hospital

Some threads have been merged to create this news thread The future of the NHS: no longer the envy of the world? Picked up from social media. Article in the Lancet London School of Economics have this project with an independent commission looking to identify big challenges faced by the NHS...

https://meassociation.org.uk/2024/05/a-new-support-pack-for-anyone-with-me-cfs-going-to-hospital/ In response to increasing requests for advocacy support from people with ME/CFS in hospital, including those more severely affected, The 25% ME Group, Action for M.E., Blue Ribbon for the Awareness...

How to be an Effective Advocate for a Disabled Patient https://www.disabledginger.com/p/how-to-be-an-effective-advocate-for Content warning: She lists some examples of patients who have died in the hospital including some who had ME/CFS.

"In response to increasing requests for advocacy support from people with ME/CFS in hospital, including those more severely affected, The 25% ME Group, Action for M.E., Blue Ribbon for the Awareness of ME and the ME Association have co-produced a new resource. Supporting people with ME/CFS in...

I'd like examples of people with ME visiting hospital and not being cared for appropriately, to share with people working in healthcare. I remember one person was in the news quite recently and I'm sure there are more. Thanks in advance!

Discontinuation of Universal Admission Testing for SARS-CoV-2 and Hospital-Onset COVID-19 Infections in England and Scotland Theodore R. Pak; Chanu Rhee; Rui Wang; Michael Klompas Link | PDF (JAMA Internal Medicine)

Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS other authors include Anna Gregorowski (BACME) Hiremath, S.; Doukrou, M.; Flannery, H.; Carey, C...

https://www.thetimes.co.uk/article/hospital-has-left-my-daughter-in-me-agony-claims-mother-3kvrdzwjl Hospital has left my daughter in ME agony, claims mother July 17 2022, 12.01am Ella Copley with her mother, Joanne McKee, before her illness Ella Copley, 17, from Tingley, West Yorkshire, has...

This is a post collating what I learned, when trying to access surgery as someone with the symptoms of Severe / Very Severe ME. I hope it is concise and can help support others who find themselves in my situation or similar situations. (Note: I had a thread on this forum where I shared all my...

Are there any hospitals in the UK that are more ME aware? I am 33 and, after years, have got a good quality of life back. I work and am trying to have children. However, I now need foot surgery and am terrified of the dismissive attitude of the doctors I have talked to and the idea that...

Abstract Background and Objectives: There is some evidence that knowledge and understanding of ME among doctors is limited. Consequently, an audit study was carried out on a group of hospital doctors attending a training event to establish how much they knew about ME and their attitudes towards...

https://www.sciencedirect.com/science/article/pii/S1319562X20300887 (is this the study that Karl Morten refers to?)

If money were no object, describe your perfect ME hospital. For example, I would build sound proofed rooms.

I couldn't agree more with what is said in this article. During my hospital stay earlier this year, once my procedures were done to widen my bile duct and remove my gallstone, I would say my condition deteriorated due to sleep deprivation...

Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as well as crowdsourcing a set of best practices for hospitals. The former will eventually be packaged into handouts patients can give their surgeon...