United Kingdom: ME Research UK (MERUK) News

Not sure how long they've been doing this but the ME Association also seem to have had the same idea - https://www.s4me.info/threads/me-association-index-of-published-me-cfs-research.2493/

http://www.meresearch.org.uk/information/research-database/

 

MERUK have had this sort of thing going in some form for some time I think.

 

I've been using the MERGE one for many years

 

Sorry I forgot that not every one would know this. I get stuck times.

 

Download PDF here, http://www.meresearch.org.uk/wp-content/uploads/2018/05/BreakthroughSpring2018.pdf or read online here, http://issuu.com/meruk/docs/breakthroughspring2018

Screenshot of the contents list

 

Why is anyone surprised that the LP trial reported positive results? That is the expected result in an unblinded trial with subjective measures involving an intervention that consists of brainwashing to deny one's symptoms.

 

I remember thinking that LP piece was very weak when I read it too, and especially in comparison to Tuller's examination of it from December: http://www.virology.ws/2017/12/13/trial-by-error-the-smile-trials-undisclosed-outcomes/

 

So much for leaving the CMRC.
compare to the statement made by IiME:

"We view this as a pyramid business – unregulated, unaccountable and unscientific.
Claims that it cures people with ME we find as risible hype."

"The LP business has no place in serious research and cannot be researched seriously,
as it tells people to keep its methods secret, to deny they have ME."

full statement here:http://www.investinme.org/IIMER-Statement-1709-01.shtml

 

Thanks for sharing this, @Andy. I’ve never seen this magazine before. Good to read one that focuses on research in an accessible and unemotional way.

 

MERUK has a new CEO:
"
ME Research UK Board of Charity Trustees is delighted to announce the appointment of Simon Phillips as Chief Executive Officer (CEO) of the charity.

Simon comes to us with a wealth of charity sector experience that complements our existing team. We are all looking forward to working with him and the team to build on our position as the UK’s leading charity funding biomedical research into ME.

Simon adds, “I am extremely proud to have been appointed to this position and I very much look forward to helping the organisation deliver its mission of energising ME research."

http://www.meresearch.org.uk/news/new-ceo-simon-phillips/

 

Sad that I now have so little respect for the UK charity sector that this sounds bad to me: "Simon comes to us with a wealth of charity sector experience".

 

Yep. Wish I could like that post more than once.

 

I remember the job ad specified a salary of £35,000-£40,000 so at least a fairly low salary for a CEO.

 

Table of contents

• Welcoming our new CEO
• Recycling for charity
• Sir Alex Fergusson
• Shopping at Amazon
• CMRC conference
• Forward – ME group
• Easyfundraising
• Immune cells and the brain
• Muscle function abnormalities
• Research Bites
• Friends United

http://www.meresearch.org.uk/information/breakthrough-magazine/
PDF format, http://www.meresearch.org.uk/wp-content/uploads/2019/01/BreakthroughAutumn2018.pdf
Online version, https://issuu.com/meruk/docs/breakthroughautumn2018

 

PDF version, http://www.meresearch.org.uk/wp-content/uploads/2019/05/BreakthroughSpring2019.pdf
Online Issuu version, http://issuu.com/meruk/docs/breakthroughspring2019

Contents

• Editorial
• AmazonSmile
• Parliamentary debate
• Spring Prize Draw
• Treatment avenues
• CMRC proposal
• Autoantibodies
• Our current projects
• Reading difficulties
• Severely ill patients
• Research bites
• Friends united