online

Copied post Online research launched to help those with Long Covid "A free comprehensive online tool has been released today to help those suffering from Long Covid. Chronic fatigue support group, ME Support, said people with Long Covid have been calling for more support and information for...

Abstract (1) Background: Telerehabilitation allows health professionals to monitor patients without face-to-face contact. The objective was to analyze the effects of a telerehabilitation program based on aerobic exercise in women with fibromyalgia at 6-month follow-up. (2) Methods...

ABSTRACT Background Fibromyalgia (FM) is a diagnostically controversial syndrome characterized by chronic widespread pain, fatigue, sleep difficulties, cognitive dysfunction, and mental health symptoms. Though online peer support groups (OPSGs) may help persons with FM access support and...

ABSTRACT Background: There are around 1.3million people in the UK living with the devastating psychological, physical and cognitive consequences of Long COVID. UK guidelines recommend that Long COVID symptoms are managed pragmatically with holistic support for patients’ biopsychosocial needs...

Does anyone know of papers exploring online ME patient communities? Don't know quite where to start..

ABSTRACT Background: Long COVID is an emerging public health concern. A growing number of individuals are experiencing prolonged multifaceted health challenges and accompanying social impacts after COVID-19 infections. Support services in the United Kingdom remain insufficient and fraught with...

Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions. We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...

Abstract Objective To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of Communities of Practice. Methods A closed Facebook group was created to gather qualitative data from participants diagnosed with CFS/ME (n = 22). Data were...

Effectiveness of Internet-Based Cognitive Behavior Therapy (Fatigue in Teenagers on the Internet) for Adolescents With Chronic Fatigue Syndrome in Routine Clinical Care: Observational Study Abstract Background: Internet-based cognitive behavior therapy (I-CBT) for adolescents with chronic...

ABSTRACT Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating condition that can negatively affect physical and mental health [1,2]. People with ME/CFS report lower perceived levels of social support, which further exacerbate challenges with mental health and...

(I haven't listened to it so cannot comment on content)

Highlights • Guided graded exercise self-help (GES) can lead to sustained improvement in patients with chronic fatigue syndrome. • There was no evidence of greater harm after GES compared to specialist medical care at long-term follow-up. • The study showed that GES was probably...

Abstract Objectives To examine the level of activity in online discussion forums for chronic fatigue syndrome/myalgic encephalopathy (CFS/ME) compared to other disorders. We hypothesized the level of activity to be higher in CFS/ME online discussion forums. Design Observational study Setting...

Preventing Post-Exertional Malaise – Pacing and Energy Management in ME/CFS An online talk by Staci Stevens and Dr Mark Van Ness of the Workwell Foundation for Sheffield ME & Fibromyalgia Group 2:30pm Thursday 22nd October More info here...

Moderator note: This post has been moved from this thread and following posts are a mix of moved posts and posts from a new thread. ____________________ BBC: Coronavirus: NHS England launches tool to aid long-term recovery "Your Covid Recovery" will be an online portal for people in England...

I’m always looking for purpose in my life. For me that’s a way to contribute. My ability is very fluctuating. Sometimes I can do a lot and think through complex ideas, physical work etc but others I can barely think through how to do a routine task and certainly can’t leave home, or even bed...

Free full text: https://www.sciencedirect.com/science/article/pii/S2214782919300910

Has anyone done /reviewed the online program from the Northeastern University School of Nursing? Wondering if we can recommend it (in NZ). (and presuming it can be accessed outside the US) Title: Online Program Why Can't This Child Get to Class? Learn how ME/CFS keeps youth from attending...

Open access at https://www.jmir.org/2019/3/e11276/

Ron Davis said, “I would like to use it as a teaching tool, to have medical students read it and ask them, ‘How many things can you find wrong with this study?’” (https://www.statnews.com/2016/09/21/chronic-fatigue-syndrome-pace-trial/) This free online course on the Design and Interpretation...