Patient advocate Sissel Sunde was recently interviewed in a local Norwegian newspaper about her disease. Summary
here in the Scandinavian thread.
She talked about the different ME treatments she had tried, among other the treatment provided by psychiatrist Bjarte Stubhaug who authored the study for this thread. The treatment was improving routines for sleep and meals, and walks and mindfulness. It was said that ME is the same as having a bad period and she wasn't sick, but vulnerable to stress. Dr. Stubhaug was also interviewed in same article and said he didn't recognise what was being being said about his treatment. He said it isn't a treatment for ME, but a programme for coping with stress, fatigue and health problems.
Today Sissel Sunde has written a blog post where she tells more about what the treatment at dr. Stubhaug entailed, a list of different claims he's made over the years, and also about her objections to his study.
Stubhaug villeder Aftenbladets lesere
Google translation:
Stubhaug is misleading Aftenbladet's readers
Quote:
I have sent several reports of concern to the authorities based on documents provided by REK Vest and my personal experience. The lessons were:
In Norway you can run your own clinic, research your own treatment program, have a financial interest in the result, recruit the participants yourself, call everyone ME patients - even if diagnostic criteria are not mentioned in the protocol, they should research a "general psychiatric patient population " and the participants do not know they are participating in an ME study - without the Norwegian Board of Health seeing any reason for" further supervisory follow-up. "
And thus the study is still on the National Competence Service for CFS / ME's website , while Stubhaug turns the cloak after the wind in the media.
What was once a "treatment program for CFS / ME" is now a treatment for "various stress-related health problems."