Development of an app for registration and intervention for pwME

Norske Kvinner's Sanitetsforening/Norwegian Women's Public Health Association has received funding to develop a new app for pwME. The app will provide coping strategies/exercises adapted to the patient group, in addition to a tracker for activity and symptoms.

Google translated project description:

The project description can be found here: https://dam.no/prosjekter/utvikling-av-applikasjon-for-registrering-og-intervensjon-ved-cfs-me/

 

I have to say I am dubious about this. Symptom tracker apps already exists, and I don't see how they can provide any type of useful exercise tips (it doesn't say what type of exercises they are thinking about, but evein breathing exercises can trigger PEM so...)

Added: Another thing I'm dubious of is the evidence that similar type of apps have shown promise for ie pain and stress relief and that knowledge from those apps can be applied here. I have a feeling they will all likely contain very similar type information about sleep hygiene and such.

 

Why on earth do they think people made sicker by exercise need to be prescribed exercises. It makes no sense.

 

Since they don't say what they mean by exercises, it's difficult to know what this will be. The Norwegian word used "øvelser" encompass breathing exercises, practice mindfulness etc. in addition to full on exercise. But this can also cause PEM for some, and the target group is "all CFS/ME patients".

And continuing in that line - all patients are not in need of a symptom tracker, many of us have been ill for years and know our triggers. A digital coping app will not help when part of what doesn't work in day to day life are things outside one's own control.