A Life Hidden - Blog posts by Naomi Whittingham

Thank you @Jonathan Edwards I think there’s a risk of this becoming too complex for very ill readers to take in. I’m now thinking of stripping it right back. Whilst I appreciate this removes detail, as long as the following isn’t incorrect then I think I will go for simplicity:

“The DecodeME study, published in 2025, pointed to the involvement of the immune and nervous systems, and indicated that susceptibility to ME is partly genetic.”
 
Another gem today titled: You Are Not Forgotten: The Gift of Being Remembered.

Also shared in the thread for the ME Awareness Day 12th May.

quote:

I’ve come to understand that what can look like a lack of caring is often paralysis in the face of suffering. Society in general is not equipped to cope when someone falls seriously ill and never gets better. In the same way that the newly bereaved might be shunned because of their proximity to mortality, so we chronically ill provide an uncomfortable reminder of all that cannot be controlled, and all that cannot be put right.

 
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