#millionsmissing

This thread is intended to get an overview of ME/CFS news in France.

full article https://www.nature.com/articles/d41586-023-01472-5

Threads about different articles have been merged Article about today's protest at the White House from MedPage Today: "Long COVID, ME/CFS Patients Protest in Front of White House" https://www.medpagetoday.com/infectiousdisease/longcovid/100806 There was also a mention of the protest, and...

This information is from the ME Action website, see http://www.meaction.net/2017/10/30/new-living-w-me-support-group-2/ The November and December schedule for the Living w/ ME Support Group has just been announced: Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the...

A thread for article, events and anything else related to ME Awareness Day/Week/Month 2021.

I thought it might be useful to have a thread on all the wonderful initiatives for ME Awareness day/week/month 2020. Big campaigns can, of course, have their own thread but I think it would nice to have an overview of everything, including the smaller projects that are taking place all over the...

#MEAction UK and #MEAction Scotland have created a film for #MillionsMissing this year. Really grateful to be able to include expert testimony from Professor Chris Ponting and Dr Nina Muirhead, and for the many video submissions from people with ME. It was both fun, challenging and deeply...

A Campaign for Trying Times Leave No One Behind... is the theme of this spring’s Millions Missing Campaign for ME Health Equity in Canada — a fitting theme right now, as plans roll out across the country to gradually ease restrictions caused by the pandemic. Campaigning this year will...

email from #MEAction

This year #MillionsMissing global protests will take place between May 9th–17th. #MillionsMissing Germany announced the participating cities from Germany today: :hug: Aachen, Erlangen, Freiburg, Gütersloh, Halle, Münster and Ravensburg :hug: These are more cities than in the years before (we...

From an e-mail from #MEAction: It’s already time to start thinking and planning for #MillionsMissing 2020! This year #MillionsMissing global protests will take place between May 9th-May 17th. Our registration pages and toolkits will be available soon. #MillionsMissing is a global campaign...

Prof @Chris Ponting made a cracking seven-minute speech at the Glasgow millions missing event, captured here It really is worth a listen. He talked about a range of things including progress in science, that ME scientists are listening to legitimate questions and concerns about science and...

Hi, I have everything ready for the Sunday Millions Missing event except one item. I want to create a poster to put up near our table. I ended up getting a tri-fold display board that will stand on its own (Digression - I was going to use plain piece of poster board but when I tried leaning it...

https://www.meaction.net/2019/05/02/millionsmissing-from-me-your-stories/ Loads of different stories, so should allow for almost anyone to be offended by the "identity politics" being "played" here. Either that or it's just a collection of stories put forward by a random selection of people...

My husband and I are planning a small #MillionsMissing event at our local library in Beaverton, Oregon. We plan to set up a small table in front of the library for a couple of hours on the afternoon of May 12. We'll hand out pamphlets and answer questions. I thought having some bookmarks made...

https://my.meaction.net/events/millionsmissing-uk-organisers-call To join the call on a computer or mobile phone: https://bluejeans.com/158685065/6742 This event is mainly aimed at UK organisers, but anyone wanting to know more about organising an event is welcome.

From last year but don't think it was posted. From the South China Morning post. https://www.scmp.com/lifestyle/health-wellness/article/2157439/why-me-or-yuppie-flu-aids-was-once-misunderstood-or also covers #MillionsMissing, Ron Davis, OMF shame we don't get coverage like this in UK. eta:

Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002. Mentions PACE trial and GET being discredited, #MillionsMissing campaign. Also talks to her husband re NICE guidelines and debate in HofC. good stuff...

https://www.meaction.net/2019/02/26/announcing-millionsmissing-2019-join-us/

https://puffinsandpenguins.wordpress.com/2019/02/22/post-thirty-three-this-is-how-we-become-the-millionsmissing-a-new-project-for-2019/