https://www.elaros.com/
ELAROS is a private company that works with the NHS to provide digital apps and websites, including patient apps where they can fill in PROMs, and access to these by clinicians.
The initial aim, I think is for it to be used particularly for Long Covid clinics to track...
Posting on behalf of the developer
For more information and discussion of the FUNCAP survey itself, see
Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al
*****
Beta test: FUNCAP app for iPhone
If you would like to try the first...
Full title: Personalized Management of Fatigue in Individuals With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID Using a Smart Digital mHealth Solution: Protocol for a Participatory Design Approach
Abstract
Background:Fatigue is the most common symptom in myalgic...
Post copied from the Paul Garner thread
and a number of following posts have been moved from that thread
Some posts refer to a letter sent in response to the George Monbiot article by Fiona Symington and Paul Garner - thread here: Opinion: ‘You don’t want to get better’: the outdated treatment...
This is Zoe - https://zoe.com/
I'm definitely not suggesting it is a treatment for M.E, but I wonder if it might help some of us feel a bit less terrible generally.
I think it's an app, which by using data from stool & blood samples which you provide, and you logging everything you eat &...
Abstract
Background:
Patients with persistent physical symptoms presenting in primary care are often affected by multiple symptoms and reduced functioning. The medical and societal costs of these patients are high, and there is a need for new interventions tailored to both the patients and...
I have been using a combination of apps for Pacing that utilise heart rate (HR) and heart rate variability (HRV) using Apple iWatch and iPhone.
I have been using the watchME app and found it very useful, especially to monitor for conditions likely to induce PEM. Based on resting HR on waking...
Abstract
Treatment for individuals with fibromyalgia syndrome (FMS) is complex and is not always accessible to those who could benefit. The aim of this study was to conduct a preliminary evaluation of a mobile-app-delivered, cognitive behavioral treatment (CBT)-based intervention in helping...
Norske Kvinner's Sanitetsforening/Norwegian Women's Public Health Association has received funding to develop a new app for pwME. The app will provide coping strategies/exercises adapted to the patient group, in addition to a tracker for activity and symptoms.
Google translated project...
Dear all,
It’s great to be part of this forum.
Neuro ProActive is a web and app based, therapist led digital platform for the rehabilitation and management of long-term neurological conditions.
We support six allied health professional disciplines; Physios, Occupational Therapists, Speech and...
Abstract
Aim
To evaluate the effectiveness of PainReApp, an mHealth system, based on physical exercise recommendations for patients with chronic pain (low back pain, fibromyalgia and diabetic neuropathic pain) based on pain intensity, quality of life, anxiety and/or depression, and sleep...
"Visible tracks your post-viral illness so you can manage your activity, avoid relapse and improve your health."
https://makevisible.co/
There's not a lot of detail on the website - it seems to be focused on heart rate monitoring and tracking of symptoms.
Abstract
In a previous study using mobile-health technology (mHealth), we reported a robust association between chronic fatigue symptoms and heart rate variability (HRV) in female patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This study explores HRV analysis as an...
I was browsing through the patient information links on the Patient Access app [https://account.patientaccess.com/] that my GP practice offers registered patients for ordering their repeat prescriptions, providing access to their basic medical records, vaccination history etc.
The following...
Split from the Coronavirus Worldwide Spread and Control thread
From the COVID-19 symptom tracker app:
It shows the prominence of loss of smell. This is data from the UK. It looks like they’re using people who have been tested in this graph.
https://covid.joinzoe.com/us
Ive been recording...
One of these is Curable
https://www.facebook.com/curablehealth/
"Pain causes fatigue, etc., etc."
There were two other apps being pushed in my Facebook timeline, but I can't remember what they were.
Just a placeholder thread for such apps, as they seem to be being pushed harder commercially...
BBC interview with a Lyme victim who has a story that too many of us recognize.
It also triggered ME/CFS in her case.
The good news is that there is, or will be, an app where people can find out if infected ticks have been found in certain places or areas.
I´d be very interested in this app...
Will an app a day, keep the doctor away? A critical look at BPS based phone apps.
In my opinion, these apps may not be designed to keep the doctor away, but to keep patients away from their doctors - in a "don't bother us with your imaginary health problems," kind of way. They seem to be...
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