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Questionnaires and Scales used in ME or CFS research

Discussion in 'Science Library (Read only)' started by Cheshire, Nov 8, 2017.

  1. Cheshire

    Cheshire Moderator Staff Member

    Likes Received:
    General health

    *36-Item Short Form Survey Instrument (SF-36)
    Link to questionnaire

    Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid.
    Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P.
    Journal of Clinical Epidemiology
    Link to article

    Measures health-related quality of life.
    Link to information

    *Work and Social Adjustment Scale
    Link to scale (scroll down)

    Measuring disability in patients with chronic fatigue syndrome: reliability and validity of the Work and Social Adjustment Scale

    Cella M, Sharpe M, Chalder T.
    J Psychosom Res
    Link to article


    *Chalder fatigue scale (CFS)

    Link to scale
    S4ME thread

    Development of a fatigue scale
    T. Chalder, G. Berelowitz, T. Pawlikowska, L. Watts, S. Wessely, D. Wright, E.P. Wallace
    J. Psychosom
    Link to article

    Tom Kindlon's feedback on the CFS for the CDE Public Review S4ME thread
    Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire S4ME thread

    *Fatigue severity scale (FSS)
    Link to scale

    *Checklist Individual Strength (CIS)

    Measures four dimensions of fatigue: Fatigue severity, concentration problems, reduced motivation and activity.
    Link to questionnaire (end of article)

    *Fisk Fatigue Impact Scale
    Link to questionnaire (end of article)

    *Multidimensional Fatigue Inventory
    Link to information

    Fatigue Scales and Chronic Fatigue Syndrome: Issues of Sensitivity and Specificity
    Leonard A. Jason, Meredyth Evans, Molly Brown, Nicole Porter, Abigail Brown, Jessica Hunnell, Valerie Anderson, Athena Lerch

    Disability Study Quaterly
    Link to article


    *Brief pain inventory-short form

    Link to questionnaire

    Physical activity and abilities

    *The 6-minute walk test

    Minimal clinically important differences in the six-minute walk test and the incremental shuttle walking test.
    Wise RA, Brown CD.
    Link to article

    The first reference equations for the 6-minute walk distance over a 10 m course

    Beekman E, Mesters I, Gosselink R, et al..
    Link to article

    Does verbal encouragement actually improve performance in the 6-minute walk test?

    Marinho PE, Raposo MC, Dean E, Guerra RO, de Andrade AD.
    Physiotherapy Theory and Practice
    Link to article

    *Short Questionnaire to Assess Health-Enhancing Physical Activity (SQUASH)

    *Katz Index of Independence in Activities of Daily Living

    Link to quetionnaire

    Psychiatric symptoms and disorders

    *DSM 5 criteria

    Major Depressive Disorder (MDD)
    Link to criteria
    General Anxiety Disorder (GAD)
    Link to criteria

    *Hospital Anxiety and Depression Scale (HADS)

    Link to Scale
    S4ME thread

    Screening for psychological distress using internet administration of the Hospital Anxiety and Depression Scale (HADS) in individuals with chronic fatigue syndrome
    McCue, P., Buchanan, T and Martin, CR
    British Journal of Clinical Psychology
    Link to article

    The Hospital Anxiety and Depression Scale (HADS) is dead, but like Elvis, there will still be citings
    James C. Coyne, Eric van Sonderen
    Journal of Psychosomatic Research – letter to the editor
    Link to article

    *Children's Depression Inventory

    *Beck Depression Inventory (BDI)

    Link to Questionnaire

    *State Trait Anxiety Questionnaire (STAI) (Speilberger, Gorsuch, & Lushene, 1970)

    40-item scale which measures the intensity of felt anxiety, both state anxiety (temporary, experienced in particular situations) and trait anxiety (a general tendency to perceive situations as threatening).
    Link to description

    *Multi-dimensional Perfectionism Scale

    Link to scale

    *General Health Questionnaire

    Identifies minor psychiatric disorders

    *Silver Lining Questionnaire, SLQ

    Measures positivity in illness
    Link to questionnaire
    S4ME thread

    *Illness Perception Questionnaire – Revised (IPQR)

    Moss-Morris et al.
    Measures six subscales ‘illness identity’, ‘consequences’, ‘timeline’, ‘personal control’, ‘emotional representations’ and ‘illness coherence’.
    Link to questionnaire

    *The Behavioural Responses to Illness Questionnaire (BRIQ)

    Spence, Moss-Morris, Chalder
    Measures four factors: all-or-nothing behaviour, limiting behaviour, emotional support seeking and practical support seeking
    Link to questionnaire

    *Adverse Childhood Experience Questionnaires (ACE)

    Link to questionnaire

    Stop using the Adverse Childhood Experiences Checklist to make claims about trauma causing physical and mental health problems
    mind the brain
    James C Coyne

    Link to blog
    S4ME thread

    *Checklist Somatization Inventory

    *Toronto Alexithymia Scale

    Link to questionnaire

    *Pain Catastrophizing Scale (PCS)
    Link to Scale
    Link to Manual

    *Cognitive Behavioural Responses Questionnaire (CBRQ)
    Link to questionnaire (p.450-2)

    Psychometric properties & factor structure of a shortened version of Cognitive Behavioural Responses Questionnaire (CBRQ)
    Ryan EG1, Vitoratou S, Goldsmith KA, Chalder T.
    Psychosomatic Medicine.
    Link to paper
    S4ME thread

    *Fear Questionnaire
    Link to questionnaire

    *Perceived Stress Scale (PSS)
    Cohen et al.

    Link to scale

    *Tampa Scale Kinesiophoia
    J Nijs, K De Meirleir, W Duquet.
    Archives of Physical Medicine and Rehabilitation

    Link to questionnaire

    ME/CFS questionnaires

    *DePaul Questionnaire

    Link to questionnaire

    *MEA Disability Rating Scale
    Link to scale

    *NOVA form
    Link to questionnaire

    *CDC Symptom Inventory for CFS

    Link to questionnaire

    *Bell Disability Scale

    Link to Scale

    If you have questions or want to make a suggestion, please go to the Library Discussions thread.
    Last edited by a moderator: Sep 2, 2020
    Hutan, Joh, Helen and 12 others like this.

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