bristol

  1. Sly Saint

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    https://www.nbt.nhs.uk/our-services/a-z-services/bristol-chronic-fatigue-syndromeme-service They have yet to update the website where Chronic fatigue syndrome/ME is used . eg Chronic Fatigue Syndrome/ME Therapy...
  2. John Mac

    United Kingdom: North Bristol NHS Trust: ME/CFS clinic

    North Bristol NHS Trust: Foundation Phase Online Course This has appeared today. It sounds very BPS But I was intrigued by this statement: I wasn't aware that the NHS were doing this. A step in the right direction but nowhere far enough, maybe just delaying tactics. They could just drop the...
  3. ME/CFS Skeptic

    Looking for a copy of Report from the National Task Force on Chronic Fatigue Syndrome , 1994.

    Does anyone have a digital copy of "National Task Force on Chronic Fatigue Syndrome, Post Viral Fatigue Syndrome, Myalgic Encephalomyelitis. Bristol:Westcare: 1994." https://books.google.be/books/about/Report_from_the_National_Task_Force_on_C.html?id=dfb7uAAACAAJ&redir_esc=y
  4. adambeyoncelowe

    CFS in the NHS public dataset

    Link here: https://data.bris.ac.uk/data/dataset/3kp75dy7ngru4236r8t1gl71h5
  5. fossil

    Conference: Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response -Bristol, UK, July 2019

    (Sorry if this has already been posted.) A MUS conference; Medically Unexplained Symptoms / Somatic Symptom Disorder Improving the Primary Care Response Wednesday 3 July 2019 The Novotel Conference Centre, Bristol "Improve your understanding of the breadth and diversity of PPS and MUS...
  6. Simbindi

    England, Bristol: Using and understanding research evidence workshop

    This is an opportunity for members of the public to attend a free workshop: 'The workshop will give you an introduction to research and the tools and skills needed to find research evidence relating to health and assess its reliability.'...
  7. Sly Saint

    BBC Radio Bristol - March 7 (available for 28 days)

    Starts around 2.11.00 John Darvall. Interview with ME sufferer (ME for 20 years) Liz, who participated in pre PACE Frenchay trial in 2002. Mentions PACE trial and GET being discredited, #MillionsMissing campaign. Also talks to her husband re NICE guidelines and debate in HofC. good stuff...
  8. Sly Saint

    North Bristol NHS - Grieving parents become detectives after suspecting cover-up on son’s death

    https://www.mirror.co.uk/news/uk-news/grieving-parents-forced-hire-detective-13977167
  9. Sly Saint

    N. Bristol NHS: Grieving husband calls for full inquiry after mother-of-two, 49, dies of cervical cancer - despite being given the all-clear SIX times

    https://www.dailymail.co.uk/health/article-6691259/Family-demand-hospital-wide-cervical-cancer-inquiry-nurse-died-doctors-failed-spot-it.html
  10. Suffolkres

    Thoughts on doctor honesty fom Bristol group.

    I had to share this with everyone. What a brave doctor to stand up and say this. As he is passionate about healing his patients and sees totally what is going wrong today with modern medicine. https://www.facebook.com/100002383437166/posts/2048737831882311/ -4:41 323,388 Views
  11. Joh

    Event: BACCH: "Navigating the minefield: MUS and FII", 7th Dec. 2018

    Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience
  12. Andy

    The Bristol Cable: #MillionsMissing: the campaign for ME equality

    https://thebristolcable.org/2018/05/from-bed-and-the-streets-campaign-for-me-equality/
  13. Sasha

    UK CMRC 2018 Conference held September 19 & 20 at Bristol

    ...according to today's announcement about the CMRC's new purpose, objectives and values: https://www.s4me.info/threads/cmrc-agree-on-a-new-purpose-objectives-and-values-which-replace-its-previous-charter-march-2018-ec-also-to-leave-the-board-of-the-cmrc.2809/#post-50325 Should be interesting...
  14. Joh

    Bath Fatigue Clinic - example of advice that harms child

    I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
  15. Sly Saint

    What's going on in Bristol(?)

    Bristol Cable article from July 2017 still accepting comments An excellent article from last year: " Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid furious clashes on the validity of landmark...
  16. Esther12

    Trial By Error: Bristol’s Complaint to Berkeley [Short Tuller blog 23rd December 2017]

    http://www.virology.ws/2017/12/23/trial-by-error-bristols-complaint-to-berkeley/ Christmas Eve for me... can't think of a better way to spend it that reading about a failed attempt by Bristol Uni to apply pressure on Berkeley to shut Tuller up. A shame that we don't get to see the letter they...
  17. Sly Saint

    Esther Crawley

    I didn't know where to put this, but thought it of interest. From a Bristol Uni magazine in 2013 an article by Esther Crawley. http://www.bristol.ac.uk/media-library/sites/university/migrated/documents/nonesuch6.pdf (pages 15/16 on pdf, 29/30 in mag) Her mission: "‘The aim of my fellowship is...
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