General health *36-Item Short Form Survey Instrument (SF-36) Link to questionnaire Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid. Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P. Journal of Clinical Epidemiology 2011 Link to article *EQ-5D Measures health-related quality of life. Link to information *Work and Social Adjustment Scale Link to scale (scroll down) Measuring disability in patients with chronic fatigue syndrome: reliability and validity of the Work and Social Adjustment Scale Cella M, Sharpe M, Chalder T. J Psychosom Res 2011 Link to article Fatigue *Chalder fatigue scale (CFS) Link to scale S4ME thread Development of a fatigue scale T. Chalder, G. Berelowitz, T. Pawlikowska, L. Watts, S. Wessely, D. Wright, E.P. Wallace J. Psychosom 1993 Link to article Critiques: Tom Kindlon's feedback on the CFS for the CDE Public Review S4ME thread Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire S4ME thread *Fatigue severity scale (FSS) Link to scale *Checklist Individual Strength (CIS) Measures four dimensions of fatigue: Fatigue severity, concentration problems, reduced motivation and activity. Link to questionnaire (end of article) *Fisk Fatigue Impact Scale Link to questionnaire (end of article) *Multidimensional Fatigue Inventory Link to information Fatigue Scales and Chronic Fatigue Syndrome: Issues of Sensitivity and Specificity Leonard A. Jason, Meredyth Evans, Molly Brown, Nicole Porter, Abigail Brown, Jessica Hunnell, Valerie Anderson, Athena Lerch Disability Study Quaterly 2011 Link to article Pain *Brief pain inventory-short form Link to questionnaire Physical activity and abilities *The 6-minute walk test Minimal clinically important differences in the six-minute walk test and the incremental shuttle walking test. Wise RA, Brown CD. COPD. 2005 Link to article The first reference equations for the 6-minute walk distance over a 10 m course Beekman E, Mesters I, Gosselink R, et al.. 2014 Thorax Link to article Does verbal encouragement actually improve performance in the 6-minute walk test? Marinho PE, Raposo MC, Dean E, Guerra RO, de Andrade AD. 2014 Physiotherapy Theory and Practice Link to article *Short Questionnaire to Assess Health-Enhancing Physical Activity (SQUASH) *Katz Index of Independence in Activities of Daily Living Link to quetionnaire Psychiatric symptoms and disorders *DSM 5 criteria Major Depressive Disorder (MDD) Link to criteria General Anxiety Disorder (GAD) Link to criteria *Hospital Anxiety and Depression Scale (HADS) Link to Scale S4ME thread Screening for psychological distress using internet administration of the Hospital Anxiety and Depression Scale (HADS) in individuals with chronic fatigue syndrome McCue, P., Buchanan, T and Martin, CR British Journal of Clinical Psychology 2006 Link to article The Hospital Anxiety and Depression Scale (HADS) is dead, but like Elvis, there will still be citings James C. Coyne, Eric van Sonderen Journal of Psychosomatic Research – letter to the editor 2012 Link to article *Children's Depression Inventory *Beck Depression Inventory (BDI) Link to Questionnaire *State Trait Anxiety Questionnaire (STAI) (Speilberger, Gorsuch, & Lushene, 1970) 40-item scale which measures the intensity of felt anxiety, both state anxiety (temporary, experienced in particular situations) and trait anxiety (a general tendency to perceive situations as threatening). Link to description *Multi-dimensional Perfectionism Scale Link to scale *General Health Questionnaire Identifies minor psychiatric disorders *Silver Lining Questionnaire, SLQ Measures positivity in illness Link to questionnaire S4ME thread *Illness Perception Questionnaire – Revised (IPQR) Moss-Morris et al. 2002 Measures six subscales ‘illness identity’, ‘consequences’, ‘timeline’, ‘personal control’, ‘emotional representations’ and ‘illness coherence’. Link to questionnaire *The Behavioural Responses to Illness Questionnaire (BRIQ) Spence, Moss-Morris, Chalder 2004 Measures four factors: all-or-nothing behaviour, limiting behaviour, emotional support seeking and practical support seeking Link to questionnaire *Adverse Childhood Experience Questionnaires (ACE) Link to questionnaire Stop using the Adverse Childhood Experiences Checklist to make claims about trauma causing physical and mental health problems mind the brain James C Coyne 2017 Link to blog S4ME thread *Checklist Somatization Inventory *Toronto Alexithymia Scale Link to questionnaire *Pain Catastrophizing Scale (PCS) Decription Link to Scale Link to Manual *Cognitive Behavioural Responses Questionnaire (CBRQ) Link to questionnaire (p.450-2) Psychometric properties & factor structure of a shortened version of Cognitive Behavioural Responses Questionnaire (CBRQ) Ryan EG1, Vitoratou S, Goldsmith KA, Chalder T. Psychosomatic Medicine. 2017 Link to paper S4ME thread *Fear Questionnaire Link to questionnaire *Perceived Stress Scale (PSS) Cohen et al. 1983 Link to scale *Tampa Scale Kinesiophoia J Nijs, K De Meirleir, W Duquet. Archives of Physical Medicine and Rehabilitation 2004 Link to questionnaire ME/CFS questionnaires *DePaul Questionnaire Link to questionnaire *MEA Disability Rating Scale Link to scale *NOVA form Link to questionnaire *CDC Symptom Inventory for CFS Link to questionnaire *Bell Disability Scale Link to Scale If you have questions or want to make a suggestion, please go to the Library Discussions thread.
