forward-me

Rather than continue our individual threads every time minutes are published, this is meant as a home for all future minutes.

http://www.forward-me.org.uk/10th%20July%202019.htm write up at MEA https://www.meassociation.org.uk/2019/09/forward-me-royal-medical-colleges-role-encouraging-clinicians-to-listen-to-patients-11-september-2019/

Agenda topics of interest NICE GDG Call to Tender RCGP Conference 2019 (Liverpool) Research DWP Any other business http://www.forward-me.org.uk/8th%20May%202019.htm

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

Agenda Introduction and Apologies Introduction of Professor Helen Dawes’ Research Discussions and questions relating to survey results Minutes of meeting held on 21st November NICE Guideline Development Group progress RCGP conference report and future arrangements DWP, IAS, Capita...

Merged thread https://www.actionforme.org.uk/news/international-m.e.-advocacy-our-latest-project/

#MEAction article with Forward ME Group statement here Take the Survey The survey closes on 31st January 2019. We are counting on the ME community to spread this across all of their networks, both online and in-person. Tag me if any technical problems with survey and I'll make sure they...

Introductions and Apologies. Parliamentary Ombudsman’s Office Questions and Discussions Minutes of meeting held on 17 July and matters arising RCGP Conference NICE Public Relations. Research DWP CMRC AOCB http://www.meresearch.org.uk/news/forward-me-group-minutes-21st-november-2018/

http://www.meresearch.org.uk/news/forward-me-group-minutes-17th-july-2018/

The stand will be manned or womanned from 4-6 Oct. Workshops are on 4 Oct. "Dr Charles Shepherd, Hon. Medical Adviser, ME Association. Following a meeting last year with Professor Kamila Hawthorne, Vice Chair Professional Development at the Royal College of General Practitioners (RCGP), it...

(I'm not on Facebook so I don't know any more than this) Source: ME Association Date: August 31, 2018 URL: ME/CFS Workshop | Clinical Learning 2 | Thursday 4 October 4.00-5.00pm ---------------------------------------------------------- Key messages for primary care on the diagnosis and...

https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting here. I can’t see much else in significant developments. Another BACME member is involved. Dr Louis nacul was there as an observer. Mainly a...

http://www.forward-me.org.uk/1st May 2018.htm Long agenda with some interesting topics: 1. Carol Monaghan becomes deputy Chair 2. Afme's new advocacy member based in Geneva is introduced 3. An ME patient, Mrs Nina Muirhead was introduced by CS. She is a doctor, a surgeon, did not cover ME in...

ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018 http://www.meassociation.org.uk/2018/04/forward-me-meeting-with-dr-diane-oleary-about-possible-who-coding-changes-21-april-2018/ Forward ME Notes of meeting held on Wednesday 28 March...

http://www.meresearch.org.uk/news/forward-me-group-letter-science-media-group/ This letter refers to the 'fact' sheet discussed in this thread, https://www.s4me.info/threads/science-media-centre-cfs-me-factsheet-for-journalists-the-illness-and-the-controversy.3104/

http://www.meresearch.org.uk/news/forward-me-group-bodily-stress-syndrome/ The briefing paper is also available as a PDF here, http://forward-me.org.uk/Reports/BODILY STRESS SYNDROME INFO SHEET.pdf

Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018...

Discussed Green Paper on Mental Health Services for children Workshop on review of NICE Guideline 16 January 2018 Royal College of General Practitioners Conference, Glasgow, October DWP Any other business http://www.forward-me.org.uk/7th%20February%202018.htm

Subjects discussed: Green Paper on Mental Health Services for Children NICE Workshop to be held Tuesday 16 January Royal College of GPs Conference – Glasgow http://www.forward-me.org.uk/10th%20January%202018.htm

Guest speaker was Mrs Kathryn Pugh, Deputy Head of Mental Health, Children and Young People’s Mental Health Programme, NHS England. http://www.meresearch.org.uk/news/forward-me-group-minutes-5th-december-2017/