harassment

IoS letters, emails & online postings (2 December 2012) https://www.independent.co.uk/voices/letters/ios-letters-emails-online-postings-2-december-2012-8373777.html Chronic Fatigue Syndrome/ME is a debilitating condition affecting some 1 per cent of the UK population (“ME: bitterest row yet in...

The newspaper Morgenbladet has a paywalled article today about a recent ME seminar in Oslo. The title is: Seminar for ME researchers required security and police on standby: - They are trying to get us The article begins with psychology professor and the organiser for the seminar Silje Endresen...

I think this is worth reading all of: https://www.nature.com/articles/d41586-022-02766-w Posting because it includes a link to the Andrew Anthony Guardian piece on Sharpe: There's also this Nature editorial introducing it: https://www.nature.com/articles/d41586-022-02818-1 These pieces...

paywalled https://www.telegraph.co.uk/health-fitness/doctors-diary/became-target-militants/ How I became a target for the ME militants The current row over Nice guidelines on chronic fatigue syndrome is strikingly similar to the one I found myself caught up in 20 years ago DR MICHAEL...

This post has been copied and the following discussion moved from this thread: What we're not being told about ME - UnHerd (Tom Chivers) With reference to ME sufferers turning up and harassing researchers... Really? After 35 years of illness, I count it as a win to get up and in to my garden...

Proponents of a biopsychosocial view of ME/CFS don’t respond well to criticism. Last autumn, Dr. Jörgen Malmquist published a book on ME/CFS in Swedish. It was available at the website bokus.com. I wrote a review; and, as it is a bad book that is full of misconceptions, the review was negative...

Last week, an old story was recounted to a new audience. During the March 30, 2021 NIH telebriefing with the ME/CFS community, Dr. Vicky Whittemore said that there had been death threats against grant reviewers in the past, and that this was one reason why NIH is now withholding the names of...

Hey Someone anonymous from Norway have produced a very thorough two part series on different topics (PACE, Lightning Process etc.) It has english subtitles so everyone can watch

Article: https://www.timeshighereducation.com/features/standing-expertise-fools-errand

https://www.sciencemediacentre.org/wp-content/uploads/2019/10/Advice-for-Researchers-Experiencing-Harrasment-2019.pdf "All researchers should expect their work to be scrutinised by the public, policy makers and campaigners. However, some researchers working on high-profile subjects that...

Transcript: BBC Today Programme March 2019 (clip) An Oxford professor has stopped his work on chronic fatigue syndrome also known as ME because he says he's faced a barrage of online abuse from patients and campaigners. Some context… (slide) Over 80 Charities are opposed to his treatments...

Jst scanning the front pages this mornin, to be sucker punched with this. i cant find the story online but i not too good so maybe someone ese can track it dowm https://www.bbc.co.uk/news/blogs-the-papers-47701676 scroll down to see it, bottom thumb nal on the i front page :(

https://notthesciencebit.net/2019/03/21/if-you-spend-20-years-gaslighting-your-patients-perhaps-you-should-think-twice-before-accusing-them-of-trolling-you/amp/?__twitter_impression=true

The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last week? A rare example I understand not wanting to fuel Sharpe's efforts by linking to his article more than necessary BUT of course it did blow up...

Fréa Lockley: The establishment media has launched a vicious "war" on chronically ill people The media has upped the ante on a vicious and abusive war on chronically ill people. Doctors involved in the controversial PACE trial have lashed out, claiming they can’t continue their work because of...

https://dpac.uk.net/2019/03/biopsychosocial-lobby-and-right-wing-media-attack-pwme/

https://medium.com/@lcelliott2/m-e-patients-and-the-researchers-that-silence-them-c2b81111ee0

I hesitate to put "not a recommendation" because the article is so bad it almost makes some kind of other point than the PR campaign meant. When you have allies like Natural News and Rod Liddle... It's completely pointless to read for the substance, it almost reads like a parody. I particularly...

I often get the impression that Prof Simon Wessely, Prof Michael Sharpe and others from the Wessely School of psychiatrists prey on naive young journalists. I suspect these psychiatrists are using their skills in psychology to butter up the journalist, perhaps over a few beers in a bar, playing...