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united kingdom

Page 11 of 17

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Questionnaire to see what different people in the community Hope from the UK MRC

please can people comment on the reasons why if they wish I’m trying to see what the views are and why on this matter Basically the MRC are in...

Thread by: Cinders66, Jun 10, 2019, 15 replies, in forum: Fundraising
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Carol Monaghan asking for patient experiences with UK benefit assessments

In a couple of weeks’ time I’ll be meeting with the Minister for Disabled People, Health and Work to raise the recurring issue of access to...

Thread by: Andy, Jun 6, 2019, 7 replies, in forum: General disability topics and advocacy
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Mirror: Woman, 28, goes from keen runner to year in dark room because of severe disorder

Woman, 28, goes from keen runner to year in dark room because of severe disorder Jonathan admits he has seen his beloved fiancée’s character...

Thread by: Kalliope, May 1, 2019, 28 replies, in forum: General ME/CFS news
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Charity funding

Interesting link from Twitter - [MEDIA]

Thread by: Amw66, May 27, 2019, 4 replies, in forum: Other health news and research
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Guardian - Mental health services in crisis are abandoning patients to meet targets May 2019

Off-rolling has recently become a buzzword in the world of education. It refers to the removal, by various means, of students from schools’...

Thread by: Sly Saint, May 17, 2019, 8 replies, in forum: Other health news and research
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Prevalence of post-concussion-like symptoms in the general population in Italy, The Netherlands and the United Kingdom, 2019, Voormolen et al

ABSTRACT Objectives: To evaluate the frequency of post-concussion symptoms and prevalence and risk factors of post-concussion syndrome (PCS) in...

Thread by: Andy, May 4, 2019, 9 replies, in forum: Other health news and research
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UK Parliament debate - 10 Years of the Work Capability Assesment 24 April 2019

Laura Pidcock Shadow Minister (Business, Energy and Industrial Strategy) (Labour) 2:30 pm, 24th April 2019 I beg to move, That this House has...

Thread by: Sly Saint, Apr 28, 2019, 15 replies, in forum: Work, Finances and Disability Insurance
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BBC1 Doctors 17 April 2019 Storyline about PIP (UK benefit)

Warning - this may be a programme that is upsetting for PIP claimants, or those awaiting a PIP assessment. On the other hand, it at least shows...

Thread by: ladycatlover, Apr 17, 2019, 1 replies, in forum: Work, Finances and Disability Insurance
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Don't merge the assessments for PIP and ESA - April 2019

UK Gov petition (ie at 10,000 Govt will respond) In a speech on 5/3/19, Work & Pensions Secretary Amber Rudd announced plans to merge assessments...

Thread by: Sly Saint, Apr 11, 2019, 10 replies, in forum: Petitions
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UK NICE - Projects to support the development of the NICE guideline on ME/CFS: diagnosis and management

Projects to support the development of the NICE guideline on Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and...

Thread by: Andy, Apr 8, 2019, 112 replies, in forum: General ME/CFS news
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'My horrendous illness leaves me in bed for 20 hours a day' - Hull Daily Mail Mar 2019

A woman who suffers from a crippling rare illness which has made her almost completely bedbound for two years has spoken of her struggle. KT...

Thread by: Sly Saint, Mar 28, 2019, 2 replies, in forum: General ME/CFS news
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Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the...

Thread by: Binkie4, Mar 27, 2019, 33 replies, in forum: General ME/CFS news
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Steve Brine Health minister resigns

BBC just reporting Brine has resigned.

Thread by: large donner, Mar 25, 2019, 5 replies, in forum: General ME/CFS news
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ME Debate Jan2019 - UK ONLY -Steve Brine MP

Becky Hatfield is trying to get a bagful of letters together for Steve Brine (think he is still Under Secretary of State for Department of Health...

Thread by: It's M.E. Linda, Mar 24, 2019, 0 replies, in forum: Advocacy Projects and Campaigns
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Sense about Science UK: Become an Ask for Evidence ambassador

Sense about Science is recruiting 20 new volunteer ambassadors around the UK to lead the Ask for Evidence campaign. Ask for Evidence is a public...

Thread by: Andy, Mar 11, 2019, 11 replies, in forum: Other health news and research
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UK Vulnerable patients at great risk under new laws - Law Society press release

300,000 people with conditions such as Alzheimer’s, autism or learning disabilities will see their rights - specifically their right to liberty -...

Thread by: TiredSam, Mar 1, 2019, 2 replies, in forum: Other health news and research
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UK: Guess who's working on a health data-slurping digital tool? DWP, 2019, Hill

Bzzt! Nope, it's the UK Department for Work and Pensions The UK's Department for Work and Pensions is drawing up plans for an internal service...

Thread by: Andy, Feb 26, 2019, 12 replies, in forum: General disability topics and advocacy
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MUS services in UK and other MUS related issues

As increasingly pw ME/CFS are being referred through IAPT for treatment as MUS I thought I'd set up a separate thread from the ME/CFS Services in...

Thread by: Sly Saint, Feb 24, 2019, 152 replies, in forum: General ME/CFS news
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Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

Ugh. Have you seen this new piece @dave30th ? "Conclusions mFND patients have distinct demographic characteristics compared with psychiatric...

Thread by: ScottTriGuy, Feb 21, 2019, 49 replies, in forum: Other psychosomatic news and research
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MYRIAD - My Resilience in Adolescence project UK

MYRIAD is a research project. We are interested in how schools promote young people’s wellbeing and resilience (the ability to adapt in the face...

Thread by: Sly Saint, Feb 19, 2019, 8 replies, in forum: Other psychosomatic news and research

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