See Also: Which ME/CFS charity would you donate to right now for biomedical research?
And: What are the best UK charities for ME?
Following my receipt of a 50 USD charity gift card in a giveaway which only works with US Charities, I am left wondering what charity to spend it on. In the list of...
I’ve noticed some (especially US based) charities have fundraising times when they say your donations will be matched (2x, 3x etc.) such as the OMF and MEAction.
I wonder a couple things about this:
1) Who is matching these donations?
2) If it says “matching upto 50k” and only 10k is donated...
I thought it would be useful to have a list of all the active international and national level ME/CFS charities and research foundations not specific to one research institution around the world.
We can add to it as we find them. Please post below with organisations and a website and contact...
Edit: This thread includes several other threads merged with it.
Some earlier threads on this team's work:
The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it
Dec 2017 to Jan 2018
Don Staines and Griffith
Aug 2018
Australia - Parliamentarians learn...
australia
channelopathy
charity
collaborative research
conference
funding
griffith university
marshall-gradisnik
me australia
me/cfs
meet the scientists
melastatin
ncned
staines
trpm3
My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association?
Preferably one that funds biomed research.
I'm currently supporting Invest In ME on Amazon Smile. Do you think this is the best ME research charity to support, or is there a better one I should switch to?
ME Research UK is the only other option I think, as OMF doesn't seem to be available for me as a UK Smile member.
For those who...
The following posts have been moved or copied from this thread.
With all due respect, don't you all think it's more important that orgs like MEAction be pressed on issues like taking more radical direct action (a la ACT UP) ensuring greater funding for this illness, than petition them about...
This thread has been split from
https://www.s4me.info/threads/jk-rowling-donates-£15-3m-to-edinburgh-ms-research-centre.11260/
And as I've said in another thread, since 2004, the MEA has been run by a small and relatively unchanging Board of Trustees who determine its policies and have...
Why do you +/or your family donate and/or fundraise for research?
I thought it might be useful to have a thread where people could post on this issue.
Edited to add: if you plan to leave a bequest, that counts also.
It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities
As I have argued before, research progress is most likely if all of the following are contributing significant funds to research:
(i)...
Hopefully this hasn't already been linked to, ME Research UK are asking for votes to secure a research donation [ETA: actually it's a £10k donation from MultiLotto]:
Registered Charity 1181205
I came across this charity that doesn't seem to have had a lot of activity for a while.
advisors Dr Amy Proal @Amy Proal
and Caroline Struthers @Caroline Struthers
trustees: Emma Joy, Dr Claudia Gilberg, Geoff Jones, Adam Joy...
Just came across this charity which is for people with neurological illnesses.
So that's good that they recognise ME as a neurological condition.
However, under the charities (AYME is still there) section in Online resources it cites the Cochrane Exercise review and below that Crawleys SMILE...
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