epidemiology

  1. Andy

    Medical Research Future Fund win for Emerge Australia : Epidemiology and Health Economic Impacts of ME/CFS - Anchor Study

    https://emerge.org.au/medical-research-future-fund-win-for-emerge-australia-epidemiology-and-health-economic-impacts-of-me-cfs/#.XYxesKjYo3E
    • Andy
    • Thread
    • anchor australia economic impact emerge epidemiology me/cfs prevalence
    • Replies: 8
    • Forum: ME/CFS research news
  2. Simon M

    ME/CFS Epidemiology - sex ratios, female predominance

    Moderator note: Some posts have been copied and some posts have been moved from ME Epidemiology - prevalence and peak ages of onset Copied That’s a good list and I’m sure that’s the right way to go to really interest people in the field. I think two other findings are worth adding to the...
  3. Simon M

    ME Epidemiology - prevalence and peak ages of onset

    Moderator note: This post and the next two have been copied, and subsequent posts moved from this thread: JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff Posts about sex ratio have been moved to a new thread: ME/CFS Epidemiology - sex...
  4. Saz94

    'Recovery' statistics

    (This isn't really "news" but I didn't know where else to put this thread.) Firstly let me clarify that I am not talking about the bogus 'recovery' statistics that are propagated by the BPS lot. Rather, I am referring to hearsay that ive heard within the ME community (from people who are not...
  5. Trish

    RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

    Prognosis for childhood CFS is excellent For other conference abstracts see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/
  6. Esther12

    Measurements of Recovery and Predictors of Outcome in an Untreated CFS Sample (2019) Thomas et al.

    This post and the following ones have been moved from this thread. I was just looking at this new paper from the author: Measurements of Recovery and Predictors of Outcome in an Untreated Chronic Fatigue Syndrome Sample...
  7. C

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    Hi all, I'm trying to gather evidence for permanency of ME/CFS. The health minister says that the NDIA are using the Australia 2002 guidelines. They're are pretty old and 5 years is a long time to wait with little support. I'm using evidence in the guidelines provided by the NHMRC to try...
  8. M

    Study evaluating NICE, Oxford, and Fukuda prevalence

    I think I remember reading a UK study that characterized patients by NICE, Oxford, and Fukuda and gave the prevalence of each. Does anyone remember that study and if so, could you share the study name or link? Thanks in advance
  9. Andy

    Prevalence and characteristics of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in Poland: a cross-sectional study, 2019, Slomko et al

    Open access at https://bmjopen.bmj.com/content/9/3/e023955
    • Andy
    • Thread
    • 2019 epidemiology me/cfs paper poland slomko
    • Replies: 26
    • Forum: ME/CFS research
  10. Simone

    ME/CFS and permanency

    I’m looking for some information around permanency, which is relevant when applying for disability supports. I’ve heard 5 years used as a figure (ie: if you’ve been ill for 5 years, the chances of recovery drop off significantly). Is there any data to back that up? How would permanency be...
  11. Andy

    Epidemiology of paediatric chronic fatigue syndrome in Australia, 2019, Knight et al

    Paywalled at https://adc.bmj.com/content/early/2019/02/23/archdischild-2018-316450
    • Andy
    • Thread
    • 2019 australia epidemiology knight me/cfs paper
    • Replies: 12
    • Forum: ME/CFS research
  12. Andy

    Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service, 2019, Rowe

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00021/full
    • Andy
    • Thread
    • 2019 adolescents epidemiology me/cfs paper prognosis rowe young people
    • Replies: 48
    • Forum: ME/CFS research
  13. Andy

    Onset patterns and course of myalgic encephalomyelitis/ chronic fatigue syndrome, 2019, Chu et al

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00012/abstract ETA: Change "Paywall" to "Open access"
    • Andy
    • Thread
    • 2019 aetiology chu epidemiology me/cfs montoya paper prognosis usa
    • Replies: 52
    • Forum: ME/CFS research
  14. Andy

    Interstitial cystitis/painful bladder syndrome & associated conditions with emphasis on IBS, fibromyalgia & CFS, 2010, Nickel et al

    An old study but, as shown in this thread, https://s4me.info/threads/top-10-sc...f-citations-tweet-by-dr-mark-gutheridge.7461/, one of the most cited ME/CFS papers in the past 10 years, so thought it might be useful to have here. Paywalled at...
    • Andy
    • Thread
    • 2010 epidemiology fibromyalgia ibs interstitial cystitis me/cfs nickel symptoms
    • Replies: 0
    • Forum: ME/CFS research
  15. Sasha

    The two age peaks in onset of ME/CFS

    @Jonathan Edwards, I remember that in the other place several of us had a long discussion about what could explain the two peaks in onset-age for ME/CFS. I just saw the graph that we were discussing reproduced in Slide #25 of Karl Morten's recent talk in NZ...
  16. Trish

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning, 2018, Valdez, Proskauer et al

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning Ashley Valdez, Elizabeth E. Hancock, Seyi Adebayo, David Kiernicki, Daniel Proskauer, John R. Attewell, Lucinda Bateman, Alfred DeMaria Jr, Charles W. Lapp5, Peter C. Rowe and...
    • Trish
    • Thread
    • bateman epidemiology gender ratio lapp machine learning me/cfs prevalence proskauer rowe valdez
    • Replies: 53
    • Forum: ME/CFS research
  17. Binkie4

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall. Research financed by Solve ME/cfs.
    • Binkie4
    • Thread
    • 2018 epidemiology genetics mcgowan me/cfs paper solve mecfs initiative
    • Replies: 10
    • Forum: ME/CFS research
  18. Andy

    Old muscle in young body: an aphorism describing the Chronic Fatigue Syndrome, 2018, Pietrangelo et al

    Open access at https://pagepressjournals.org/index.php/bam/article/view/7688/7470
    • Andy
    • Thread
    • 2018 epidemiology me/cfs paper pietrangelo
    • Replies: 6
    • Forum: ME/CFS research
  19. Andy

    Epidemiology of Multiple Somatic Symptoms in the community, and its association with illness related cognitions,2018,Jones et al

    Recently registered study https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375190
  20. John Mac

    Defining the prevalence and symptom burden of those with self-reported severe CFS/ME: a ... community pilot study... (2017) Strassheim et al

    https://bmjopen.bmj.com/content/8/9/e020775
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