https://www.thetimes.co.uk/edition/...eels-to-be-exhausted-24-hours-a-day-28cx59bn9 I think this is a really good article! Written by someone who became ill in 2016. ‘Two years ago, Joseph Luke went from healthy to housebound when he was struck down by ME. He describes the debilitating condition and asks why so little is being done to fund research..... To have ME is like flu taking up permanent residence inside your body. Patients are crippled by a complete lack of energy, by muscle pain and weakness. Their cognitive abilities decrease; they can suffer from insomnia and sensitivity to light and sound. Symptoms are shared between patients, but also have different manifestations. For as long as I can remember, I’ve been a morning person, but now my body seems crushed by the weight of waking. I’ve also been plagued by constant sinus pain, tinnitus, wheezing and dry eyes. My skin has taken on a strange new texture. The defining symptom of ME is “post-exertional malaise”: a worsening of all symptoms when the patient reaches a level of activity above their threshold. For some, this threshold could be having a day out with no rest breaks. For others, it could be raising their arm to brush their teeth. I am closer to the latter..... ME is not a rare disease. Its prevalence and the level of disability it causes make a mockery of how little money is dedicated to research. I have spoken to dozens of patients for whom ME has had the same impact that it has on my life. It has stripped me of my career and my independence, and dampened the part of my soul that thrives on spontaneity and activity. I have often wondered how it is possible to be this ill and still be alive, with no more medical assistance than a prescription to buck up and get out more. To be severely ill every second of every day is difficult. Sometimes I feel like I’ve made peace with it, only for my sense of self to be eroded just a little more after a particularly bad day, week or month. You see your previous self as a ghost and memories are imbued with a dreamlike strangeness, since they seem so distant from your new reality. The grand narrative of your life in which you played the all-conquering hero begins to fade, and the script for the next act remains unread.....’ I think you need a subscription to view it unfortunately.