United Kingdom: ME Research UK (MERUK) News

Andy

Andy

Senior Member (Voting rights)
Not sure how long they've been doing this but the ME Association also seem to have had the same idea - https://www.s4me.info/threads/me-association-index-of-published-me-cfs-research.2493/
This database consists of the summary data (including abstracts) of research publications on ME and CFS, extracted from MEDLINE and the Journal of Chronic Fatigue Syndrome. Click on the file to open it, or right-click to save onto your computer. (If you are asked for a password, just click cancel.) Please contact us if you need an alternative format.

(Caution: this is a very big file which may take a while to download via a slow internet connection, and may not open properly on older, slower computers.)

The database is intended to be an easily accessible record for researchers, healthcare professionals and patients who study the illness or who are involved with the management of patients. The latest update is to 31st December 2017, incorporating the Journal of Chronic Fatigue Syndrome (to the final volume 14, issue 4, 2008), the journal Fatigue: Biomedicine, Health & Behavior from 2012, and other MEDLINE-listed papers back to 1956.
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http://www.meresearch.org.uk/information/research-database/
 
We’re happy to let you know that the spring 2018 issue of Breakthrough is now available to read online.
The magazine includes features on a cardiac marker found to be increased in ME, a study of brain blood flow and heart rate variability, and new research looking at the gut microbiome. As always, you'll also find news from the world of ME, recent research from around the world, and our supporters' fundraising stories.
You can download the issue from our website or read it online at Issuu.com.
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Download PDF here, http://www.meresearch.org.uk/wp-content/uploads/2018/05/BreakthroughSpring2018.pdf or read online here, http://issuu.com/meruk/docs/breakthroughspring2018

Screenshot of the contents list
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TiredSam said:
I wouldn't even wipe my dog's arse with page 4.
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I've just read the article about LP. I'm astonished that MERUK took the Crawley LP trial seriously enough to waste 2 pages of their newsletter on this junk - and even seemed to suggest Crawley's study had any credibility. MERUK have just gone down in my estimation. Take this, for example:

Only subjective, self-reported outcomes were evaluated, with participants reporting their own levels of physical function, fatigue, pain, etc. using various questionnaires. These methods have been validated, are widely used, and definitely have their place in clinical trials. However, there is no denying the value of objective measures that can be applied consistently and are not subject to individual interpretation, and can help clarify the biological changes taking place, if any.
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Have they not read the PACE critiques pointing out that subjective measures are only OK in double blinded trials, not in open label trials, and especially not in ones where the 'treatment' involves brainwashing the kids to say they are better. :banghead:
 
Trish said:
I've just read the article about LP. I'm astonished that MERUK took the Crawley LP trial seriously enough to waste 2 pages of their newsletter on this junk - and even seemed to suggest Crawley's study had any credibility. MERUK have just gone down in my estimation.
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So much for leaving the CMRC.
compare to the statement made by IiME:

"We view this as a pyramid business – unregulated, unaccountable and unscientific.
Claims that it cures people with ME we find as risible hype."

"The LP business has no place in serious research and cannot be researched seriously,
as it tells people to keep its methods secret, to deny they have ME."

full statement here:http://www.investinme.org/IIMER-Statement-1709-01.shtml
 
MERUK has a new CEO:
"
ME Research UK Board of Charity Trustees is delighted to announce the appointment of Simon Phillips as Chief Executive Officer (CEO) of the charity.

Simon comes to us with a wealth of charity sector experience that complements our existing team. We are all looking forward to working with him and the team to build on our position as the UK’s leading charity funding biomedical research into ME.

Simon adds, “I am extremely proud to have been appointed to this position and I very much look forward to helping the organisation deliver its mission of energising ME research."

http://www.meresearch.org.uk/news/new-ceo-simon-phillips/
 
Breakthrough Spring 2019
The Spring 2019 issue of Breakthrough magazine is now available to download from our website. It includes articles on the search for anti-citrullinated antibodies, reading problems in ME/CFS, the involvement of severely ill patients in research, the parliamentary debate on research, and new treatment avenues using pharmacogenomics, along with all the regular features.
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PDF version, http://www.meresearch.org.uk/wp-content/uploads/2019/05/BreakthroughSpring2019.pdf
Online Issuu version, http://issuu.com/meruk/docs/breakthroughspring2019

Contents
  • Editorial
  • AmazonSmile
  • Parliamentary debate
  • Spring Prize Draw
  • Treatment avenues
  • CMRC proposal
  • Autoantibodies
  • Our current projects
  • Reading difficulties
  • Severely ill patients
  • Research bites
  • Friends united
 
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