nhs

  1. Sly Saint

    NHS Scotland website not yet updated Nov 2021

    This website is in need of updating. The first page isn't too bad but...... Chronic fatigue syndrome (CFS) GET and CBT stuff is still there and then there is this Living with chronic fatigue Even in its mildest form, chronic fatigue can have a significant emotional and financial impact on...
  2. ProudActivist

    NHS England web pages on ME/CFS

    I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page. https://www.nhs.uk/conditions/multiple-sclerosis/ I thought I would check the CFS/ME page...
  3. Sly Saint

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    "After 18 months of Covid, award-winning journalist Matthew Syed travels the country asking some tough questions about the performance of our much-loved NHS" https://www.channel4.com/programmes/clapped-out-is-the-nhs-broken-dispatches/on-demand/72600-001 I watched some of this last night and...
  4. M

    UK survey - Changes to eligibility for non emergency patient transport

    From PATIENTS ASSOCIATION Newsletter, They are collecting info on patient experience via a short survey (closes this w/e) "NHS England has conducted a review of non-emergency patient transport services (NEPTS). These services help people to get to NHS appointments if they are not able to travel...
  5. Blueskytoo

    NHS CRD Report 22: The effectiveness of interventions used in the treatment/management of CFS and/or ME in adults and children (2002) Bagnall et al

    Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020 MEpedia states this on the page about the York Centre for Reviews and Dissemination - looks like Wessely had his sticky fingers all over this, which really shouldn’t surprise us at all... “Professor...
  6. Kitty

    UK: NHS data sharing – deadline imminent

    I'm not sure how widely known this initiative is, but NHS Digital is planning to scrape enormous quantities of data from UK patient records to share with third parties (it's not clear who these are, but they could well be insurance providers and other commercial interests). The data will be...
  7. Sly Saint

    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    https://www.virology.ws/2021/04/23/trial-by-errors-why-have-experts-in-mus-spent-ten-years-mis-citing-a-study-about-costs-to-the-nhs/
  8. Andy

    A Multidisciplinary NHS COVID-19 Service to Manage Post-COVID-19 Syndrome in the Community, 2021, Parkin et al

    Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent physical, cognitive and/or psychological symptoms that continue for more than 12 weeks after illness and which are not explained by an alternative...
  9. Andy

    UK: NICE Blog: How NICE is improving patient safety, Nov 2020

    https://www.nice.org.uk/news/blog/how-nice-is-improving-patient-safety
  10. Hutan

    The 2018 UK NHS Digital annual report on the Improving Access to Psychological Therapies programme: a brief commentary, 2019, Moller et al

    https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2235-z Naomi Petra Moller, Gemma Ryan, Jasmine Rollings & Michael Barkham Abstract This commentary examines publicly available information on 2017–2018 outcomes in the UK government’s Improving Access to Psychological...
  11. Sly Saint

    Acceptability and Effectiveness of NHS-Recommended e-Therapies for Depression, Anxiety, and Stress: Meta-Analysis: Simmonds-Buckley 2020

    https://www.jmir.org/2020/10/e17049/
  12. Hutan

    Specialist treatment of CFS/ME: a cohort study among adult patients in England, 2017, Collin and Crawley

    Abstract Background NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year. Variation in therapy programmes and treatment outcomes across services has not been described. Methods We described treatments provided by 11 CFS/ME...
  13. Andy

    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    https://www.virology.ws/2020/10/01/tria-by-error-royal-society-of-medicine-webinar-on-long-covid/
  14. Esther12

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    Due in the Journal of the Royal Society of Medicine https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html
  15. Sly Saint

    United Lincolnshire Hospitals NHS Trust is looking to employ a Spiritual Healer / Reiki Therapist Aug 2020

    https://edzardernst.com/2020/08/united-lincolnshire-hospitals-nhs-trust-is-looking-to-employ-a-spiritual-healer-reiki-therapist/
  16. Kalliope

    UK - NHS England online tool and clinics for long Covid.

    Moderator note: This post has been moved from this thread and following posts are a mix of moved posts and posts from a new thread. ____________________ BBC: Coronavirus: NHS England launches tool to aid long-term recovery "Your Covid Recovery" will be an online portal for people in England...
  17. InitialConditions

    [UK] Is it possible to obtain your own NHS scan imagery?

    Anyone done this? I assume I have a right to the images.
  18. Andy

    Advice from 'experts' on post-viral fatigue following Covid-19 (NHS Oxford Health, Science Media Centre, ...)

    Not a recommendation. https://www.oxfordhealth.nhs.uk/wp-content/uploads/2020/03/OH-011.20-Coronavirus-and-fatigue-v2.pdf Copy of document attached.
  19. Sly Saint

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust for the rogues gallery of the 50 members of this team see https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1
  20. John Mac

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    North Bristol NHS Trust: Foundation Phase Online Course This has appeared today. It sounds very BPS But I was intrigued by this statement: I wasn't aware that the NHS were doing this. A step in the right direction but nowhere far enough, maybe just delaying tactics. They could just drop the...
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