app

  1. Trish

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    https://www.elaros.com/ ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where they can fill in PROMs, and access to these by clinicians. The initial aim, I think is for it to be used particularly for Long Covid clinics to track...
  2. Hutan

    Monitoring app - FUNCAP - assessing functional capacity in ME/CFS

    Posting on behalf of the developer For more information and discussion of the FUNCAP survey itself, see Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al ***** Beta test: FUNCAP app for iPhone If you would like to try the first...
  3. Andy

    Protocol Personalized Management of Fatigue in Individuals With [ME/CFS] and [LC] Using a Smart Digital mHealth Solution:... 2024 Dorronzoro-Zubiete et al

    Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach Abstract Background:Fatigue is the most common symptom in myalgic...
  4. MrMagoo

    'Curable' mind-brain training app and ME/CFS, including the role of Fiona Symington

    Post copied from the Paul Garner thread and a number of following posts have been moved from that thread Some posts refer to a letter sent in response to the George Monbiot article by Fiona Symington and Paul Garner - thread here: Opinion: ‘You don’t want to get better’: the outdated treatment...
  5. Sly Saint

    DEFENERGY app for Patients with Myalgic Encephalomyelitis, Fibromyalgia, and Persistent COVID

    https://www.archyde.com/defenergy-empowering-patients-with-myalgic-encephalomyelitis-fibromyalgia-and-persistent-covid-join-the-community-and-track-your-symptoms/ @Aroa
  6. josepdelafuente

    Anyone tried Zoe - a nutrition app?

    This is Zoe - https://zoe.com/ I'm definitely not suggesting it is a treatment for M.E, but I wonder if it might help some of us feel a bit less terrible generally. I think it's an app, which by using data from stool & blood samples which you provide, and you logging everything you eat &...
  7. Andy

    Preprint: Designing and Developing an eHealth Program for Patients With Persistent Physical Symptoms: Usability Study 2023 Christensen et al

    Abstract Background: Patients with persistent physical symptoms presenting in primary care are often affected by multiple symptoms and reduced functioning. The medical and societal costs of these patients are high, and there is a need for new interventions tailored to both the patients and...
  8. hibiscuswahine

    WatchME and other HR/HRV monitoring apps

    I have been using a combination of apps for Pacing that utilise heart rate (HR) and heart rate variability (HRV) using Apple iWatch and iPhone. I have been using the watchME app and found it very useful, especially to monitor for conditions likely to induce PEM. Based on resting HR on waking...
  9. rvallee

    Monitoring app: Eureka Health

    Copied post No idea who is behind this but the idea seems coherent:
  10. Sly Saint

    A Mobile Application to Help Self-Manage Pain Severity, Anxiety, and Depressive Symptoms in Patients with Fibromyalgia Syndrome: A Pilot Study 2022

    Abstract Treatment for individuals with fibromyalgia syndrome (FMS) is complex and is not always accessible to those who could benefit. The aim of this study was to conduct a preliminary evaluation of a mobile-app-delivered, cognitive behavioral treatment (CBT)-based intervention in helping...
  11. Midnattsol

    Development of an app for registration and intervention for pwME

    Norske Kvinner's Sanitetsforening/Norwegian Women's Public Health Association has received funding to develop a new app for pwME. The app will provide coping strategies/exercises adapted to the patient group, in addition to a tracker for activity and symptoms. Google translated project...
  12. Ian NeuroProActive

    UK company Neuro ProActive

    Dear all, It’s great to be part of this forum. Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions. We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...
  13. Andy

    Smartphone-based exercise intervention for chronic pain: PainReApp randomized clinical trial protocol, 2021, Moral-Munoz et al

    Abstract Aim To evaluate the effectiveness of PainReApp, an mHealth system, based on physical exercise recommendations for patients with chronic pain (low back pain, fibromyalgia and diabetic neuropathic pain) based on pain intensity, quality of life, anxiety and/or depression, and sleep...
  14. Andy

    Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid."

    "Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health." https://makevisible.co/ There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.
  15. Andy

    Analysis of Gender Differences in HRV of Patients with [ME/CFS] Using Mobile-Health Technology, 2021, Capdevila et al

    Abstract In a previous study using mobile-health technology (mHealth), we reported a robust association between chronic fatigue symptoms and heart rate variability (HRV) in female patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This study explores HRV analysis as an...
  16. Simbindi

    Patient Access App article on CFS

    I was browsing through the patient information links on the Patient Access app [https://account.patientaccess.com/] that my GP practice offers registered patients for ordering their repeat prescriptions, providing access to their basic medical records, vaccination history etc. The following...
  17. lunarainbows

    Symptoms of Covid-19

    Split from the Coronavirus Worldwide Spread and Control thread From the COVID-19 symptom tracker app: It shows the prominence of loss of smell. This is data from the UK. It looks like they’re using people who have been tested in this graph. https://covid.joinzoe.com/us Ive been recording...
  18. InfiniteRubix

    Explosion of Facebook adverts for pain apps

    One of these is Curable https://www.facebook.com/curablehealth/ "Pain causes fatigue, etc., etc." There were two other apps being pushed in my Facebook timeline, but I can't remember what they were. Just a placeholder thread for such apps, as they seem to be being pushed harder commercially...
  19. H

    Lyme: another sad story, but a new app for areas with infected ticks

    BBC interview with a Lyme victim who has a story that too many of us recognize. It also triggered ME/CFS in her case. The good news is that there is, or will be, an app where people can find out if infected ticks have been found in certain places or areas. I´d be very interested in this app...
  20. fossil

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps.

    Will an app a day, keep the doctor away? A critical look at BPS based phone apps. In my opinion, these apps may not be designed to keep the doctor away, but to keep patients away from their doctors - in a "don't bother us with your imaginary health problems," kind of way. They seem to be...
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