' started by Andy, Mar 10, 2020.

  1. Andy

    Andy Committee Member

    Messages:
    16,254
    Location:
    Hampshire, UK
    Topic
    Post-Exertional Malaise: Identifying, Understanding and Preventing

    Description
    Post-exertional malaise (PEM) is the hallmark clinical feature of ME/CFS. The webinar will present research that advances our understanding of this important complex of symptoms and introduce a timecourse for its manifestation. We will provide tools to help identify and prevent PEM across the spectrum of illness from mild to severe impairment. We will also provide resources and educational materials for caregivers and health care providers.

    For this webinar, we will be joined by three of Workwell Foundation’s exercise physiologists who provide expertise to support a diagnosis, functional assessments, and treatment in the areas of ME, CFS, Fibromyalgia and other fatigue-related illnesses. Joining us will be Staci Stevens, Todd Davenport and Mark VanNess. They work with doctors and attorneys to provide documentation that can assist patients in obtaining disability benefits. You can read their bio's at http://workwellfoundation.org/our-team/

    Register via https://myemail.constantcontact.com/Register-Today.html?soid=1114250523202&aid=SKqRt9iX5O8
     
  2. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    1,663
    Location:
    Oregon, USA
    Thanks for posting, @Andy :)

    I was just thinking that someone should post a notice about this webinar - glad you beat me to it!


    Edit #1 - The link to the webinar that I got from twitter seems different?

    https://zoom.us/webinar/register/WN_zqHqLg6eRrGwqP20gzUnUw

    Perhaps the link you shared is for your own registration? I could be confused so please let me know!

    Edit #2 - Here's the tweet where I got the link:
    Code:
    https://twitter.com/ActionCIND/status/1236806042253701120
    https://twitter.com/user/status/1236806042253701120
     
    Last edited: Mar 10, 2020
  3. alktipping

    alktipping Senior Member (Voting Rights)

    Messages:
    1,058
    poor choice of language" fatigue related illnesses" it should be illnesses that have fatigue as a symptom . and I seriously suspect that there will be no one size fits all easy conclusion for p e m .
     
    FMMM1 and Invisible Woman like this.
  4. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,284
    Again with the "fatigue" :banghead::banghead::banghead:

    I agree @alktipping, but whether we're talking "fatigue related" or "illnesses that have fatigue as a symptom" that's a vast range of conditions.

    Really are the going to cover - anaemia, hypothyroidism, heart disease, MS, depression etc, etc all of which have fatigue as a symptom and thus could be fatigue related?

    I think the Workwell team have done some great work but when are doctors and researchers going to learn that language matters!

    FFS! Substitute the f word of your choice.
     
    Chezboo and alktipping like this.
  5. Andy

    Andy Committee Member

    Messages:
    16,254
    Location:
    Hampshire, UK

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