I know the issue of severity is sensitive and don't want to get into a 'my ME is worse than yours' kind of debate.
But I have only recently begun to notice that most literature (including from the charities) although noting the 25% severely affected, and emphasising the debilitating nature of...
Deadline of November 10th 2017 to submit your input to the parliamentary inquiry on PIP and ESA
http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/
Weighting of orthostatic intolerance time measurements with standing difficulty score stratifies ME/CFS symptom severity and analyte detection
Alice M. RichardsonEmail author,
Don P. Lewis,
Badia Kita,
Helen Ludlow,
Nigel P. Groome,
Mark P. Hedger,
David M. de Kretser and
Brett A. Lidbury...
Perhaps some of you remember the study Housebound versus non housebound patients with myalgic encephalomyelitis and chronic fatigue syndrome from last year by Tricia Pendergrast, Abigail Brown, Madison Sunnquist, Rachel Janice, Julia L. Newton, Elin Bolle Strand and Leonard A. Jason...
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