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13 March 2019 - Chalder - ‘Medically unexplained symptoms’: my clinical and research journey over 30 years

Discussion in 'PsychoSocial ME/CFS News' started by Esther12, Sep 2, 2018.

  1. Amw66

    Amw66 Senior Member (Voting Rights)

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    I think you also have to keep the review of mental health act in the frame too with its review of legal requirements.
    The overall picture has been dussected into pieces in the hope that noone puts them together.
    Thinking of Bob' s experience - it is a perfect storm.
     
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  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    It is even more dangerous given, even if they were correct about ME being a functional condition, which they are not, advocates for including ME under the MUS umbrella and refusing biomedical assesment are ignoring the fact that ME is associated with higher incidences of other conditions such as cancer.

    So following this approach we would be refused medical assesment because of an untested belief that our symptoms should be down played at the same time as we have a higher risk of other life threatening conditions such as coronary heart disease or cancer. So we are in for a double whammy, offered treatment that will make us worse and potentially increase the chance that the ME becomes life threatening and denied or delayed diagnosis for other potentially life threatening conditions.

    [added - I did go beyond available evidence in saying 'offered treatment that will make us worse', and should have said 'treatment which some evidence indicates may make us worse']
     
    Last edited: Sep 2, 2018
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  4. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    :wtf::wtf::wtf::wtf::wtf::wtf: It’s just more regurgitation of the same rubbish. The public sector haven’t had proper pay rises for a decade and services cut to the bone and we are funding this utter utter tripe. In fact it’s an insult to tripe as at least tripe can be cooked and provide some nutritional value whereas this is completely without value. Can you tell I’m cross ;)
     
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  5. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    I never knew Bob. What experience(s) did he have that makes people mention him so often? I've read enough to know he was very popular, but that is all I know.
     
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  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  7. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Once someone gets an MUS 'diagnosis' and is then referred for CBT I wonder if they are then included in the Mental Health statistics?
    If they are then this whole set up is self-perpetuating empire building........

    'We need to put more money into Mental Health'
    'OK here's IAPT......CBT for those with Mental Health problems'
    'Oh and this lot of MUS patients could do with it as well'
    'OK, they can have CBT as well'........
    'Oh look, the figures show that Mental Health Problems are increasing and we cannot give CBT to everyone who needs it'
    'OK, here's some more money'
    'Thanks, by the way, we've just done some research and it 'shows' that these other patients could do with CBT or our new super-dooper version ACT........'
     
  9. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  10. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    How can this person who isn’t a medic be an expert in knowing if symptoms aren’t able to be medically explained.
     
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  11. Robert 1973

    Robert 1973 Senior Member (Voting Rights)

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    Perhaps @Jonathan Edwards could be persuaded to add this to his diary and ask her himself?

    I note that it is a UCL lecture series. I hope it will be recorded.
     
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  12. AR68

    AR68 Senior Member (Voting Rights)

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    That "high-level formal hearing" took place only a fifth of a mile away (1057 days earlier) from where she'll be on the 13th.
     
  13. strategist

    strategist Senior Member (Voting Rights)

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    I picture Chalder first explaining how patients are lazy, perfectionist, irrational, deluded, fearful to the point of self-inflicted disability, and then complaining how patient call her names on the internet.

    They've been negatively stereotyping patients for 30 years and can't handle taking what they are constantly dishing out.
     
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  14. Esther12

    Esther12 Senior Member (Voting Rights)

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    She'll be able to quote from Montgommery's BS HRA letter to pretend PACE critics were all misguided without addressing any of the real criticism. I suspect most of the audience will be stupid enough to fall for it.
     
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  15. AR68

    AR68 Senior Member (Voting Rights)

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  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  17. ladycatlover

    ladycatlover Moderator Staff Member

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  18. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    :rofl: I didn’t even get to the woman herself speaking couldn’t get past the glowing description of her top class research career and clinical work by the guy doing the introduction puking on the floor is exactly the image I had in mind too. I’m going to be a chicken and read Sly s transcript in due course. You’re heros for sitting through in person @AR68 and @Sly Saint for no doubt having to listen a few times to get transcript
     
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  19. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

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    Sometimes I'm very slow on the uptake. I wondered why anyone had discussed fish.

    Edit : I just wanted to add that I'm not koi about carp or any other form of swearing.
     
    Last edited: Mar 15, 2019
  20. AR68

    AR68 Senior Member (Voting Rights)

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    This is a tweet from the event:
     

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