I’ve been fully bedbound since September 2022 as a result of severe malnourishment from my gastroparesis. Two months ago I had surgery for it and since then I’ve been able to eat orally again, so I’ve been putting back on the weight that I’d lost and subsequently have more energy.
I haven’t...
Decline in Mobility and Balance in Persons with Post–COVID-19 Condition
Feldman, Debbie Ehrmann; Guillemette, Albert; Sanzari, Juliana; Youkheang, Stéphane; Mazer, Barbara
OBJECTIVES
Post–COVID-19 condition (PCC) may impact mobility and balance and affect physical function. The objectives of...
My Motabilty lease was extended by 2 years (low mileage) until 29 November 2022. We were wondering whether to go for an electric car, so OH had a bit of a poke around their website, but it seems there isn't a lot of choice there yet, plus I'm worried about charging when out and about in Wales...
Key Points
Question What is the association of a COVID-19 diagnosis and mobility and physical function among community-living middle-aged and older Canadians during the initial pandemic lockdown in 2020?
Findings This cohort study of 24 114 participants found that community-living...
There are some trials and projects studying the use of telepresence robots for chronically ill children, including children with ME.
I wonder whether these robots could be of use for adults too, for example for participating in projects discussed here (members only) ...
https://denver.cbslocal.com/2020/01/02/electric-scooter-stolen-denver-capitol-hill-neighborhood/
(@Hell..hath..no..fury... have the teletubbies emigrated?)
While doing some research on the Interwebz on how to limit the ill-effects of being bedbound, I came across this article for nurses on a site called Nurselabs on how to approach patients who have limited mobility, particularly those who are bedridden.
There were two things I found interesting...
article here
https://www.cornwalllive.com/news/cornwall-news/woman-trapped-inside-home-describes-3286934
(not sure why she is having to crowd fund for this(?) there is the Motability scheme)
https://www.motability.co.uk/about-the-scheme/personal-independence-payment/
My latest CHRONIC ELEPHANT BLOG is about using a mobility scooter and other aids.
It also links to an article I wrote on another blog about choosing a scooter, and using it once you've got it
https://thechronicelephant.blogspot.com/2019/08/getting-mobile-with-penelope-pitstop.html
I AM...
Our application for a blue badge has been turned down.
My daughter is a bit upset, she had anticipated getting out and about a bit more, she is effectively housebound.
I applied on her behalf in autumn, unfortunately a follow up information request went to her spam folder in November. I cleared...
I posted in the last thread @Mattie travelling by car. Now I need to ask about air travel and carrying wheelchairs.
About 4 weeks ago, I did the 7 hour car journey I mentioned and it did not go well. We decided to stop halfway and booked a decent hotel. I also decided to stay in bed at home...
Travelling is becoming increasingly difficult for me.
Short trips by car can be done if absolutely necessary, but longer distances are getting almost impossible.
My wife and caregiver would like a change of scenery sometimes (understandably); we used to travel a lot and were always very...
After a recent bad relapse, I've come to the decision that I would like to try and apply for a wheelchair. I could of used one for a long time really, but pride gets in the way.
There are probably 100s or even 1000s things I've missed over the years I could of gone to if I'd had the courage to...
So I am finally (grudgingly) admitting to myself that life might be less crashy and my horizons expanded a bit if I had a power wheelchair. I'd love to hear from others who have one what features you love/hate/wish you had. I only have a carer one day a week, so the thing would ideally be...
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