Inspired by our thread on A proposal for further developing fatigue-related post COVID-19 health states for burden of disease studies 2023 Wyper et al
A DALY weight is used to calculated years lost to disability from a disease. It's an estimate of your percentage of health with a certain...
Now published. https://www.s4me.info/threads/assessing-functional-capacity-in-me-cfs-a-patient-informed-questionnaire-funcap-2024-sommerfelt-et-al.35464/page-3#post-538060
The discussion thread before the preprint was published and the preprint thread have been merged.
Discussion of the...
the order of magnitude of the scale and scope of the problem is completely off. [perception and addressing of.]
i posted this on a thread briefly then deleted it and reposting it. i don't know where to put it. that is not the best place.
a few notes about human rights. WARNING: i am not...
addressing
human rights
incommensurate
mismatch
moral inversion
order of magnitude
perception
politics
reality
response
scale
scope
seriousness
severity
Hi,
I'm looking for papers that separated ME/CFS patients into different grades of severity with some epidemiological data on each of the groups.
For example, if you were to divide the entire ME/CFS population into mild, moderate, severe and very severe, what percentage would be given to each...
I've been studying the sf-36 physical functioning questionnaire and the Chalder fatigue scale for some time now, and am convinced that they are too susceptible to outside influences. A question like "Walking several hundred yards – are you limited a lot, limited a little or not limited at all?"...
Full title: What scientific evidence do the current classifications have in order to assess occupational disability in patients with central sensitisation syndrome?
Abstract in English, full paper in Spanish.
Paywall, https://www.sciencedirect.com/science/article/abs/pii/S1138359320302616...
Full title:
Validation of the Severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by Other Measures than History: Activity Bracelet, Cardiopulmonary Exercise Testing and a Validated Activity Questionnaire: SF-36
https://www.mdpi.com/2227-9032/8/3/273
Full Title: Accurate and Objective Determination of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Disease Severity with a Wearable Sensor
https://www.researchsquare.com/article/rs-48360/v1
Gives percentages of those with CFS broken down by severity
https://www.spotlightonresearch.com/health-science-research/kh2019
Free full text:
https://www.spotlightonresearch.com/s/Howard-K-et-al-2019-xtxp.pdf
Free full text:
http://edelweisspublications.com/edelweiss/article/effect-curcumin-patients-chronic-fatigue-syndrome-myalgic-encephalomyelitis-2638-8235-pvpe-19-112.pdf
I’m after some information about scales which measure severity of disease in ME/CFS, in terms of functional impairment (mild vs severe). There seem to be several which measure symptom severity and, whilst there will likely be a correlation between symptom and disease severity, they’re not the...
Moderator note.
This post has been copied and following posts moved from this thread.
See also this members only poll and discussion
Library thread: Questionnaires and Scales used in ME or CFS research
I've wondered if it should be moderate, substantial, severe, very severe instead. I can't...
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