epidemiology

  1. Trish

    RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

    Prognosis for childhood CFS is excellent For other conference abstracts see this thread: https://www.s4me.info/threads/me-cfs-contributions-at-royal-college-of-paediatrics-and-child-health-conference-may-2019.9555/
  2. Esther12

    Measurements of Recovery and Predictors of Outcome in an Untreated CFS Sample (2019) Thomas et al.

    This post and the following ones have been moved from this thread. I was just looking at this new paper from the author: Measurements of Recovery and Predictors of Outcome in an Untreated Chronic Fatigue Syndrome Sample...
  3. C

    Request for comments: NDIS (Australian National Disability Insurance Scheme): evidence of permanency of ME/CFS with NHMRC interim guidelines

    Hi all, I'm trying to gather evidence for permanency of ME/CFS. The health minister says that the NDIA are using the Australia 2002 guidelines. They're are pretty old and 5 years is a long time to wait with little support. I'm using evidence in the guidelines provided by the NHMRC to try...
  4. M

    Study evaluating NICE, Oxford, and Fukuda prevalence

    I think I remember reading a UK study that characterized patients by NICE, Oxford, and Fukuda and gave the prevalence of each. Does anyone remember that study and if so, could you share the study name or link? Thanks in advance
  5. Andy

    Prevalence and characteristics of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in Poland: a cross-sectional study, 2019, Slomko et al

    Open access at https://bmjopen.bmj.com/content/9/3/e023955
    • Andy
    • Thread
    • 2019 epidemiology me/cfs paper poland slomko
    • Replies: 26
    • Forum: ME/CFS research
  6. Simone

    ME/CFS and permanency

    I’m looking for some information around permanency, which is relevant when applying for disability supports. I’ve heard 5 years used as a figure (ie: if you’ve been ill for 5 years, the chances of recovery drop off significantly). Is there any data to back that up? How would permanency be...
  7. Andy

    Epidemiology of paediatric chronic fatigue syndrome in Australia, 2019, Knight et al

    Paywalled at https://adc.bmj.com/content/early/2019/02/23/archdischild-2018-316450
    • Andy
    • Thread
    • 2019 australia epidemiology knight me/cfs paper
    • Replies: 12
    • Forum: ME/CFS research
  8. Andy

    Long Term Follow up of Young People With Chronic Fatigue Syndrome Attending a Pediatric Outpatient Service, 2019, Rowe

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00021/full
    • Andy
    • Thread
    • 2019 adolescents epidemiology me/cfs paper prognosis rowe young people
    • Replies: 51
    • Forum: ME/CFS research
  9. Andy

    Onset patterns and course of myalgic encephalomyelitis/ chronic fatigue syndrome, 2019, Chu et al

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2019.00012/abstract ETA: Change "Paywall" to "Open access"
    • Andy
    • Thread
    • 2019 aetiology chu epidemiology me/cfs montoya paper prognosis usa
    • Replies: 52
    • Forum: ME/CFS research
  10. Andy

    Interstitial cystitis/painful bladder syndrome & associated conditions with emphasis on IBS, fibromyalgia & CFS, 2010, Nickel et al

    An old study but, as shown in this thread, https://s4me.info/threads/top-10-sc...f-citations-tweet-by-dr-mark-gutheridge.7461/, one of the most cited ME/CFS papers in the past 10 years, so thought it might be useful to have here. Paywalled at...
    • Andy
    • Thread
    • 2010 epidemiology fibromyalgia ibs interstitial cystitis me/cfs nickel symptoms
    • Replies: 0
    • Forum: ME/CFS research
  11. Trish

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning, 2018, Valdez, Proskauer et al

    Estimating Prevalence, Demographics and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning Ashley Valdez, Elizabeth E. Hancock, Seyi Adebayo, David Kiernicki, Daniel Proskauer, John R. Attewell, Lucinda Bateman, Alfred DeMaria Jr, Charles W. Lapp5, Peter C. Rowe and...
    • Trish
    • Thread
    • bateman epidemiology gender ratio lapp machine learning me/cfs prevalence proskauer rowe valdez
    • Replies: 53
    • Forum: ME/CFS research
  12. Binkie4

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall. Research financed by Solve ME/cfs.
    • Binkie4
    • Thread
    • 2018 epidemiology genetics mcgowan me/cfs paper solve mecfs initiative
    • Replies: 10
    • Forum: ME/CFS research
  13. Andy

    Old muscle in young body: an aphorism describing the Chronic Fatigue Syndrome, 2018, Pietrangelo et al

    Open access at https://pagepressjournals.org/index.php/bam/article/view/7688/7470
    • Andy
    • Thread
    • 2018 epidemiology me/cfs paper pietrangelo
    • Replies: 6
    • Forum: ME/CFS research
  14. Andy

    Epidemiology of Multiple Somatic Symptoms in the community, and its association with illness related cognitions,2018,Jones et al

    Recently registered study https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=375190
  15. John Mac

    Defining the prevalence and symptom burden of those with self-reported severe CFS/ME: a ... community pilot study... (2017) Strassheim et al

    https://bmjopen.bmj.com/content/8/9/e020775
  16. Dolphin

    "Quality of Life of Patients with Chronic Fatigue Syndrome" (Van Heck & De Vries, 2002)

    2002 study that doesn't seem to have been cited very many times, most likely because of the journal it was published in, which was not PubMed-listed. https://www.tandfonline.com/doi/abs/10.1300/J092v10n01_03 Journal Journal of Chronic Fatigue Syndrome Volume 10, 2002 - Issue 1 Original...
    • Dolphin
    • Thread
    • 2002 de vries epidemiology me/cfs paper qol symptoms van heck
    • Replies: 1
    • Forum: ME/CFS research
  17. John Mac

    Prevalence and incidence of ME/CFS in Europe—the Euro-epiME study from the European network EUROMENE, 2018, Estevez-Lopez et al

    Prevalence and incidence of myalgic encephalomyelitis/chronic fatigue syndrome in Europe—the Euro-epiME study from the European network EUROMENE: a protocol for a systematic review https://bmjopen.bmj.com/content/8/9/e020817
    • John Mac
    • Thread
    • 2018 epidemiology estevez-lopez euromene me/cfs paper prevalence protocol review
    • Replies: 2
    • Forum: ME/CFS research
  18. J

    Epidemiology of ME and CFS

    In conjunction with the master list of facts @JaimeS is discussing in this thread (https://www.s4me.info/threads/a-masterlist-of-me-facts-the-citations-that-support-them.5315/unread), I would love help improving MEpedia's epidemiology page...
    • JenB
    • Thread
    • epidemiology jen brea me/cfs mepedia
    • Replies: 11
    • Forum: MEpedia
  19. Dolphin

    Latent class analysis of a heterogeneous international sample of patients with myalgic encephalomyelitis/chronic fatigue syndrome (Leonard Jason team)

    https://www.tandfonline.com/doi/full/10.1080/21641846.2018.1494530
    • Dolphin
    • Thread
    • 2018 epidemiology leonard jason me/cfs paper sunnquist
    • Replies: 40
    • Forum: ME/CFS research
  20. H

    The "Biology-First" Hypothesis: Functional disorders may begin and end with biology-A scoping review (2018)

    https://www.ncbi.nlm.nih.gov/pubmed/29956418 http://sci-hub.tw/https://onlinelibrary.wiley.com/doi/abs/10.1111/nmo.13394
    • hixxy
    • Thread
    • 2018 aetiology enck epidemiology me/cfs mus paper review
    • Replies: 2
    • Forum: ME/CFS research
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