organisation thread

Edit: another one Did the BBC ever cover the Millions Missing protests? Not mad about this coverage, but the only difference here is perception, this is essentially the same issue.

Moderation note: The Academy of Royal Medical Colleges particularly came to our notice when they were a member of the Oct 2021 NICE Roundtable Meeting that took place to ensure support for the implementation of the 2021 ME/CFS Guideline. The ARMC is the coordinating body for the UK and...

Seminar Tomorrow—Advances in Our Understanding of ME/CFS and the Effects of Long Covid https://sites.google.com/massmecfs.org/2021annualmeeting

2018 Hope 4 ME & Fibro Northern Ireland annual conference, Monday 17th September 2018 Livestream Tuller and Hughes 2 Oct 2018 Newry : The PACE Trial: 'One Of The Greatest Scandals NI - Regional review of Neurology services 2019 Hope 4 ME & Fibro Northern Ireland event (Wed 4th September 2019)...

The European ME Coalition (EMEC) presents three new fact sheets about ME/CFS. We hope these will help to inform politicians and key policymakers about the need for biomedical research on ME/CFS in Europe. The documents briefly summarize key facts about the economic and societal impact of...

A thread for general NIH news and discussion See also: USA: NIH funding for ME/CFS research Medpage today: "NIH Striving to Avoid False Hope in Chronic Fatigue" Shame about the title, yet again. https://www.medpagetoday.com/publichealthpolicy/publichealth/70529

Not sure how long they've been doing this but the ME Association also seem to have had the same idea - https://www.s4me.info/threads/me-association-index-of-published-me-cfs-research.2493/ http://www.meresearch.org.uk/information/research-database/

Moderator note. This post has been copied and following posts moved from this thread: Possibility of ME or PVFS after Covid-19 Big thanks to @Andy for posting this. I posted similar on Twitter and got very lucky It's amazing and, hopefully, this will lead to serious action by the WHO.

Rather than continue our individual threads every time minutes are published, this is meant as a home for all future minutes.

"Susan O Shea is leading the organisation of the Nurses for ME branch of the education working group. The TOR (terms of reference) would be along the same lines as the CMRC education working group and Susan has done a short summary. The idea is that stakeholders are patients and healthcare...

We are a group of physiotherapists in the United Kingdom with a special interest in Myalgic Encephalomyelitis ("ME"). Our aims are: - to educate and inform physiotherapists about ME and appropriate management strategies - to support people with ME to feel confident in seeking physiotherapy...

https://twitter.com/TomKindlon/status/1177609828325363713?s=20

Open Medicine Foundation Canada: https://www.omfcanada.ngo/?utm_source=email&utm_medium=news I donate to the OMF - can now receive a Canadian tax receipt ETA: It would be great to see some OMF funds going to Canadian ME researchers - there are collaborations, but I don't know if funds are...

Post on Facebook from Emerge. https://www.facebook.com/EmergeAustraliaInc/videos/10156541270639111/

Copied post Watching at the moment but I think it should be an interesting watch. https://youtu.be/ZZGlVJYyAO4 Discussion here Video: Professor Warren Tate's Update on His Research into ME/CFS - 11th November 2017

I realise that this is the community lounge and it may be hard to drag people away from Betty's bar but I have a very short memory span and thought it would be good to flag up some feedback from a meeting today where EUROMENE was discussed. It is a community sort of feedback. (On a broader...