Abstract
Background
Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. This condition is termed long COVID (LC) or Post-COVID-19 condition (PCC). Despite the appreciable number of symptoms documented...
Psychometric validation of the French Multidimensional Chronic Asthenia Scale (MCAS) in a sample of 621 patients with chronic fatigue
Abstract
Background
Psychometric validation of the Multidimensional Chronic Asthenia Scale (MCAS) was conducted in order to provide an effective tool for...
Many questionnaires used to measure depression ask about general symptoms such as fatigue, sleep, appetite, concentration etc. People with a chronic illness such as ME/CFS already have those symptoms and are thus more likely to score high on these depression questionnaires, even if they are not...
From a Chronic Illness Inclusion email;
Focus groups on disability benefit assessments
Chronic Illness Inclusion wants to hear your experiences of both the Work Capability Assessment (WCA) AND Personal Independence Payments (PIP) assessments. We want your ideas for how to make the ‘claim...
https://www.theguardian.com/society/2020/mar/16/benefits-assessment-suspension-does-not-go-far-enough-says-charity
hopefully they will be putting their 'health professionals' to better use.
better still , scrap the assessments;can't believe that they still seriously believe they will be getting...
I'm just floating ideas here, and would appreciate some feedback.
I have been thinking about the difficulties that ME centres have in measuring effectiveness. It doesn't seem appropriate to put patients through a set of demanding objective assessments, and yet responses to subjective...
I've just found this petition which someone has set up to make the recording of PIP assessments mandatory: https://www.change.org/p/parliament-mandatory-recording-of-all-pip-assessments
In our case, it would certainly back up the fact that we told the assessor that caree made a half-mile trip...
[see thread (with petition) re-amalgamation of testing for both benefits]
https://www.s4me.info/threads/dont-merge-the-assessments-for-pip-and-esa-april-2019.9032/
full debate here:
https://www.theyworkforyou.com/whall/?id=2019-04-24a.318.4&s=Myalgic+Encephalomyelitis#g324.0
Blaming the victim, all over again: Waddell and Aylward’s biopsychosocial (BPS) model of disability, 2016, Shakespeare et al
https://journals.sagepub.com/doi/full/10.1177/0261018316649120
Deadline of November 10th 2017 to submit your input to the parliamentary inquiry on PIP and ESA
http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/
There are a number of tools available for journals to use to help assess RCTs.
I wondered if anyone here had 'tried them out' for PACE and/or any of the other 'RCT's
by Crawley or Chalder?
I've seen CASP mentioned...
I didn't follow this awfully well or remember very well, but you can listen from https://www.bbc.co.uk/programmes/b09zt3bw#play from 0204-0747 (I don't know if it's available outside the UK).
It's about the 'failures' (they look like deliberate misrepresentations to me and to others) to assess...
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