This website is in need of updating. The first page isn't too bad but......
Chronic fatigue syndrome (CFS)
GET and CBT stuff is still there and then there is this
Living with chronic fatigue
Even in its mildest form, chronic fatigue can have a significant emotional and financial impact on...
I was looking at the MS page in the NHS website yesterday and noticed that it has a clear link to a guide for accessing care services at the bottom of the page.
https://www.nhs.uk/conditions/multiple-sclerosis/
I thought I would check the CFS/ME page...
"After 18 months of Covid, award-winning journalist Matthew Syed travels the country asking some tough questions about the performance of our much-loved NHS"
https://www.channel4.com/programmes/clapped-out-is-the-nhs-broken-dispatches/on-demand/72600-001
I watched some of this last night and...
From PATIENTS ASSOCIATION Newsletter,
They are collecting info on patient experience via a short survey (closes this w/e)
"NHS England has conducted a review of non-emergency patient transport services (NEPTS). These services help people to get to NHS appointments if they are not able to travel...
Split from NICE ME/CFS guideline - draft published for consultation - 10th November 2020
MEpedia states this on the page about the York Centre for Reviews and Dissemination - looks like Wessely had his sticky fingers all over this, which really shouldn’t surprise us at all...
“Professor...
I'm not sure how widely known this initiative is, but NHS Digital is planning to scrape enormous quantities of data from UK patient records to share with third parties (it's not clear who these are, but they could well be insurance providers and other commercial interests). The data will be...
Abstract
The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent physical, cognitive and/or psychological symptoms that continue for more than 12 weeks after illness and which are not explained by an alternative...
https://bmcpsychiatry.biomedcentral.com/articles/10.1186/s12888-019-2235-z
Naomi Petra Moller, Gemma Ryan, Jasmine Rollings & Michael Barkham
Abstract
This commentary examines publicly available information on 2017–2018 outcomes in the UK government’s Improving Access to Psychological...
Abstract
Background
NHS specialist chronic fatigue syndrome (CFS/ME) services in England treat approximately 8000 adult patients each year. Variation in therapy programmes and treatment outcomes across services has not been described.
Methods
We described treatments provided by 11 CFS/ME...
Due in the Journal of the Royal Society of Medicine
https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf
https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html
Moderator note: This post has been moved from this thread and following posts are a mix of moved posts and posts from a new thread.
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BBC: Coronavirus: NHS England launches tool to aid long-term recovery
"Your Covid Recovery" will be an online portal for people in England...
Persistent Physical Symptoms Research and Treatment Unit - Kings College London; South London and Maudsley NHS Trust
for the rogues gallery of the 50 members of this team see
https://www.kcl.ac.uk/research/persistent-physical-symptoms-research-and-treatment-unit-1
North Bristol NHS Trust: Foundation Phase Online Course
This has appeared today.
It sounds very BPS
But I was intrigued by this statement:
I wasn't aware that the NHS were doing this. A step in the right direction but nowhere far enough, maybe just delaying tactics.
They could just drop the...
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