scale

The most popular questionnaire for PEM is the De-Paul Symptom Questionnaire, which, to be frank, is not the best, as it mostly focuses on fatigue after exertion and seems to flag an unlikely proportion of people with other illnesses having PEM. It seems there isn’t much competition. The FUNCAP...

the order of magnitude of the scale and scope of the problem is completely off. [perception and addressing of.] i posted this on a thread briefly then deleted it and reposting it. i don't know where to put it. that is not the best place. a few notes about human rights. WARNING: i am not...

Background https://www.kcl.ac.uk/news/spotlight/specialist-rehabilitation-focus-services-early-to-transform-lives-and-save-the-nhs-money The Needs and Provision Complexity Scale and its development The NPCS tool: https://www.kcl.ac.uk/cicelysaunders/resources/tools/npcs I wondered if this...

Abstract The Quality of Life Scale (QOLS), created originally by American psychologist John Flanagan in the 1970's, has been adapted for use in chronic illness groups. This paper reviews the development and psychometric testing of the QOLS. A descriptive review of the published literature was...

Further reading, and access to scoring sheets, at https://www.who.int/classifications/icf/more_whodas/en/

Saw this used recently in a study unrelated to ME and thought a thread about the scale might be useful. Paywalll, https://www.sciencedirect.com/science/article/abs/pii/S0022399901003154 Sci hub, not available via at time of posting

https://www.cambridge.org/core/journals/behavioural-and-cognitive-psychotherapy/article/cognitive-behavioural-responses-to-envy-development-of-a-new-measure/B5FB2609EFAF7A1BDEC2C243B74488EF https://sci-hub.tw/10.1017/S1352465819000614 where's that pointed stick @Lucibee (interesting that they...

Definitely not a recommendation. Paywall, https://onlinelibrary.wiley.com/doi/abs/10.1111/2047-3095.12261 Not available via Scihub at time of posting.

I’m after some information about scales which measure severity of disease in ME/CFS, in terms of functional impairment (mild vs severe). There seem to be several which measure symptom severity and, whilst there will likely be a correlation between symptom and disease severity, they’re not the...

from Introduction interesting, a nice twist perhaps(?) But will anyone use it? Cochrane seem to be going in the opposite direction. full paper here https://bmjopen.bmj.com/content/bmjopen/9/2/e024622.full.pdf

Full title: Symptom frequency and development of a generic functional disorder symptom scale suitable for use in studies of patients with irritable bowel syndrome, fibromyalgia syndrome or chronic fatigue syndrome Open access at https://www.sciencedirect.com/science/article/pii/S2095882X18300987

Moderator note. This post has been copied and following posts moved from this thread. See also this members only poll and discussion Library thread: Questionnaires and Scales used in ME or CFS research I've wondered if it should be moderate, substantial, severe, very severe instead. I can't...

Very important subject, treated with due deference by @Neuro_Skeptic ;)

by James C Coyne November 15, 2017 https://www.coyneoftherealm.com/blogs/mind-the-brain/stop-using-the-adverse-childhood-experiences-checklist-to-make-claims-about-trauma-causing-physical-and-mental-health-problems

General health *36-Item Short Form Survey Instrument (SF-36) Link to questionnaire Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid. Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P. Journal of Clinical Epidemiology 2011 Link to article...