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2018

Page 4 of 29
  1. Andy
    Thread

    Invest in ME receive a donation of £57k from the John Richardson Research Group

    Invest in ME Research are very pleased and honoured to announce that a donation has been made to the charity by the John Richardson Research Group...
    Thread by: Andy, Dec 7, 2018, 1 replies, in forum: General ME/CFS news
  2. Cheshire
    Thread

    Patients’ hopes for recovery from myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS): Toward a ‘recovery in’ framework. (2018) Jason

    Devendorf, A. R., Brown, A. A., & Jason, L. A. Chronic Illness Objective There is no consensus on recovery from myalgic encephalomyelitis and...
    Thread by: Cheshire, Dec 7, 2018, 13 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  3. MyalgicE
    Thread

    Australian Health Minister meetings

    Australia’s Health Minister, Greg Hunt, has met with us (ME Australia) twice about the urgent need for biomedical research funding and updated...
    Thread by: MyalgicE, Dec 6, 2018, 3 replies, in forum: General ME/CFS news
  4. John Mac
    Thread

    Prospective Biomarkers from Plasma Metabolomics of ME/CFS Implicate Redox Imbalance in Disease Symptomatology, 2018, Hanson et al

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disease of enigmatic origin with no established cure. Its constellation of...
    Thread by: John Mac, Dec 6, 2018, 15 replies, in forum: ME/CFS research
  5. Binkie4
    Thread

    Genome-epigenome interactions associated with ME/CFS, 2018, McGowan et al.

    https://www.tandfonline.com/doi/full/10.1080/15592294.2018.1549769?scroll=top&needAccess=true Abstract published. Article behind a paywall....
    Thread by: Binkie4, Dec 6, 2018, 10 replies, in forum: ME/CFS research
  6. Amw66
    Thread

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    New paper - has a number of red flags. Focuses on fatigue description and " payback" as a description for PEM without much definition....
    Thread by: Amw66, Dec 5, 2018, 26 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Kalliope
    Thread

    David Tuller: Trial By Error: BMJ and Bristol's Ethics Exemptions

    BMJ and Bristol's Ethics Exemptions Earlier today, I sent the following e-mail to Dr Fiona Godlee, editorial director of BMJ. I cc’d Carol...
    Thread by: Kalliope, Dec 4, 2018, 14 replies, in forum: General ME/CFS news
  8. Cinders66
    Thread

    CMRC minutes November 2018

    https://www.actionforme.org.uk/uploads/images/2018/12/cmrc-board-minutes-nov-2018_2.pdf Highlights are establishment of working groups, no...
    Thread by: Cinders66, Dec 4, 2018, 28 replies, in forum: General ME/CFS news
  9. Cheshire
    Thread

    Trial By Error: Some Good News on Cochrane, David Tuller

    New post by @dave30th In what can only be characterized as a welcome surprise, Cochrane has rejected the revision of a 2014 review of exercise...
    Thread by: Cheshire, Dec 3, 2018, 21 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Sly Saint
    Thread

    Difference between Australian chronic fatigue syndrome guidelines and ME

    Another good article by Sasha Nimmo: Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance...
    Thread by: Sly Saint, Dec 3, 2018, 9 replies, in forum: General ME/CFS news
  11. Andy
    Thread

    ME Association Monthly poll: Does your doctor (GP or specialist) provide medical evidence for benefit, work, education or social care purposes?

    Does your doctor (GP or specialist) provide medical evidence for benefit, work, education or social care purposes? Yes – it was free, supportive...
    Thread by: Andy, Dec 3, 2018, 3 replies, in forum: General ME/CFS news
  12. Kalliope
    Thread

    News from Cochrane

    Apologies if it has been posted before. I've heard about it, but haven't seen this official statement from Cochrane about it. It's not dated, but...
    Thread by: Kalliope, Dec 2, 2018, 130 replies, in forum: News from organisations
  13. Sly Saint
    Thread

    University of Bristol - flyer for CFS/ME Research Nov 2018

    Don't know who this flyer is being given/sent to: [ATTACH] [ATTACH]...
    Thread by: Sly Saint, Dec 2, 2018, 5 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Daisybell
    Thread

    How it feels to be exhausted 24 hours a day...article in The Sunday Times Magazine

    https://www.thetimes.co.uk/edition/the-sunday-times-magazine/how-it-feels-to-be-exhausted-24-hours-a-day-28cx59bn9 I think this is a really good...
    Thread by: Daisybell, Dec 2, 2018, 25 replies, in forum: General ME/CFS news
  15. Andy
    Thread

    Low omega-3 index and polyunsaturated fatty acid status in patients with CFS/ME, 2018, Castro-Marerro et al

    Highlights •Erythrocyte omega-3 index (5.75%) and n-3 PUFA levels are low in individuals with CFS/ME. •The erythrocyte omega-3 index may be a...
    Thread by: Andy, Dec 1, 2018, 9 replies, in forum: ME/CFS research
  16. Science For ME
    Thread

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are...
    Thread by: Science For ME, Nov 30, 2018, 27 replies, in forum: Open Letters and Replies
  17. NelliePledge
    Thread

    30th Nov: Cochrane 'have not approved publication of the [Larun] re‐submission' - but old version not withdrawn either.

    Looks like the review was updated today, after 5:30 -...
    Thread by: NelliePledge, Nov 30, 2018, 55 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  18. Patient4Life
    Thread

    Autonomic dysfunction and HPV immunization: an overview. (2018) Blitshetyn et al.

    Autonomic dysfunction and HPV immunization: an overview. Abstract This article reviews the case series reported from several countries describing...
    Thread by: Patient4Life, Nov 29, 2018, 0 replies, in forum: Other health news and research
  19. Kalliope
    Thread

    Clinical Therapeutics: Rituximab Serum Concentrations and Anti-Rituximab Antibodies During B-Cell Depletion Therapy for CFS/ME - Rekeland,Mella et al

    Rituximab Serum Concentrations and Anti- Rituximab Antibodies During B-Cell Depletion Therapy for Myalgic Encephalopathy/Chronic Fatigue Syndrome...
    Thread by: Kalliope, Nov 29, 2018, 4 replies, in forum: ME/CFS research
  20. Sly Saint
    Thread

    Children's pain: we can make it better? - featuring J. Bond-Kendall

    Chronic fatigue syndrome One condition that often presents with a range of chronic pain symptoms is chronic fatigue syndrome (CFS) or myalgic...
    Thread by: Sly Saint, Nov 29, 2018, 0 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
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