https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service
They have yet to update the website where Chronic fatigue syndrome/ME is used .
eg
Chronic Fatigue Syndrome/ME Therapy...
North Bristol NHS Trust: Foundation Phase Online Course
This has appeared today.
It sounds very BPS
But I was intrigued by this statement:
I wasn't aware that the NHS were doing this. A step in the right direction but nowhere far enough, maybe just delaying tactics.
They could just drop the...
Does anyone have a digital copy of "National Task Force on Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis. Bristol:Westcare: 1994."
https://books.google.be/books/about/Report_from_the_National_Task_Force_on_C.html?id=dfb7uAAACAAJ&redir_esc=y
(Sorry if this has already been posted.)
A MUS conference;
Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response
Wednesday 3 July 2019
The Novotel Conference Centre, Bristol
"Improve your understanding of the breadth and diversity of PPS and MUS...
This is an opportunity for members of the public to attend a free workshop:
'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...
Starts around 2.11.00
John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002. Mentions PACE trial and GET being discredited, #MillionsMissing campaign. Also talks to her husband re NICE guidelines and debate in HofC.
good stuff...
I had to share this with everyone.
What a brave doctor to stand up and say this.
As he is passionate about healing his patients and sees totally what is going wrong today with modern medicine.
https://www.facebook.com/100002383437166/posts/2048737831882311/
-4:41
323,388 Views
...according to today's announcement about the CMRC's new purpose, objectives and values:
https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/#post-50325
Should be interesting...
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
Bristol Cable article from July 2017 still accepting comments
An excellent article from last year:
"
Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid furious clashes on the validity of landmark...
http://www.virology.ws/2017/12/23/trial-by-error-bristols-complaint-to-berkeley/
Christmas Eve for me... can't think of a better way to spend it that reading about a failed attempt by Bristol Uni to apply pressure on Berkeley to shut Tuller up.
A shame that we don't get to see the letter they...
I didn't know where to put this, but thought it of interest.
From a Bristol Uni magazine in 2013 an article by Esther Crawley.
http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf
(pages 15/16 on pdf, 29/30 in mag)
Her mission:
"‘The aim of my fellowship is...
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