Questionnaires and Scales used in ME or CFS research

General health

*36-Item Short Form Survey Instrument (SF-36)
Link to questionnaire

Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid.
Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P.
Journal of Clinical Epidemiology
2011
Link to article

*EQ-5D
Measures health-related quality of life.
Link to information

*Work and Social Adjustment Scale
Link to scale (scroll down)

Measuring disability in patients with chronic fatigue syndrome: reliability and validity of the Work and Social Adjustment Scale
Cella M, Sharpe M, Chalder T.
J Psychosom Res
2011
Link to article


Fatigue

*Chalder fatigue scale (CFS)
Link to scale

Development of a fatigue scale
T. Chalder, G. Berelowitz, T. Pawlikowska, L. Watts, S. Wessely, D. Wright, E.P. Wallace
J. Psychosom
1993
Link to article

Critiques:
Tom Kindlon's feedback on the CFS for the CDE Public Review S4ME thread
Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire S4ME thread

*Fatigue severity scale (FSS)
Link to scale

*Checklist Individual Strength (CIS)
Measures four dimensions of fatigue: Fatigue severity, concentration problems, reduced motivation and activity.
Link to questionnaire (end of article)

*Fisk Fatigue Impact Scale
Link to questionnaire (end of article)

*Multidimensional Fatigue Inventory
Link to information


Fatigue Scales and Chronic Fatigue Syndrome: Issues of Sensitivity and Specificity
Leonard A. Jason, Meredyth Evans, Molly Brown, Nicole Porter, Abigail Brown, Jessica Hunnell, Valerie Anderson, Athena Lerch
Disability Study Quaterly
2011
Link to article

Pain

*Brief pain inventory-short form
Link to questionnaire


Physical activity and abilities

*The 6-minute walk test

Minimal clinically important differences in the six-minute walk test and the incremental shuttle walking test.
Wise RA, Brown CD.
COPD.
2005
Link to article

The first reference equations for the 6-minute walk distance over a 10 m course
Beekman E, Mesters I, Gosselink R, et al..
2014
Thorax
Link to article

Does verbal encouragement actually improve performance in the 6-minute walk test?
Marinho PE, Raposo MC, Dean E, Guerra RO, de Andrade AD.
2014
Physiotherapy Theory and Practice
Link to article


*Short Questionnaire to Assess Health-Enhancing Physical Activity (SQUASH)

*Katz Index of Independence in Activities of Daily Living
Link to quetionnaire



Psychiatric symptoms and disorders

*DSM 5 criteria
Major Depressive Disorder (MDD)
Link to criteria
General Anxiety Disorder (GAD)
Link to criteria

*Hospital Anxiety and Depression Scale (HADS)
Link to Scale

Screening for psychological distress using internet administration of the Hospital Anxiety and Depression Scale (HADS) in individuals with chronic fatigue syndrome
McCue, P., Buchanan, T and Martin, CR
British Journal of Clinical Psychology
2006
Link to article

The Hospital Anxiety and Depression Scale (HADS) is dead, but like Elvis, there will still be citings
James C. Coyne, Eric van Sonderen
Journal of Psychosomatic Research – letter to the editor
2012
Link to article

*Children's Depression Inventory

*Beck Depression Inventory (BDI)
Link to Questionnaire

*State Trait Anxiety Questionnaire (STAI) (Speilberger, Gorsuch, & Lushene, 1970)
40-item scale which measures the intensity of felt anxiety, both state anxiety (temporary, experienced in particular situations) and trait anxiety (a general tendency to perceive situations as threatening).
Link to description

*Multi-dimensional Perfectionism Scale
Link to scale

*General Health Questionnaire
Identifies minor psychiatric disorders

*Silver Lining Questionnaire, SLQ
Measures positivity in illness
Link to questionnaire
S4ME thread

*Illness Perception Questionnaire – Revised (IPQR)
Moss-Morris et al.
2002
Measures six subscales ‘illness identity’, ‘consequences’, ‘timeline’, ‘personal control’, ‘emotional representations’ and ‘illness coherence’.
Link to questionnaire

*The Behavioural Responses to Illness Questionnaire (BRIQ)
Spence, Moss-Morris, Chalder
2004
Measures four factors: all-or-nothing behaviour, limiting behaviour, emotional support seeking and practical support seeking
Link to questionnaire

*Adverse Childhood Experience Questionnaires (ACE)
Link to questionnaire

Stop using the Adverse Childhood Experiences Checklist to make claims about trauma causing physical and mental health problems
mind the brain
James C Coyne
2017
Link to blog
S4ME thread

*Checklist Somatization Inventory

*Toronto Alexithymia Scale
Link to questionnaire

*Pain Catastrophizing Scale (PCS)
Decription
Link to Scale
Link to Manual

*Cognitive Behavioural Responses Questionnaire (CBRQ)
Link to questionnaire (p.450-2)

Psychometric properties & factor structure of a shortened version of Cognitive Behavioural Responses Questionnaire (CBRQ)
Ryan EG1, Vitoratou S, Goldsmith KA, Chalder T.
Psychosomatic Medicine.
2017
Link to paper
S4ME thread

*Fear Questionnaire
Link to questionnaire

*Perceived Stress Scale (PSS)
Cohen et al.
1983
Link to scale


ME/CFS questionnaires

*DePaul Questionnaire
Link to questionnaire

*MEA Disability Rating Scale
Link to scale

*NOVA form
Link to questionnaire

*CDC Symptom Inventory for CFS
Link to questionnaire

*Bell Disability Scale
Link to Scale




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