Recent Activity

Activity stream for all registered members at Science for ME.

  1. Peter Trewhitt liked josepdelafuente's post in the thread What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?.

    This isn't a suggestion for the actual word - but I have a word I use to describe general vague superficial health / self-help babble...

    May 20, 2024 at 7:53 AM
  2. Peter Trewhitt liked SNT Gatchaman's post in the thread Polybio symposium, 17 May 2024.

    Amy Proal PhD intro 0:00 Petter Brodin MD PhD 10:21 Diane Griffin PhD 21:44 Kristin Ladell PhD speaking for David Price MD PhD 31:36...

    May 20, 2024 at 7:53 AM
  3. Deanne NZ liked Wyva's post in the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).

    OK, I've found the severe ME/CFS section but it wasn't easy, you basically need to follow the redirection from an otherwise dead link...

    May 20, 2024 at 7:46 AM
  4. Deanne NZ liked Dolphin's post in the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).

    This meeting took place in 2021 so probably not of interest to many people but I don't recall seeing this information before (but I...

    May 20, 2024 at 7:46 AM
  5. Deanne NZ liked Wyva's post in the thread USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls).

    The CDC's informational webpage about ME/CFS seems to be rewritten or at least restructured. I don't know to what extent it has been...

    May 20, 2024 at 7:45 AM
  6. Deanne NZ liked josepdelafuente's post in the thread What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?.

    This isn't a suggestion for the actual word - but I have a word I use to describe general vague superficial health / self-help babble...

    May 20, 2024 at 7:43 AM
  7. josepdelafuente replied to the thread What's a term like 'green-washing' for the rehabilitation approach to ME/CFS and similar diseases?.

    This isn't a suggestion for the actual word - but I have a word I use to describe general vague superficial health / self-help babble...

    May 20, 2024 at 7:42 AM
  8. SNT Gatchaman replied to the thread Polybio symposium, 17 May 2024.

    Amy Proal PhD intro 0:00 Petter Brodin MD PhD 10:21 Diane Griffin PhD 21:44 Kristin Ladell PhD speaking for David Price MD PhD 31:36...

    May 20, 2024 at 7:42 AM
  9. oldtimer liked rvallee's post in the thread News from Australia.

    There is a severe patient in Australia who appears to be in distress. I don't think I've seen it mentioned yet, and she seems to be...

    May 20, 2024 at 7:41 AM
  10. Murph liked SNT Gatchaman's post in the thread Is it time to move beyond blood pressure and heart rate during head-up tilt testing?, 2024, Mitchell.

    For a very quick precis, I've automagically clipped the text from what I highlighted on initial skim.

    May 20, 2024 at 7:36 AM
  11. Murph liked Hutan's post in the thread Mitochondrial DNA Missense Mutations ... Identified in a Caucasian Female with (ME/CFS) Triggered by the [EBV],2024,Tang-Siegel.

    That's a confusing long sentence, but there is a good point in there - that DNA sequencing of family members of the patient would be...

    May 20, 2024 at 7:31 AM
  12. Murph liked Dolphin's post in the thread Mitochondrial DNA Missense Mutations ... Identified in a Caucasian Female with (ME/CFS) Triggered by the [EBV],2024,Tang-Siegel.

    https://www.hindawi.com/journals/crig/2024/6475425/ Full title: Mitochondrial DNA Missense Mutations ChrMT: 8981A > G and ChrMT:...

    May 20, 2024 at 7:29 AM
  13. JellyBabyKid liked MrMagoo's post in the thread Monitoring app - Visible - a platform "designed for any invisible illness that benefits from resting and pacing - including ME/CFS & Long Covid.".

    https://workwellfoundation.org/wp-content/uploads/2023/01/HRM-Factsheet.pdf

    May 20, 2024 at 7:23 AM
  14. HolyScrod liked rvallee's post in the thread USA: The RECOVER Initiative - Long Covid research.

    One thing that hasn't been addressed is frankly: why? What exactly is expected that this trial will inform, when there have been...

    May 20, 2024 at 7:21 AM
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