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Design Your Own ME Hospital

Discussion in 'General ME/CFS News' started by DigitalDrifter, Sep 9, 2019.

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  1. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    If money were no object, describe your perfect ME hospital. For example, I would build sound proofed rooms.
     
  2. Annamaria

    Annamaria Senior Member (Voting Rights)

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    Soft closing doors.

    Light-excluding blinds and dimmable electric lights.

    No chemical scents and smells.

    Organic mattresses and non-allergenic bedding.
     
  3. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Staff who have empathy and have actually been educated about ME
     
    Simbindi, Yessica, EzzieD and 13 others like this.
  4. Samuel

    Samuel Senior Member (Voting Rights)

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    as many services and procedures as possible done on location, not in the hospital, for housebound and bedridden. rotation on duty for this so that personnel get to see what it is like. comprehensibe training for intolerances. full funding for this. more experienced personnel upon request for the most severe.

    figuring out more services that can be done on location. major program at us nih.

    ambulances quiet dark. drivers trained to drive smoothly.

    all personnel trained fully on the disease and sibling diseases. all means all. janitors food staff launderers. intolerances described in detail and personnel tested regularly on their knowledge of them.

    place to lie down quet and dark in emergency room.

    front page news if a hospital unnecessarily makes you sicker.

    complex diseases require more time.

    priority and favorable triage for severe and complex cases where there might be more risk of complications.

    if you have backward behavior toward the disease you get fired. visibly. legal protection for hospitals that do this. risk for hospitals that do not.

    criminal trials considered extremely normal for cases of mistreatment. prosecutors well versed in relevant facts adn ready to go. specific laws against misopathy.

    vettiung for hospitals in accreditation renewal and similar processes to include all of the above.
     
    Last edited: Sep 9, 2019
  5. strategist

    strategist Senior Member (Voting Rights)

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    The perfect hospital is the one that cures me.
     
    Yessica, ladycatlover, MeSci and 8 others like this.
  6. InitialConditions

    InitialConditions Senior Member (Voting Rights)

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    BPS lot on display in the basement.
     
    Yessica, alktipping and Annamaria like this.
  7. Yvonne

    Yvonne Established Member

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    No beeping alarms
     
    Yessica, Annamaria, Sarah94 and 3 others like this.
  8. ProudActivist

    ProudActivist Senior Member (Voting Rights)

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    Doctors that are able to connect across specialisms and look at the whole body not just their own part. Also that listen and take time to discuss options and information.
     
    ladycatlover, EzzieD, Trish and 2 others like this.
  9. DigitalDrifter

    DigitalDrifter Senior Member (Voting Rights)

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    There would be a tilt-table to diagnose those with POTS/OI.
     
    ahimsa, Yvonne and Trish like this.

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